CushieBlog

Cushing’s Help RSS Feed

• ✍️ New Bio Form
  We have a new form to add your own bio.
• 🏞 New Cushie added to the Cushing's MemberMap
  Katie is from Barrington, RI. She has Cushing's Disease and recommended her doctor, Brooke Swearingen
• 📞 Livestream for Rare Disease Congressional Caucus Briefing December 4th
  For those who can not make it to Washington, DC December 4 there will be a livestream will be available for the Rare Disease Congressional Caucus briefing.
• 📰 Laura, In The Media
  Cushing's has appeared several times in the media. Jayne Kerns encouraged Zastrow to check out a Cushing's Web site, which Zastrow did. Every symptom listed matched her condition. Her doctor ran some tests, and the results confirmed Zastrow had Cushing's, a hormonal disorder often brought on by a tumor.
• 📞 Webinar: Surgical Strategies in the Treatment of Pituitary Tumors
  Learning Objectives: To understand the role of surgery in the treatment of pituitary tumors To understand the advantages and disadvantages of different surgical approaches in the treatment of pituitary tumors To understand the risks and benefits associated with different surgical strategies
• ✍️ Mak M, Pituitary Bio
  Mak is from California She has been having a really rough couple years with a multitude of symptoms. A 6mm microadenoma was found on my pituitary gland
• 📞 Webinar: Dr. Theodore Friedman on the Macrilen Stimulation Test for Growth Hormone Deficiency
  Dr. Theodore Friedman’s next webinar will be on the Macrilen Stimulation Test for Growth Hormone Deficiency: Sunday,  December 9, 2018, 6-7 PM PST. He will discuss the new Macrilen stimulation test and compare it to the glucagon stimulation. If you may have growth hormone deficiency, you do not want to miss this webinar.
• ✍️ Louise, Adrenal Bio
  Louise from Washington She has ACTH independent bilateral adrenal hyperplasia.
• 📰 Mutations in Two Genes, USP48 and BRAF, Linked to Cushing’s Disease
  Mutations in USP48 and BRAF genes contribute to the overproduction of adrenocorticotropin (ACTH) hormone by the pituitary gland and consequent development of Cushing’s disease, a study shows, linking these genes to the disease for a first time. The study, “Identification of recurrent USP48 and BRAF mutations in Cushing’s disease,” published in the journal Na […]
• ❓Comment added to Can You Help?
  I believe Cushings can be improved through taking out starches in our diet. I have blood work and 24 HR urine results that need to be looked at by researchers because my endocrinologist is not helpful. When he looked at the results of bloodwork he said I had a Cushings recurrence. Then after a second 24 HR urine it came back not a recurrence with almost norm […]
• ✍️ Comment added to Sahana (Sahana), Adrenal Bio
  How is your daughter doing? I have an adrenal adenoma and am having a right adrenalectomy soon...
• ❓Can You Help?
  I dropped by this site because my friend’s daughter has Cushings and I wanted to learn more. Is there any chance that Cushings might be manageable or improvable in a way similar to what Izabella Wentz proposes for Hashimotos?
• 📰 Comment added to Jayne, In The Media
  I dropped by this site because my friend’s daughter has Cushings and I wanted to learn more. Is there any chance that Cushings might be manageable or improvable in a way similar to what Izabella Wentz proposes for Hashimotos?
• 💉 New Helpful Doctor added to Oregon
  In her bio, Krista added her helpful doctor, Maria Fleseriu
• ✍️ Krista, Pituitary Bio
  Krista is from Eugene, OR She had pituitary surgery in April, 2015. She has also dealt with thyroid cancer.
• 🏞 3 New Cushies added to the Cushing's MemberMap
  One is from Pittsburgh, PA, i from Udine, Italy snd one from Roanoke, VA
• 📰 Jayne, In The Media
  Jayne was diagnosed with Cushing's disease and became pregnant despite her illness, which usually makes women infertile. Jayne was the subject of a Live Interview in the Cushings Help Voice Chat / Podcast series.
• 🏞 The Cushing's MemberMap
  We're rebuilding the Cushing's Member Map. Add your information (or your doctor's) at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/
• ✍️ Sahana (Sahana), Adrenal Bio
  Sahana is from Mumbai India Her daughter had many Cushings symptoms starting at 15. She had laparoscopic adrenal surgery and is now 7 months post-op.
• ✍️ Comment added to Roxanna (Dawn), Undiagnosed Bio
  I AM HAVING THE SAME SYMPTOMS YOU SUGGESTED AND MY TESTS ALL LOOK FINE AS WELL. I AM AT MY WITS END WITH THIS AND MY FAMILY BARES THE BRUNT OF IT. I WILL DO ANYTHING TO GET HELP...