During the first few days of September 2007, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surgery and never recovered.
Dr. Theodore Friedman (The Wiz) will be joined by Eddie Ramirez, MD and will discuss the 6 pillars of lifestyle medicine as applied to patients with Endocrine disorders
Jill wrote: 'In December 2004 my dad who had addison's for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were complete […]
I'm going to be having a total left knee replacement surgery in early February so I may not be around so much for a while. My surgeon knows I need extra steroids.
Ocular hypertension was more common in people with Cushing’s illness. The usage of steroids in the body is a major contributor to high intraocular pressure (IOP). Topical or systemic glucocorticoid use may increase the prevalence.
Dr. Theodore Friedman (The Wiz) will be joined by Eddie Ramirez, MD and will discuss the 6 pillars of lifestyle medicine as applied to patients with Endocrine disorders
Cliff notes: 4 mm microadenoma in my pituitary, 3 years testing because I am cyclical, ipss, pit sx Oct 13th 2021, remission for about 8 months then recurrence. No target on mris, all my tests back high. Now I am getting a bla. Met my surgeon yesterday…
Adding a corticotropin-releasing hormone (CRH) stimulation test immediately following a 2-day low-dose dexamethasone suppression test (LDDST) ― what's known as a Dex-CRH test and was first introduced in 1993 ― identified Cushing disease in 5 of 65 people (7.7%) with a confirmed diagnosis but who had previously shown normal cortisol levels on a conventio […]
Among 89 patients enrolled in this study (median age, 51 years), 21 showed clinical signs of Cushing syndrome (overt hypercortisolism) and 68 did not show clinical presentations (subclinical hypercortisolism).
Transsphenoidal surgery is the first-line treatment for Cushing’s disease (CD), even with negative preoperative magnetic resonance imaging (MRI) results. Some patients with persistent or recurring hypercortisolism have negative MRI findings after the initial surgery. We aimed to analyze the efficacy of repeat surgery in two groups of patients and determine i […]
Amber is from New Zealand. She was diagnosed with a pituitary tumor in 2020, and underwent surgery, several years after symptoms emerged, including rapid weight gain, muscle loss, brain fog, fatigue, depression and severe headaches.
Per the terms of the settlement, Corcept (CORT) has allowed Hikma (OTCPK:HKMPF) the rights to market a generic version of Korlym from Oct. 01, 2034, or earlier subject to certain conditions.
Patients with Cushing’s disease (CD) experienced transient central adrenal insufficiency (CAI) after successful surgery. However, the reported recovery time of hypothalamic-pituitary-adrenal (HPA) axis varied and the risk factors which could affect recovery time of HPA axis had not been extensively studied. This study aimed to analyze the duration of CAI and […]
Incredible. We've known about this for how long around here? Like 20 years? I discovered it independently by trial and error before even knowing what Cushing's was.
Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu. She was only 36. Millie developed a confirmed case of the H1N1 virus. She spent 29 days in the ICU of Millard Suburban Hospital before dying of complications of the flu, compounded by Behcet’s Disease and Cushings Disease.
Today I am thankful for my dog, Mimi. She’s a beautiful dog, sweet, loving and usually very mild-mannered, but she’ll bark her head off whenever she hears someone in the driveway.
Tonight, she barked at potential trick-or-treaters and we have lots of candy left over. 🙂
I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a long time.
It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore.
I used to get migraines quite often, a hormone thing probably. I spent lots of hours in a completely dark room, blocking out sound, trying to keep my head from pounding.
There was a long period of time that I had a migraine 6 days out of the week for several weeks. By accident, a friend asked me on a Monday if I had one that day and that started me thinking – why do I have them every day except Mondays? I figured out that it wasn’t a migraine at all but an allergy headache – I was allergic to the bath oil I was using Monday-Saturday. I gave that to my Mom and those headaches went away.
I still often get allergy headaches. Since my Cushing’s transsphenoidal pituitary surgery, I can’t smell things very well and I often don’t know if there’s a scent that is going to trigger an allergic reaction. In church and elsewhere, my Mom will be my “Royal Sniffer” and if someone is wearing perfume or something scented, she’ll let me know and we’ll move to a new location.
There’s a double whammy here – since my kidney cancer surgery my doctor won’t let me take NSAIDs, asperin, Tylenol, any of the meds that might help a headache go away. My only hope would be that coffee from Day Fourteen. And that’s definitely not usually enough to get rid of one of these monsters.
So, I am very thankful that, for the moment, I am headache/migraine free!
Today, and every day, I am thankful for coffee. Without it, I would have a daily headache and I’d have even less energy than I have now.
I first started drinking coffee when I had my first job as a waitress at a Hayes-Bickford in Boston, MA. This was a summer job. A bunch of my college friends had gotten an apartment near Fenway Park in Boston and most of us were waitresses in various places. Hayes-Bickford was marginally better than a dive.
I was fortunate that I was the youngest waitress at that Hayes-Bickford, so I got the best tips. This was a l-o-n-g time ago – I’d get out of work sometime after midnight, take the Boston subway alone to our apartment, with an apron full of my tips, mostly in jangly change. That could never happen any more! Even without the money, I still wouldn’t wander around the Boston Common area of Boston alone after midnight.
The food at HB wasn’t so great. Sometimes, a patron would order some type of meat and the chef would say we were out of it, to put gravy on whatever-we-had and tell the diner that it was what he had ordered. We were usually out of a lot of things.
But the coffee was good and I learned to drink it, lots of it, and black, something I still do today. If I could do the IV thing, I would!
I’ve had a long history with singing from the time I was a kid singing in the choir at my Dad’s church. In High School we had a great choir and it was the time before “political correctness” would have banned us from singing such wonderful classical music like Brahms’ German Requiem. In college, as a music major, there were choirs and when we finally got to our current home, I joined Sweet Adelines.
I was a member of Sweet Adelines for 10 years, before Cushing’s robbed me of that particular pleasure. SA takes lot of energy between rehearsals, performances, competitions, travelling. I just loved it but I couldn’t keep up.
For a few years, I belonged to a local woman’s group but even that got to be too much after a while. There wasn’t the travelling or the competitions but rehearsals and performances cut into that energy.
Last year, our choir director opened up the opportunity to sing for just the Christmas Cantata. No long term committment and only half the rehearsal time for about 10 weeks.
I hadn’t sung anywere outside my car for about 10 years but, with trepidation, I signed up. Because of my bell-ringing and work with children’s choirs, I knew most of the other choir members and that made it a LOT easier on shy-me.
Christmas came and singing with the choir and orchestra was just fantastic. There was the invitation to stay, to become a part of the choir for good but I had my Cushing’s Interviews on Thursday nights and I couldn’t see how I could work all this in.
Last spring the choir sang How Lovely Is Thy Dwelling Place from Brahms’ German Requiem and I was hooked. How could I not join?
So, I moved the interviews to Wednesday nights and Thursdays are free for choir rehearsals.