CushieBlog

Cushing’s Help RSS Feed

• 🦓 Day 10: Cushing’s Awareness Challenge 2021
  This one is so easy. I’ve said it a thousand times – you know your own body better than any doctor will. Most doctors have never seen a Cushing’s patient, few ever will in the future. If you believe you have Cushing’s (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take […]
• ⁉️ Cushing’s Myths and Facts: “All types of Cushing’s are the same”
  There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on...
• 🎤 Archived Interview: JenS discussed Bilateral Adrenalectomy (BLA)
  Jen had Pituitary surgery by Dr. Shahinian 4/28/04, removed ACTH secreting corticotroph hyperplasia and prolactinoma.
• 🦓 Day 9: Cushing’s Awareness Challenge 2021
  Uh, Oh – I’m nearly a day late (and a dollar short?)…and I’m not yet sure what today’s topic will be. I seem swamped by everything lately, waking up tired, napping, going to bed tired, waking up in the middle of the night, starting all over again…and the coronavirus which makes everything more hectic, stressful and tiring.
• 🦓 From a Past Blogging Challenge
  I remember the moment I realized something wasn’t right. My mom was taking me to the mall, because none of my jeans fit me anymore. She was talking about how she wished I would try to lose weight, because she has been overweight most of her life, and didn’t want that for me. But, I needed pants to wear to school, so I bought another size up. I remember think […]
• 🦓 Day 8: Cushing’s Awareness Challenge 2021
  Today, April 8th, is Cushing's Awareness Day. Please wear your Cushing's ribbons, t-shirts, awareness bracelets or Cushing's colors (blue and yellow) and hand out Robin’s wonderful Awareness Cards to get a discussion going with anyone who will listen. And don’t just raise awareness on April 8. Any day is a good day to raise awareness.
• ⁉️ Cushing’s Myths and Facts: Cushing's Syndrome/Disease can be healed or cured
  Myth: Cushing's Syndrome/Disease can be healed or cured through change in diet or exercise.
• 🎤 Archived Interview with Mary O’Connor aka MaryO, Cushings-Help.com founder
  As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there... Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted.
• 🎤 Archived Cushing’s Awareness Day Archived Voice Chat!
  Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cushing’s Awareness Day Special Chat
• 🍰 Harvey Cushing: The father of modern neurosurgery
  Harvey Cushing (1869-1939) is considered to be the father of modern neurological surgery. In the early part of the 20th century, he developed basic techniques and instruments for operating on the brain and, as a result, founded the discipline as a distinct surgical speciality. Before Cushing began his career, brain tumours were considered to be inoperable, a […]
• 🐝 Bee’s Knees 8
  This is a continuation of an ongoing knee issue. It started in 2013 with Icy Days and Mondays and Bee’s Knees I’m hoping to end my knee pain in the very near future… Monday, April 5, I got that injection – and a lot of hope, finally. For my fourth injection, I had a fourth different doctor. This one had other options for me that no one else had every suggest […]
• 🦓 Day 7, Cushing’s Awareness Challenge 2021
  On Becoming Empowered. Adapted from my blog post Participatory Medicine. This is kind of a “cheat” post since it’s a compilation of other posts, web pages, message board posts and some original thoughts. I wrote it to submit to Robin’s Grand Rounds, hosted on her blog.
• 🦓 Day 6: Cushing’s Awareness Challenge 2021
  I remember the naive, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure. Who knew that diagnosing Cushing’s would be years of testing, weeks of collecting every drop of urine, countless blood tests, many CT and MRI scans…
• 📞 Celebrate 20 Years-Pituitary Patient Support Group
  Please Join Us to Celebrate 20 Years-Pituitary Patient Support Group. Saturday April 10, 2021: 9:00am-11:00am (PST) (Scroll below for Zoom meeting links) We invite you to join the conversation with our experts: Pejman Cohan, neuroendocrinologist & Daniel Kelly, neurosurgery.
• 🦓 Day 5, Cushing’s Awareness Challenge 2021
  In Day 9 on April 9, 2015, I wrote about how we got the Cushing’s colors of blue and yellow. This post is going to be about the first Cushing’s ribbons.
• 🏞 One New Cushie added to the Cushing's MemberMap
  Cheryl is from Mount Dora, Florida. She had a bilateral adrenalectomy (BLA) after two failed pituitary surgeries.
• ⁉️ Cushing’s Myths and Facts: Cushing’s is RARE, No one has Cushing’s!
  Myth: “Cushing’s is RARE”, “No one has Cushing’s!”, “It is literally impossible for you to have Cushing’s Disease!”
• 🦓 Day 4, Cushing’s Awareness Challenge 2021
  Our “Official mascot” is the zebra. In med school, student doctors are told “When you hear hoofbeats, think horses, not zebras“.
• ✍️ Shea S (Shea), Undiagnosed Bio
  Shea is from Grass Valley, CA. She is a a 54-year-old woman who over the past two years has developed a buffalo hump and gained 60 pounds.
• ⁉️ Cushing’s Myths and Facts
  Dr. Karen Thames shared these on her Facebook Page, Empowering People with Invisible Chronic Illness – The EPIC Foundation She has graciously given me permission to share them here and in the CushieWiki and on the Cushing’s Help message boards.