CushieBlog

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• ‼️ Message Board Upgrade (and new features!) Today
  It's going to look a little different but please let me know if anything is not working properly. 
• ⭐️ Top PIcks on the Message Boards updated August 29, 2020
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 🖤 In Memory: Jessica Lee Pierson, August 29, 2018
  Jessica Lee Pierson, 35, passed away Wednesday, August 29, 2018 from complications of Addison’s disease.
• 🖤 In Memory: Cassandra Dills-Dailey ~ August 29, 2017
  Casey Dailey, age 38, was fighting Cushing's disease, a pituitary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weekend, she began feeling sick. She vomited, sometimes with blood. Then, she couldn't stand or talk, relatives said. A high fever started Sunday, a […]
• 📰 Osilodrostat Associated With Sustained Reduction of UFC in Cushing’s Disease
  Osilodrostat treatment was found to be associated with a rapid and sustained reduction in mean concentration of urinary free cortisol (UFC) and improved clinical symptoms in patients with Cushing’s disease, according to the results of a prospective, multicenter, open-label, phase 3 study published in the Lancet Diabetes Endocrinology
• 📰 Treatment improved multiple cardiovascular risk and other factors in Cushing's disease patients
  Oral osilodrostat (Isturisa) normalized cortisol levels in Cushing's disease patients who were ineligible for or not cured with pituitary surgery, according to the phase III LINC 3 trial.
• 🏞 Two New Cushies added to the Cushing's MemberMap
  Sara M is from Ponderay, Idaho. She is not yet diagnosed with Cushing's but has these diagnoses: Fibromyalgia, hypoglycemia, Irritable bowel syndrome, obesity, high blood pressure. Ashley is from Findlay, Ohio
• ✍️ Sara M, Undiagnosed Bio
  Sara M is from Ponderay, Idaho. She is not yet diagnosed with Cushing's but has these diagnoses: Fibromyalgia, hypoglycemia, Irritable bowel syndrome, obesity, high blood pressure
• 📞 Webinar: Growth Hormone Deficiency, PCOS or Cushing’s: How do You Tell Them Apart?
  Dr. Friedman will discuss topics including: Signs and Symptoms of Cushing’s Syndrome Testing for Cushing’s Signs and Symptoms of Growth Hormone Deficiency Testing for Growth Hormone Deficiency Signs and Symptoms of PCOS Testing for PCOS How do you tell them apart?
• 👥 Memorial Sloan Kettering 2020 Update on the Treatment of Pituitary Tumors
  This course is intended for endocrinologists, neurosurgeons, otolaryngologists, radiation oncologists, neurologists, ophthalmologists, neuro-oncologists, family medicine and internal medicine physicians, physicians in training and other allied health professionals who treat and manage patients with pituitary diseases.  We also invite patients with pituitary […]
• 📞/ 👥 2020 Barrow Pituitary Center Patient Education Day
  The Barrow Pituitary Center is dedicated to educating patients, caregivers, and loved ones by providing information which is current and non-biased. Experts at this conference will address management of the emotional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about their […]
• 📰 Smart, Soft Contact Lens For Wireless Immunosensing of Cortisol
  Here, we describe a human pilot trial of a soft, smart contact lens for real-time detection of the cortisol concentration in tears using a smartphone.
• 📰 Pituitary Disease Management And Patient Care Recommendations During The Covid-19 Pandemic
  Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), the viral strain that has caused the coronavirus disease 2019 (COVID-19) pandemic, has presented healthcare systems around the world with an unprecedented challenge. In locations with significant rates of viral transmission, social distancing measures and enforced ‘lockdowns’ are the new ‘norm’ as […]
• 📰 Estrogen receptor α plays an important role in Cushing’s syndrome during pregnancy
  Cushing’s syndrome (CS) during pregnancy is very rare with a few cases reported in the literature. Of great interest, some cases of CS during pregnancy spontaneously resolve after delivery.
• 📽 Video: How an Emergency Injection works!
  What should you do if an Addison crisis threatens? How do you prepare an emergency injection and how do you administer it?
• 🖤 In Memory: Kalyn Allen, June 28, 2017
  Kalyn was only 41 when she died on June 28, 2017. She had recently had pituitary surgery.
• ❓Can You Help? Suffering
  Can someone please offer help, ive been suffering for a year and just got blood results today with a high cortisol reading. My doctor said that my contraceptive pill could have caused this, however, I am not on the regular pill but on the POP progesteron only pill. Is anyone aware of if this raises cortisol levels the same way the regular combined pill does? […]
• 📰 COVID-19: Cortisol Levels on Admission Can Help Predict Severity
  Patients with COVID-19 who have high levels of the steroid hormone cortisol on admission to hospital have a substantially increased risk of dying, UK researchers have discovered.
• 🖤 In Memory: Kate Myers, June 23, 2014
  Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
• 🖤 Family's Despair over Rare Disease
  Robin posted this article in April 2007. Mr. Goacher's Son returns after 13 years to tell more of this story.