CushieBlog

Cushing’s Help RSS Feed

• ℹ️ Cushing's Syndrome Overview
  Cushing’s syndrome is a rare disorder that occurs when the body is exposed to too much cortisol. Cortisol is produced by the body and is also used in corticosteroid drugs. Cushing's syndrome can occur either because cortisol is being overproduced by the body or from the use of drugs that contain cortisol (like prednisone)…
• ℹ️ New Area For Cushing's Basics
  We'll periodically post basic Cushing's info here - along with updated info if available. Please feel free to ask questions to learn more about Cushing's, testing, treatments and such.
• ⭐️ Top PIcks on the Message Boards updated September 113 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Adrenalectomy in ectopic Cushing’s syndrome: A retrospective cohort study from a tertiary care centre
  Endogenous Cushing's syndrome (CS) has an estimated incidence of 0.2–5.0 per million people per year.1 In 5–10% of these, it is caused by ectopic secretion of adrenocorticotrophic hormone (ACTH) or, in extremely rare cases, corticotrophin-releasing hormone, from a non-pituitary tumou
• ✍️ Comment added to Explaining Cushing’s to Others
  Thanks a lot for this post.
• 🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
  Kandy Klein long-time member of the message boards passed away September 9, 2007.
• 📰 Hypopituitarism and COVID-19 – exploring a possible bidirectional relationship?
  The pituitary gland acts like a double-edged sword for COVID-19. On one end, hypopituitarism predisposes patients to metabolic disorders like DM, obesity, and VFs, all of which are known risk factors for COVID-19. On the other hand, COVID-19 may cause direct or indirect damage to the pituitary glands by entering the brain and inducing unfavorable vascular ev […]
• 📰 Diagnostic pitfalls in Cushing's disease impacting surgical remission rates; test thresholds and lessons learned in 105 patients
  Use of strict biochemical thresholds may help avoid offering transsphenoidal surgery to presumed CD patients with equivocal data and improve surgical remission rates. Patients with Cushingoid phenotype but equivocal biochemical data warrant additional rigorous testing.
• 🖤 In Memory: Ryan Tyler Monds ~ September 4, 2016
  Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.
• 🖤 In Memory: Janice, Tuesday, September 4, 2001
  In Memory of those we have lost. Janice died Tuesday, September 4, 2001. The very first Cushing's Awareness Ribbons were made for, and worn at, Janice's funeral. She had adrenal Cushing's.
• 📰 Primary Adrenal Insufficiency Due to Bilateral Adrenal Infarction in COVID-19
  Patients with positive antiphospholipid antibodies should be closely monitored for symptoms or signs of acute adrenal insufficiency during COVID-19.
• 👕 Pituitary Tumor Awareness Butterfly Believe T-Shirt
  I just got this to help spread awareness: Solid colors: 100% Cotton; Heather Grey: 90% Cotton, 10% Polyester; All Other Heathers: 50% Cotton, 50% Polyester Pituitary Tumor Awareness, Pituitary Tumor warrior, survivor, fighter, Pituitary Tumor Awareness month, butterfly ribbon
• 🩺 Albany Med Welcomes Dr. Robert Heller, Cranial and Skull Base Surgeon
  Robert Heller, M.D., has joined Albany Med’s Department of Neurosurgery and has been named assistant professor of neurosurgery at Albany Medical College. He specializes in the surgical treatment of pituitary tumors, meningiomas, acoustic neuromas and gliomas. He is also skilled in stereotactic radiosurgery, a precisely targeted form of radiation therapy to t […]
• 🖤 In Memory: Cassandra Dills-Dailey ~ August 29, 2017
  Casey Dailey, age 38, was fighting Cushing's disease, a pituitary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weekend, she began feeling sick. She vomited, sometimes with blood. Then, she couldn't stand or talk, relatives said. A high fever started Sunday, a […]
• 🖤 In Memory: Jessica Lee Pierson, August 29, 2018
  Jessica Lee Pierson, 35, passed away Wednesday, August 29, 2018 from complications of Addison’s disease.
• 🩺 Dr. Friedman: COVID-19 Vaccine Third Shots vs Booster Shots
  Dr. Friedman is getting a lot of emails on booster shots versus third shots. Third shots are for immuno-compromised patients that the FDA is recommending for a small group of patients The FDA also has the intention to soon make booster doses widely available to all healthy individuals. I am writing to clarify the difference between booster shots and third do […]
• 📰 The Cushings Disease Treatment Market To Be Consistent In The Next 10 Years
  Growing healthcare expenditure and increasing awareness regarding Cushing syndrome aids in the revenue growth of Cushing’s disease treatment market. Increasing number of new product launches also drives the market for Cushing’s disease Treatment devices. However availability of alternative therapies for curing Cushing syndrome is expected to hamper the growt […]
• 🏆 Last chance to submit a RareVoice Nomination!
  All about nominating an advocate.
• 🎤 RARE Patient Advocacy Summit
  Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. Join us for a variety of interactive and educational events, meet-ups, workshops and networking opportunities. Here you’ll have the opportunity to connect and engage with others in […]
• 📰 Crinetics Pharmaceuticals’ Oral ACTH Antagonist, CRN04894, Demonstrates Pharmacologic Proof-of-Concept with Dose-Dependent Cortisol Suppression in Single Ascending Dose Portion of Phase 1 Study
  Crinetics Pharmaceuticals, Inc announced positive preliminary findings from the single ascending dose (SAD) portion of a first-in-human Phase 1 clinical study with CRN04894 demonstrating pharmacologic proof-of-concept for this first-in-class, investigational, oral, nonpeptide adrenocorticotropic hormone (ACTH) antagonist that is being developed for the treat […]