CushieBlog

Cushing’s Help RSS Feed

• ✍️ Comment added to Michelle M, Pituitary Bio
  Good luck with your MRI.
• ✍️ Michelle M, Pituitary Bio
  Michelle is from Columbia, MO. She was diagnosed with Cushing's in 2020 and had pituitary surgery. This year, it appeared that she had PCOS but it turned out to be a recurrence.
• 📰 Ketogenic Diet Initially Masks Symptoms of Hypercortisolism in Cushing’s Disease
  This case report illustrated how a Low Carb diet was initially successful at ameliorating the patient’s associated symptoms of hypertension and obesity, making his diagnosis of Cushing's Disease go undetected.
• ✍️ MaryO: Adapted From 40 Days of Thankfulness
  I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now. Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do web design, how to navigate NIH. It taught me patience, how to make ph […]
• ⭐️ Top Picks on the Message Boards updated November 23, 2022
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Recurrent Neuroendocrine Tumor of the Cervix Presenting With Ectopic Cushing’s Syndrome
  Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to imp […]
• 🎂Happy birthday Dr. Friedman!
  Happy birthday Dr. Friedman! Thank you for all you do and for the incredible impact you are making in the world! Join us in wishing Dr. Friedman a joyous and healthy year ahead!
• ‼️ Message Board Upgrade (and new features!) Today
  Version 4.7.4 of Invision Community is now available This is our November maintenance release. Key changes include: New Feature: Moderating with Personal Alerts New Feature: Moderator approval queue now includes a reason why Updated: Events update includes additional streaming platforms Invision Community now requires a minimum of PHP 8.0 Also included: 4.7. […]
• ✍️ Comment added to MaryO, 35th Pituitary Surgery Anniversary
  Hi thannks for posting this
• ✍️ More Comments added to MaryO, 35th Pituitary Surgery Anniversary
  More from Facebook, 2022 - Janice said "I’m so happy that you documented your life. And am grateful you gave up so Much of your life to raise awareness for our disease....If it weren’t for the support that you have provided all of us over the years life would be so Much more difficult. Thanks for everything you’ve done and continue to do" Marie sai […]
• 📰 Levoketoconazole Treatment in Endogenous Cushing’s Syndrome
  This extended evaluation (EE) of the SONICS study assessed effects of levoketoconazole for an additional 6 months following open-label, 6-month maintenance treatment in endogenous Cushing’s syndrome.
• ✍️ Comment added to MaryO, 35th Pituitary Surgery Anniversary
  From Facebook, 2022: Gina said Grateful for you MaryO!!! You're not gonna know till you get to heaven how many people you helped thru your tireless advocacy!
• 🖤 In Memory: Erin Lee Rechel Pugh
  Erin was from Canton, Ohio and several other Cushies met her at local meetings. She was 35 when she died.
• 🖤 In Memory of Stacy Ollenberger ~ November 4, 2015
  Stacy had two pituitary surgeries, radiation and an adrenalectomy. She died of an adrenal crisis on November 4, 2015.
• 📰 Development of Human Pituitary Neuroendocrine Tumor Organoids to Facilitate Effective Targeted Treatments of Cushing’s Disease
  Cushing’s disease (CD) is a serious endocrine disorder caused by an adrenocorticotropic hormone (ACTH)-secreting pituitary neuroendocrine tumor (PitNET) that stimulates the adrenal glands to overproduce cortisol. Chronic exposure to excess cortisol has detrimental effects on health, including increased stroke rates, diabetes, obesity, cognitive impairment, a […]
• ℹ️ Cushing's Basics: Family Information / Kate
  Dear friends and family: I am writing this letter to share with you some basic facts about Cushing’s Disease/Syndrome and the recovery process so that you will have sufficient information to form realistic expectations about me and my ability to engage in certain activities in light of this disease and its aftermath. As you know, Cushing’s is a rarely diagno […]
• ✍️ MaryO, 35th Pituitary Surgery Anniversary
  Today is the anniversary of MaryO's pituitary surgery at NIH in 1987. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
• ✍️ Jason T, Pituitary Bio
  Jason is from England. Pituitary tumour found in 2020(posterior lobe),now test after test and 2nd MRI still shows microadenoma. He also had two traumatic brain injuries.
• 📰 Evaluation of Ketoconazole As a Treatment for Cushing’s Disease in a Retrospective Cohort
  The first-line treatment for Cushing’s disease is transsphenoidal surgery, after which the rates of remission are 60 to 80%, with long-term recurrence of 20 to 30%, even in those with real initial remission. Drug therapies are indicated for patients without initial remission or with surgical contraindications or recurrence, and ketoconazole is one of the mai […]
• ✍️ Comment added to Niamh (niamhiblog), Adrenal Bio
  I have a tumour on my right adrenal gland and diagnosed with Cushings 3 years ago . Covid got in the way of surgery initially so now I wait and I wait. I try to keep going but I really just want to stay in bed as I’ve little energy, poor concentration and less interest…