CushieBlog

Cushing’s Help RSS Feed

• 🎤Archived Interview: Jenn, Steroid Induced (Iatrogenic) Cushing’s patient
  Jenn (StaceyJenn) was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies). Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds....
• ⁉️ Cushing’s Myths and Facts: After a “cure” for Cushing’s, everyone heals and goes back to normal.
  Myth: After a “cure” for Cushing’s, everyone heals and goes back to normal. All Cushing’s patients can easily heal with no repercussions after Cushing’s. After pituitary surgery or a Bilateral Adrenalectomy (BLA), life is great and being “cured” means having a “normal” life!
• 🦓 Day 15: Cushing’s Awareness Challenge 2019
  So, where did all this blue and yellow come from, anyway? The answer is so easy and without any thought that it will amaze you! In July of 2000, I was talking with my dear friend Alice, who ran a wonderful menopause site, Power Surge. We wondering why there weren’t many support groups online (OR off!) for Cushing's and I wondered if I could start one my […]
• 🎤Archived Interview: Monica and Crystal, Pituitary Buddies
  Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.
• 🦓 Day 14: Cushing’s Awareness Challenge 2019
  After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
• ⁉️ Cushing’s Myths and Facts: It is MY fault that I got Cushing’s…
  Fact: This is a very controversial topic because we don’t like to talk about it. However, many people struggle with this myth.
• 🦓 Day 13: Cushing’s Awareness Challenge 2019
  Way back when we first got married, my husband thought we might have a big family with a lot of kids. He was from a family of 6 siblings, so that’s what he was accustomed to. I am an only child so I wasn’t sure about having so many. I needn’t have worried... When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be. […]
• 🎤Archived Interview: Karen Nolan, Cyclic Cushing’s, part 2
  Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn’t advise Vermont’s Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million peop […]
• 🕺Cushing’s DanceOff Challenge: Doc Karen
  Welcome to our #DanceOff challenge video! This kid really knows how to dance, hmm?!?
• ⭐️ Top PIcks updated April 12, 2019
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 😃 New Testimonial From Koo
  I give thanks for all of you daily as I have hope now that persistence will pay off and I'll have a diagnosis soon, and I wouldn't have ever been able to have that hope without this site! Thank you MaryO!!
• 📰 Cyclic Cortisol Production May Lead to Misdiagnosis in Cushing’s
  Subclinical Cushing’s syndrome is an asymptomatic condition characterized by mild cortisol excess without the specific signs of Cushing’s syndrome. The long-term exposure to excess cortisol may lead to cardiovascular problems in these patients.....However, cortisol secretion can be cyclic in Cushing’s syndrome, meaning that clinicians might not detect excess […]
• 📞 Comment added to Webinar: New and Traditional Treatments for Male Hypogonadism
  steroid induced cushing’s does any one know of a doctor that treats this
• 🦓 Day 12: Cushing’s Awareness Challenge 2019
  As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing's. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery cal […]
• 🕺Cushing’s DanceOff Challenge: Courtney
  Welcome to our #DanceOff challenge video! This kid really knows how to dance, hmm?!?
• 🎤Archived Interview: Cushing’s Diagnosis and Symptoms, part 2
  Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.
• 🦓 Day 11: Cushing’s Awareness Challenge 2019
  The night before I was admitted, I signed my will.  I was sure I was going to die at NIH.  If not during testing, as a result of surgery.  The scary this is that I didn't really care.  I'd rather take this chance than continue to live with Cushing's.The first time I was there was for 6 weeks as an inpatient. More of the same tests, except for […]
• 🕺Cushing's DanceOff Challenge
  Welcome to our #DanceOff challenge video! The rules are simple – Play or Pay (or share! 😉 )
• 🎤 Mary O’Connor (MaryO) second interview archive with Robin Smith (staticnrg)
  Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for severa […]
• 🦓 Day 10: Cushing’s Awareness Challenge 2019
  The above is the official Cushing's path to a diagnosis but here’s how it seems to be in real life...