Fourth Annual Cushing’s Awareness Challenge

awareness

 

The Cushing’s Awareness Challenge is almost upon us again!

Do you blog? Want to get started?

Since April 8 is Cushing’s Awareness Day, several people got their heads together to create the Fourth Annual Cushing’s Awareness Blogging Challenge.

All you have to do is blog about something Cushing’s related for the 30 days of April.

There will also be a logo for your blog to show show you’ve participated.

Please let me know the URL to your blog in the comments area of this post or an email  and I will list it on CushieBloggers ( http://cushie-blogger.blogspot.com/)

The more people who participate, the more the word will get out about Cushing’s.

Suggested topics – or add your own!

  • In what ways have Cushing’s made you a better person?
  • What have you learned about the medical community since you have become sick?
  • If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing’s patients?
  • What would you tell the friends and family of another Cushing’s patient in order to garner more emotional support for your friend? challenge with Cushing’s? How have you overcome challenges? Stuff like that.
  • I have Cushing’s Disease….(personal synopsis)
  • How I found out I have Cushing’s
  • What is Cushing’s Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
  • My challenges with Cushing’s
  • Overcoming challenges with Cushing’s (could include any challenges)
  • If I could speak to an endocrinologist organization, I would tell them….
  • What would I tell others trying to be diagnosed?
  • What would I tell families of those who are sick with Cushing’s?
  • Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cured.
  • What will happen if I’m not cured?
  • I write about my health because…
  • 10 Things I Couldn’t Live Without.
  • My Dream Day.
  • What I learned the hard way
  • Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
  • Health Madlib Poem. Go to : http://languageisavirus.com/cgi-bin/madlibs.pl#.VPGZQlPF9A8 and fill in the parts of speech and the site will generate a poem for you.
  • The Things We Forget. Visit http://thingsweforget.blogspot.com/ and make your own version of a short memo reminder. Where would you post it?
  • Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
  • 5 Challenges & 5 Small Victories.
  • The First Time I…
  • Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
  • How much money have you spent on Cushing’s, or, How did Cushing’s impact your life financially?
  • Why do you think Cushing’s may not be as rare as doctors believe?
  • What is your theory about what causes Cushing’s?
  • How has Cushing’s altered the trajectory of your life? What would you have done? Who would you have been
  • What three things has Cushing’s stolen from you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals?
  • What new goals did Cushing’s bring to you?
  • How do you cope?
  • What do you do to improve your quality of life as you fight Cushing’s?
  • How Cushing’s affects children and their families
  • Your thoughts…?

Cushing’s in Men

Robin (staticnrg) writes:

“If you don’t have a blog or don’t have the time to blog, you can still share for 30 days. MoxieMelissaTx and are trying to make it easy for you. Share others’ blog posts. Share the info-graphics we are putting up each day. Tell your own story. Do a Wordle. Do something. It can be one day, or all 30 days. The more we talk about Cushing’s, the more folks will find out about it and/or realize they have it.”

I wanted to share Robin’s graphic.  It’s rare for men to have Cushing’s, even rarer than women.

Some men do get Cushing’s, though.  Some of their bios are here: http://www.cushie.info/index.php/cushing-s/news-items/14-bios-of-male-patients

Cushing’s Awareness Blogging Challenge 2013

Do you blog? Want to get started?

Since April 8 is Cushing’s Awareness Day, several people got their heads together to create the Second Annual Cushing’s Awareness Blogging Challenge.

All you have to do is blog about something Cushing’s related for the 30 days of April.

Robin designed this year’s version of our “official logo” to put on your blogs.

Cushing's Awareness Challenge 2013

challenge-2013nb

If your blog wants you to upload an image from your desktop, right-click on the image above and choose “save-as”. Remember where you saved it to!

To link to the image with the yellow border, use this URL: http://www.cushings-help.com/images/challenge-2013b.jpg

To link to the image without a border, use this URL: http://www.cushings-help.com/images/challenge-2013nb.jpg

In all cases, the URL for the site is http://www.cushings-help.com

Please let me know the URL to your blog in the comments area of this post or and I will list it on CushieBloggers ( http://cushie-blogger.blogspot.com/ ) The more people who participate, the more the word will get out about Cushing’s.

Suggested topics – or add your own!
In what ways have Cushing’s made you a better person?
What have you learned about the medical community since you have become sick?
If you had one chance to speak to an endocrinologist association meeting, what would you tell them about Cushing’s patients?
What would you tell the friends and family of another Cushing’s patient in order to garner more emotional support for your friend?Challenges with Cushing’s? How have you overcome challenges? Stuff like that.
I have Cushing’s Disease….(personal synopsis)
How I found out I have Cushing’s
What is Cushing’s Disease/Syndrome? (Personal variation, i.e. adrenal or pituitary or ectopic, etc.)
My challenges with Cushing’s
Overcoming challenges with Cushing’s (could include any challenges)
If I could speak to an endocrinologist organization, I would tell them….
What would I tell others trying to be diagnosed? What would I tell families of those who are sick with Cushing’s?
Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cured.
What will happen if I’m not cured?
I write about my health because…
10 Things I Couldn’t Live Without.
My Dream Day.
What I learned the hard way
Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do you get the cure? Be sure to include a disclaimer)
Health Madlib Poem. Go to http://languageisavirus.com/cgi-bin/madlibs.pl and fill in the parts of speech and the site will generate a poem for you.
The Things We Forget. Visit http://thingsweforget.blogspot.com/ and make your own version of a short memo reminder. Where would you post it?
Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!
5 Challenges & 5 Small Victories.
The First Time I…
Make a word cloud or tree with a list of words that come to mind when you think about your blog, health, or interests. Use a thesaurus to make it branch more.
How much money have you spent on Cushing’s, or, How did Cushing’s impact your life financially?
Why do you think Cushing’s may not be as rare as doctors believe?
What is your theory about what causes Cushing’s?
How has Cushing’s altered the trajectory of your life? What would you have done? Who would you have been?
What three things has Cushing’s stolen from you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals? What new goals did Cushing’s bring to you?
How do you cope?
What do you do to improve your quality of life as you fight Cushing’s?
Your thoughts…?

A New Blogging Challenge

Blog

If any other Cushie bloggers are interested in this challenge, let me know and I’ll promote your blog on http://www.cushie-blogger.blogspot.com/

Attention bloggers! WEGO Health has found another writing challenge in honor of National Women’s Health Week, The Fitness & Health Bloggers Conference (the same one that one of our Health Activists will be attending!) is hosting a week long blogger challenge in honor of National Women’s Health Week. The theme for National Women’s Health Week is “It’s Your Time” National Women’s Health Week empowers women to make their health a top priority. It also encourages women to take the following steps to improve their physical and mental health and lower their risks of certain diseases.

The Countdown Begins…

Only 2 days (counting today) until the Cushing’s Awareness Challenge begins.  At night, when I’m supposed to be sleeping, ideas for posts keep swarming through my head.  Sometimes, they form into fully-written posts.  Then, when I wake up, the posts are gone.

I plan to follow the suggestions to some extent and have a few ideas of my own.  Over the years, I’ve posted lots on several blogs but I don’t know if I can get 30 days of Cushing’s stuff together!

At the moment, there are 23 participants in this challenge and growing.  Please follow their blogs.  The list is here and is constantly updated as new URLs come in.

If you want to join us, its not too late.  Directions and suggestions for posts can be found here: http://cushie-blogger.blogspot.com/2012/03/cushing-awareness-challenge.html

If you have ideas for what you’d like to read about (Cushing’s related, of course), please feel free to put it in the comments area.

 

 

 

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