Do You Use Groupon?

Posted on June 29, 2013 by MaryO

groupon

Matching Donations at Groupon Help Keep Cushings Help Going!

From my email –

The world’s most popular (and largest) daily deals site is now at iGive.  Groupon’s great deals will mean donations for Cushings Help.

Even better — this holiday week (and a bit more), we’re going to match the donations raised by your supporters who shop at Groupon.  That’s right, DOUBLE DONATIONS at the hottest deal site in town between 6/28/13 and 7/14/13.

Let your supporters know, so they can save money and help Cushings Help at the same time.

Share now by forwarding this e-mail, posting on your group’s Facebook page, and even tweeting.
Just have them visit iGive.com/Groupon.

Some of your supporters not already iGive members?  They can join today (always free, the stores pay for everything) at iGive.com/welcome/warmwelcome.cfm?c=17825.
The optional iGive Button makes it automatic at over 1,300 great stores
A portion of purchases at over 1,300 stores means a free donation to Cushings Help.  The Button makes sure every purchase counts, even if you forget.

Robert Grosshandler
Founder, iGive.com

P.S. Watch Small Turn into Big

Thanks for your support!

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Quality of Life and Other Outcomes in Children Treated for Cushing Syndrome

Posted on June 25, 2013 by MaryO

Abstract

Journal of Clinical Endocrinology and Metabolism, 05/16/2013  Review Article  Clinical Article

Keil MF – Cushing syndrome (CS) in children is associated with residual impairment in measures of health–related quality of life, even after successful resolution of hypercortisolemia, highlighting the need for early identification of morbidities and improvements in long–term management of these patients.

A review of the literature identifies significant morbidities associated with CS of pediatric onset, which must not be treated in isolation. CS affects children and adolescents in many ways that are different than adults.

Post–treatment challenges for the child or adolescent treated for CS include: optimize growth and pubertal development, normalize body composition, and promote psychological health and cognitive maturation. All these factors impact health–related quality of life, which is an important outcome measure to assess the burden of disease as well as the effect of treatment.

Get this article here

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Endoscopic transsphenoidal pituitary surgery: a good and safe primary treatment option for Cushings disease, even in case of macroadenomas or invasive adenomas.

Posted on June 24, 2013 by MaryO

Abstract – European Journal of Endocrinology, 06/24/2013  Clinical Article

Wagenmakers MA et al. – This study aims to gain insight in the role of endoscopic TS as a primary treatment option for CD, especially in patients with MRI negative CD and (invasive) macroadenomas.

The data suggest that in patients with non–invasive and invasive macroadenomas the endoscopic technique of TS should be the technique of choice as remission rates seem to be higher than remission rates reported for microscopic TS, although no comparative study has been performed.

Get this article here.

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Research on Cushing’s Disease Presented at ENDO 2013

Posted on June 24, 2013 by MaryO

endo-chart

Researchers at PHAR, in conjunction with experts from Novartis Pharmaceuticals Corporation, presented the results of several studies on Cushing’s disease at the Endocrine Society’s 95th Annual Meeting on June 19th, 2013.

Cushing’s disease, a pituitary disorder, is poorly studied because of its rarity. The PHAR research team reported on the incidence, treatment patterns, and annual economic burden associated with the disease–topics on which very little was previously known.

The three posters presented at ENDO can be viewed by clicking the links below:

Incidence of Cushing’s Disease in the United States

Real-World Treatment Patterns in Cushing’s Disease Patients in Two Large US Nationwide Databases: Application of a Novel, Graphical Methodology

Annual Economic Burden Associated with Cushing’s Disease in the United States

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Have You Gone to the ER With an Adrenal Crisis?

Posted on June 23, 2013 by MaryO

This Survey is to gather information for the Adrenal Insufficiency Awareness Organization’s grant project to create educational materials for ER personnel.

The survey is for those of you who have been to the ER during an impending or full blown Adrenal Crisis. (you may fill it out for a child or yourself)

Your help is appreciated!

At the end of the survey you will have the chance to enter for a chance to win an Adrenal Insufficiency Awareness Pin.

https://www.surveymonkey.com/s/ERcare

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