CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top Picks on the Message Boards updated June 25, 2022
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Concurrent Mutations of Germline GPR101 and Somatic USP8 in a Pediatric Giant Pituitary ACTH Adenoma
  Cushing’s disease (CD) is rare in pediatric patients. It is characterized by elevated plasma adrenocorticotropic hormone (ACTH) from pituitary adenomas, with damage to multiple systems and development. In recent years, genetic studies have shed light on the etiology and several mutations have been identified in patients with CD. A girl presented at the age o […]
• 🖤 In Memory: Kate Myers, June 23, 2014
  Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
• 📰 Results Reinforce Efficacy of Recordati’s Isturisa in Cushing’s Disease
  Isturisa is a cortisol synthesis inhibitor indicated for the treatment of adult patients with Cushing’s disease for whom pituitary surgery is not an option or has not been curative.
• 🖤 In Memory of Samantha Cohn ~ June 19, 2014
  Juilliard graduate Samantha Cohn, 34, crawled out a window in her 16th-floor apartment at West 71st Street and Broadway and jumped at 10:10 a.m. Her mother told investigators she had been diagnosed with Cushing’s syndrome, police sources said.
• 🖤 In Memory of Diana Crosley ~ June 18, 2014
  Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. She was a long-time Cushie who'd had a BLA at the NIH in 2002.
• ℹ️ Basics: What is Cushing's disease?
  Blood tests and an MRI confirmed that Yawn had a tumour in her pituitary gland — a small, pea-sized organ at the base of the brain — that caused the gland to release excess adrenocorticotropic hormones. As a result, she became inundated with cortisol, a steroid the body releases in response to danger or stress. This combination of factors led to her diagnosi […]
• 📰 Transsphenoidal Surgery in an Older Patient with Cushing's Disease
  Cushing's disease causes numerous metabolic disorders, cognitive decline, and sarcopenia, leading to deterioration of the general health in older individuals. Cushing's disease can be treated with transsphenoidal surgery, but thus far, surgery has often been avoided in older patients.
• 💰 Need Help Paying for your Meds?
  Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
• 🖤 In Memory of Sarah Fraik ~ June 13, 2011
  Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
• 📰 VIDEO: New Cushing’s, Acromegaly Drug Data Prominent at ENDO Annual Meeting
  In this video exclusive, Maria Fleseriu, MD, FACE, reviews the pituitary research presented at the annual meeting of the Endocrine Society in Atlanta. Among the hottest pituitary topics at the meeting, according to Fleseriu, were dilemmas in pituitary tumors and data for new drugs for Cushing’s syndrome.
• 🏞 Cushing's MemberMap
  Cushing's MemberMap
• ✍️ Carola B (Carola), Adrenal Bio
  Carola is from Santa Cruz, CA. On December 26, 2014 she went to a local urgent care clinic with pneumonia, confirmed by an x-ray, for which she was treated.  Carola received a phone call from the urgent care clinic a few days afterwards explaining that the radiologist had seen something unusual that needed further examination.   After numerous tests her susp […]
• 📰 Cushing’s Syndrome With Acute Psychosis
  A 22-year-old woman with a three-month history of an increase in appetite, binge eating, and weight gain. After two weeks of her initial symptoms, she started to have grandiose and persecutory delusions, auditory hallucinations, decreased need for sleep, agitation, irritability, and aggression
• 👍 Share Your Experiences with Cushing's
  Let’s keep the ball rolling: the more members in the community, the smarter the insights. We're about 1,468 contributors away from being able to tell which treatments were reported to work better for different subgroups with common aspects. ~~~ The popular website "How Stuff Work"s is doing a survey of all kinds of diseases and Cushing's […]
• ℹ️ Basics: Meds - Various Medications
  Medications which are sometimes used to treat Cushing's
• 📰Altered Hippocampal Volume and Functional Connectivity in Patients with Cushing's Disease
  Stress-related brain disorders can be associated with glucocorticoid disturbance and hippocampal alteration. However, it remains largely unknown how cortisol affects the structure and function of hippocampus. Cushing's disease (CD) provides a unique “hyperexpression model” to explore the effects of excessive cortisol on hippocampus as well as the relati […]
• In Memory: Thomas F. Zachman ~ 1950-2010
  Thomas “Tommy” F. Zachman, of Windsor, formerly of Toledo, Ohio, died suddenly and unexpectedly at University Hospital in Denver on June 3, 2010, complications of Cushing's Syndrome.
• 🖤 In Memory of Sherry Carlson ~ May 30, 2020
  Sherry passed away, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love and support she’s received over the years.
• ❓How Do We Cope with Uncertainty During Testing?
  When I suggested cushings to my GP early this year, after stumbling upon info online, and linking the purple stretch marks, high blood pressure, weight gain, brain fog etc... I was told by the GP that cushings was EXTREMELY rare, and most often "only diagnosed in children". I fell apart and I felt defeated after genuinely thinking there might have […]