Filed under: Cushing's Awareness Challenge 2012 |
Enjoying the Free Content?
Recent Comments
Cushing’s Help RSS Feed- ✍️ Comment added to Michelle M, Pituitary BioGood luck with your MRI.
- ✍️ Michelle M, Pituitary BioMichelle is from Columbia, MO. She was diagnosed with Cushing's in 2020 and had pituitary surgery. This year, it appeared that she had PCOS but it turned out to be a recurrence.
- 📰 Ketogenic Diet Initially Masks Symptoms of Hypercortisolism in Cushing’s DiseaseThis case report illustrated how a Low Carb diet was initially successful at ameliorating the patient’s associated symptoms of hypertension and obesity, making his diagnosis of Cushing's Disease go undetected.
- ✍️ MaryO: Adapted From 40 Days of ThankfulnessI am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now. Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do web design, how to navigate NIH. It taught me patience, how to make ph […]
- ⭐️ Top Picks on the Message Boards updated November 23, 2022Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
- 📰 Recurrent Neuroendocrine Tumor of the Cervix Presenting With Ectopic Cushing’s SyndromeEctopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to imp […]
- 🎂Happy birthday Dr. Friedman!Happy birthday Dr. Friedman! Thank you for all you do and for the incredible impact you are making in the world! Join us in wishing Dr. Friedman a joyous and healthy year ahead!
- ‼️ Message Board Upgrade (and new features!) TodayVersion 4.7.4 of Invision Community is now available This is our November maintenance release. Key changes include: New Feature: Moderating with Personal Alerts New Feature: Moderator approval queue now includes a reason why Updated: Events update includes additional streaming platforms Invision Community now requires a minimum of PHP 8.0 Also included: 4.7. […]
- ✍️ Comment added to MaryO, 35th Pituitary Surgery AnniversaryHi thannks for posting this
- ✍️ More Comments added to MaryO, 35th Pituitary Surgery AnniversaryMore from Facebook, 2022 - Janice said "I’m so happy that you documented your life. And am grateful you gave up so Much of your life to raise awareness for our disease....If it weren’t for the support that you have provided all of us over the years life would be so Much more difficult. Thanks for everything you’ve done and continue to do" Marie sai […]
- 📰 Levoketoconazole Treatment in Endogenous Cushing’s SyndromeThis extended evaluation (EE) of the SONICS study assessed effects of levoketoconazole for an additional 6 months following open-label, 6-month maintenance treatment in endogenous Cushing’s syndrome.
- ✍️ Comment added to MaryO, 35th Pituitary Surgery AnniversaryFrom Facebook, 2022: Gina said Grateful for you MaryO!!! You're not gonna know till you get to heaven how many people you helped thru your tireless advocacy!
- 🖤 In Memory: Erin Lee Rechel PughErin was from Canton, Ohio and several other Cushies met her at local meetings. She was 35 when she died.
- 🖤 In Memory of Stacy Ollenberger ~ November 4, 2015Stacy had two pituitary surgeries, radiation and an adrenalectomy. She died of an adrenal crisis on November 4, 2015.
- 📰 Development of Human Pituitary Neuroendocrine Tumor Organoids to Facilitate Effective Targeted Treatments of Cushing’s DiseaseCushing’s disease (CD) is a serious endocrine disorder caused by an adrenocorticotropic hormone (ACTH)-secreting pituitary neuroendocrine tumor (PitNET) that stimulates the adrenal glands to overproduce cortisol. Chronic exposure to excess cortisol has detrimental effects on health, including increased stroke rates, diabetes, obesity, cognitive impairment, a […]
- ℹ️ Cushing's Basics: Family Information / KateDear friends and family: I am writing this letter to share with you some basic facts about Cushing’s Disease/Syndrome and the recovery process so that you will have sufficient information to form realistic expectations about me and my ability to engage in certain activities in light of this disease and its aftermath. As you know, Cushing’s is a rarely diagno […]
- ✍️ MaryO, 35th Pituitary Surgery AnniversaryToday is the anniversary of MaryO's pituitary surgery at NIH in 1987. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
- ✍️ Jason T, Pituitary BioJason is from England. Pituitary tumour found in 2020(posterior lobe),now test after test and 2nd MRI still shows microadenoma. He also had two traumatic brain injuries.
- 📰 Evaluation of Ketoconazole As a Treatment for Cushing’s Disease in a Retrospective CohortThe first-line treatment for Cushing’s disease is transsphenoidal surgery, after which the rates of remission are 60 to 80%, with long-term recurrence of 20 to 30%, even in those with real initial remission. Drug therapies are indicated for patients without initial remission or with surgical contraindications or recurrence, and ketoconazole is one of the mai […]
- ✍️ Comment added to Niamh (niamhiblog), Adrenal BioI have a tumour on my right adrenal gland and diagnosed with Cushings 3 years ago . Covid got in the way of surgery initially so now I wait and I wait. I try to keep going but I really just want to stay in bed as I’ve little energy, poor concentration and less interest…
- ✍️ Comment added to Michelle M, Pituitary Bio
CushieBlog 
Well, I have to participate in the 30-day challenge and post about my Cushing's experience. I would like to just use this website as my blog site, but I'm not sure if that's how this works. April is the one-year anniversary of my pituitary macroadenoma removal. Last Friday, was my annual MRI check-up for the pituitary tumor. Since I also have an adrenal tumor, Monday is a CT scan to check the status of that one. The adrenal tumor was thought to be non-hormone secreting and non-cancerous, so it's been left alone to the "wait and watch" part of monitoring my condition. I have an appointment with my neurosurgeon next week and one with the infusion clinic. This is to do a thorough check to determine which, if any, hormone has began working again since the surgery. To be honest, I have mixed feelings. Part of me things that maybe the Cushing's is back, because I have similar symptoms. Another part kind of wishes it wasn't back and that the symptoms are just the new "me". Not knowing who you really are after being told you had a tumor in your head for 15+ years which caused you to do crazy things and then finally feeling like perhaps you are figuring it out — but then realizing that you just may have the tumor back and it's back to Cushings!!!! Life is a roller coaster ride and even though I know that I am much better than I was a year ago, I still do not know who I am and if I am dying.
Daisy, the basic way this works is for you to have your own blog somewhere. <a href="http://www.blogger.com” target=”_blank”>www.blogger.com , <a href="http://www.posterous.com” target=”_blank”>www.posterous.com and <a href="http://www.wordpress.com” target=”_blank”>www.wordpress.com are easy ways to get your own blog and get started.
However, if you don't want to do that or can't for whatever reason, you could respond to my post each day. Let me know how you want to proceed.
Sounds like you're going through a lot post-pituitary. Unfortunately, many Cushies have recurrences and end up having their adrenal glands removed post-pit. Are you a member of the message boards at http://cushings.invisionzone.com/ ? There are lots of people who understand there.
Let me know about the blogging challenge. If you want to get your own blog or just respond here.
Best if luck to you!