• Home
  • About
  • Bios
  • CushieWiki
  • Facebook
  • Forums
  • Symptoms
  • Tests
  • Treatments

CushieBlog

Entries RSS | Comments RSS
  • Translate to…

  • Recent Posts

    • Disease Remission and Surgical Outcomes of Endoscopic Transsphenoidal Surgery for Cushing Disease: A Single Center Experience
    • BIPSS Diagnostic Method May Cause False Positive in Some Cases of Cyclic Cushing’s Syndrome
    • Metabolomic Biomarkers in Urine of Cushing’s Syndrome Patients
    • Froedtert and MCW researchers investigate Cushing syndrome incidence in bariatric surgery patients
    • Imaging Technique Measures Tumor Stiffness to Aid Surgical Planning
  • Enjoying the Free Content?

  • Recent Comments

    Unknown's avatar38 Years Cushing… on In Memory: Edward H. Oldfield,…
    Unknown's avatarVoices from the Past… on Looking at your Doctor’s…
    Unknown's avatarBasics: Meds: Recorl… on FDA Approval for Endogenous Cu…
    Unknown's avatarWhat’s on *Your* Med… on Medical ID Jewelry Often Lacks…
    Unknown's avatarDay 26, Cushing’s Aw… on Day 6: Cushing’s Awareness Cha…
  • Categories

    • Addison's disease
    • adrenal
    • adrenal crisis
    • Cancer
    • Clinical trials
    • Cushing
    • Cushing's
    • Diagnostic Testing
    • FAQ
    • fundraising
    • General Health
    • General Public
    • growth hormone
    • Health Care
    • Helpful Doctors
    • Humor
    • Inspiration
    • Interview
    • Lifestyle Tips
    • Meetings and Conferences
    • Myths and Facts
    • Newsletters
    • Past News Items
    • pituitary
    • podcast
    • Rare Diseases
    • Round-up
    • symptoms
    • Thankfulness
    • Treatments
    • Uncategorized
    • Video
    • Webinar
  • Cushings on Facebook

    Cushings on Facebook
  • Meta

    • Create account
    • Log in
    • Entries feed
    • Comments feed
    • WordPress.com

RARE Patient Advocacy Summit

Posted on September 23, 2015 by MaryO

 

I’m on my way to California today.  I was nominated for an award in the 2015 Tribute to Champions of Hope so I’ll be flying to Huntington Beach  for the 2-day  Fourth Annual RARE Patient Advocacy Summit. Follow along with LiveStream.

Saturday night will be the Gala.

Find my name on the list of nominees here: https://globalgenes.org/championsofhope/

One of the very best parts of this trip, though, is that I’m staying with a good friend from the Cushing’s Community.

WOOHOO

 

Share this:

  • Email a link to a friend (Opens in new window) Email
  • Print (Opens in new window) Print
  • Share on Facebook (Opens in new window) Facebook
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Share on Pocket (Opens in new window) Pocket
  • Share on X (Opens in new window) X
  • More
  • Share on Pinterest (Opens in new window) Pinterest
  • Share on Reddit (Opens in new window) Reddit
  • Share on Tumblr (Opens in new window) Tumblr
Like Loading...

Filed under: Cushing's, Meetings and Conferences, pituitary, Rare Diseases | Tagged: award, Champions of Hope, Champions of Hope Gala, community, fundraising, Global Genes, legislation, LiveStream, MaryO, Patient Advocate, Rare disease, research, support, The Fourth Annual RARE Patient Advocacy Summit | Leave a comment »

    • 📆 Save the Date: Menopause: new approach to management on Sunday February 22 2026 at 6 PM
    • 📰 BIPSS Diagnostic Method May Cause False Positive in Some Cases of Cyclic Cushing’s Syndrome
    • 📰 Metabolomic Biomarkers in Urine of Cushing’s Syndrome Patients
    • ℹ️ Understanding Cortisol: The Stress Hormone Explained
    • Froedtert and MCW researchers investigate Cushing syndrome incidence in bariatric surgery patients
    • ✍️ Add or update Your Bio
    • 🥔 Toni (Toni), Adrenal Bio
    • 📘 Janice (Not So Cushie), Upcoming Book, Installment 4
    • 🧠 Neale O (NealeO), Pituitary Bio
    • ❓Chelsea, Undiagnosed Bio
  • September 2015
    M T W T F S S
     123456
    78910111213
    14151617181920
    21222324252627
    282930  
    « Aug   Oct »
  • Tags

    24-hour urinary free cortisol abstract ACTH Addison's disease adenoma adrenal adrenalectomy adrenal glands adrenal insufficiency Adrenocorticotropic hormone awareness BLA blood pressure buffalo hump Cancer children clinical trial cortisol Cushing Cushing's Cushing's Awareness Challenge 2012 Cushing's Awareness Challenge 2015 Cushing's Awareness Challenge 2016 Cushing's Disease Cushing's Help Cushing's Syndrome Cushing Disease Cushing Syndrome depression dexamethasone suppression test diabetes diabetes mellitus diagnosis ectopic endocrinologist endogenous endoscopic fatigue glucocorticoids growth hormone headache health hypercortisolism hypertension ketoconazole kidney cancer Korlym MaryO message boards Metyrapone mifepristone mortality MRI muscle weakness NIH obesity Osilodrostat osteoporosis pasireotide pituitary Pituitary adenoma Pituitary gland pituitary surgery recurrence remission steroids stress surgery thyroid transsphenoidal tumor UFC video weight Weight gain

Blog at WordPress.com. WP Designer.

  • Subscribe Subscribed
    • CushieBlog
    • Join 272 other subscribers
    • Already have a WordPress.com account? Log in now.
    • CushieBlog
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...
 

    %d