Filed under: Cushing's Awareness Challenge 2012 |
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Cushing’s Help RSS Feed- 📰 Adrenal myelolipoma(s) as presenting manifestation of subclinical Cushing’s disease (eutopic ACTH-dependent Cushing’s syndrome)In this article, hormonal evaluation in a middle-aged woman with diabetes, hypertension and incidentally discovered unilateral adrenal myelolipoma revealed underlying subclinical Cushing’s disease.
- 📰 Growth Hormone: Drug companies are growing less generous in helping patients pay for medsWright suffered a head injury 17 years ago that damaged his pituitary gland. In 2003, he was diagnosed as having an abnormally low level of growth hormone, which caused him to suddenly become overwhelmed with fatigue. That’s a potentially life-threatening condition if an episode should occur while driving, walking down stairs or performing some other physica […]
- 🏞New Cushie added to the MemberMapCushing's syndrome left Adrenal Add your own info (or your doctor's) to the Cushie MemberMap
- ✍️ Comment added to Jody (jodiann), Adrenal Bio...One thing for sure is that having an adrenalectomy might seem to you of a magical cure but it is Not, I wonder where the old me went to , I have no energy, no drive and my joints hurt badly and yet they claimed I am cured I think that half of the battle with this unusual disease is the aftermath of treatment...
- ✍️ Comment added to Megan (Gaff228), Adrenal Bio...I jut got my adrenal gland removed 9 days ago and wondering what to expect.
- ✍️ Comment added to Crystal (Crystal), Pituitary Bio...I jut had adrenal surgery last week. Would love to compare and share experiences post op
- ✍️ Add or update Your BioPlease add your bio. Your information will help others. If anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio?
- ✍️ Comment added to Liz L, Pituitary BioMy son. Joseph 30 from McAllen TX has had cushings for about 5 Years. After MD Anderson Cancer treatment and Methodist Hosp in Houston both botched diagnosing and treating him because the surgeons...
- 📰 The burden of Cushing's disease: clinical and health-related quality of life aspectsThese findings highlight the significant burden associated with CD. As current treatment options may not fully reverse the burden of chronic hypercortisolism, there is a need for both improved diagnostic tools to reduce the time to diagnosis and effective therapy, particularly a targeted medical therapy.
- 🏞New Cushie added to the MemberMapAdd your own info (or your doctor's) to the Cushie MemberMap
- 🖊 Vicky (Vicjy), Adrenal BioVicky is from Florida. She thinks her symptoms started about 3 years ago. Vicky recently had adrenal surgery for a left adrenal adenoma.
- ✍️ Comment added to Toni (Toni), Adrenal Bio...I have a question about your intense itching. I too have itching, specifically in one area. No one could figure out why. Once they figured out I had cushings j asked if the itching could be from that. Doctors have told me it's not really a symptom of the syndrome...
- 📺 NIH: Discovery Channel’s Documentary Series ‘First In Human’First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer’s Project and The Weight of the Nation.
- ✍️ Comment added to Toni (Toni), Adrenal Bio...I was scared on how long it would take me to be normal after surgery. Tomorrow will make a week. I am weak but Less than I thought. I do see that I get anxious quickly and get hot flashes when I try to focus on something. ...
- 📰 An unusual case of Cushing's syndrome due to bihormonal ACTH–prolactin secreting pituitary macroadenoma with rapid response to cabergolineA 23-year-old man presenting with florid Cushing's syndrome was found to have high plasma ACTH and very high serum prolactin. Pituitary MRI showed a large invasive macroadenoma.
- ✍️ Comment added to Nicole, Undiagnosed BioMy story is so similar to yours (though I'm not a dancer). All of the same symptoms but I haven't convinced a doctor to even give me an MRI. I'm on my 3rd endocrinologist and he will be testing me for Hashimotos (I have been suspecting Cushings for over a year. ...
- ✍️ Comment added to Dawn M (Lind8588), Steroid Induced BioI go through phases wondering if it’s cushing syndrome I have , or some form of it, but since I have been taking amphetamines and stronger for so long I don’t really feel like I deserve to be diagnosed...
- ✍️ Comment added to Rachel, Undiagnosed Bio...I’ve been lost with this for so long, I’ve had so many frustrated cries, I’ve tried diet after diet, every doctor blaming my symptoms on my weight and telling me I need to lose weight but I just can’t.
- 😃 New Testimonial from Mike PThanks for being there for many of us. Including Me. ALWAYS a Positive inspiration...
- 🖤 My Daughter Lisa Marie Bates Died Needlessly Of Addison's DiseaseThe problem with Addison's disease is that only 1 out of 100,000 people get this. Lisa's symptoms were classic, vitilago which are white spots, darkened pigment, and flu like symptoms. Even in this day and age doctors can miss a case of Addison's.
- 📰 Adrenal myelolipoma(s) as presenting manifestation of subclinical Cushing’s disease (eutopic ACTH-dependent Cushing’s syndrome)
Well, I have to participate in the 30-day challenge and post about my Cushing's experience. I would like to just use this website as my blog site, but I'm not sure if that's how this works. April is the one-year anniversary of my pituitary macroadenoma removal. Last Friday, was my annual MRI check-up for the pituitary tumor. Since I also have an adrenal tumor, Monday is a CT scan to check the status of that one. The adrenal tumor was thought to be non-hormone secreting and non-cancerous, so it's been left alone to the "wait and watch" part of monitoring my condition. I have an appointment with my neurosurgeon next week and one with the infusion clinic. This is to do a thorough check to determine which, if any, hormone has began working again since the surgery. To be honest, I have mixed feelings. Part of me things that maybe the Cushing's is back, because I have similar symptoms. Another part kind of wishes it wasn't back and that the symptoms are just the new "me". Not knowing who you really are after being told you had a tumor in your head for 15+ years which caused you to do crazy things and then finally feeling like perhaps you are figuring it out — but then realizing that you just may have the tumor back and it's back to Cushings!!!! Life is a roller coaster ride and even though I know that I am much better than I was a year ago, I still do not know who I am and if I am dying.
Daisy, the basic way this works is for you to have your own blog somewhere. <a href="http://www.blogger.com” target=”_blank”>www.blogger.com , <a href="http://www.posterous.com” target=”_blank”>www.posterous.com and <a href="http://www.wordpress.com” target=”_blank”>www.wordpress.com are easy ways to get your own blog and get started.
However, if you don't want to do that or can't for whatever reason, you could respond to my post each day. Let me know how you want to proceed.
Sounds like you're going through a lot post-pituitary. Unfortunately, many Cushies have recurrences and end up having their adrenal glands removed post-pit. Are you a member of the message boards at http://cushings.invisionzone.com/ ? There are lots of people who understand there.
Let me know about the blogging challenge. If you want to get your own blog or just respond here.
Best if luck to you!