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Cushing’s Help RSS Feed- ⭐️ Top PIcks on the Message Boards updated July 31, 2021Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
- 📰 Cushing’s Disease Presenting with PsychosisWe present a young woman with 3 weeks of headaches and cognitive disturbance who subsequently developed florid psychosis requiring multiple admissions under neurology and psychiatry.
- ❣️Happy 21st Birthday Cushing’s Help! ❣️It’s unbelievable but the idea for Cushing’s Help and Support arrived 21 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.
- ⚠️ Covid info from Dr. Theodore Friedman (Dr. F)Statistics are that people who are vaccinated have a 1:1,000,000 chance of dying from COVID, while people who are unvaccinated have a 1:500 chance of dying from COVID. I think most people would take the 1:1,000,000 risk. Dr. Friedman has always been a proponent of the COVID-19 vaccine because he is a scientist and bases his decisions on peer-reviewed liter […]
- ✍️ Why Did I Stop Sleeping?An article on pituitary Cushing's from Prevention magazine.
- 📰 Patient and Provider Perspectives on Postsurgical Recovery of Cushing SyndromePoor communication between physicians and CS patients may contribute to dissatisfaction with the postsurgical experience. Increased information on recovery, including helpful coping mechanisms, and improved provider-physician communication may improve HRQOL during recovery.
- 🖤 In Memory: Kassey Whiterock, June 30, 2016Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.
- 🖤 In Memory: Kalyn Allen, June 28, 2017Kalyn was only 41 when she died on June 28, 2017. She had recently had pituitary surgery.
- 🖤 In Memory: Kate Myers, June 23, 2014Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
- 📰 Bradley Javorsky, MD, on a New Cortisol Cutoff for Adrenal Insufficiency DiagnosisWith the goal of reducing false positives for adrenal insufficiency (AI), scientists are recommending a new, more precise diagnostic cutoff of 14-15 μg/dL of serum cortisol, rather than the current 18 μg/dL.
- ❓Can You Help? Connecticut DoctorI am trying to find a doctor for my mom. She is located in Monroe, CT. Would prefer someone in Fairfield or New Haven county, but I am willing to drive further if necessary.
- 🖤 In Memory of Diana Crosley ~ June 18, 2014Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. She was a long-time Cushie who'd had a BLA at the NIH in 2002
- 📰 Hydrocortisone AutoinjectorThe ZENEO autoinjector is a revolutionary delivery system, and this product is a terrific strategic fit with our current adrenal insufficiency business. Patients, advocacy groups, and physicians in the adrenal insufficiency community have repeatedly expressed to us the need for a hydrocortisone autoinjector, so we are excited to be partnering with Crossject […]
- 💻 Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our […]
- 🖤 In Memory of Sarah Fraik ~ June 13, 2011Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
- ✍️ Comment added to Amy (Amybtru), Pituitary/Adrenal BioI have been ill for years & years. Was diagnosed Cushing’s Syndrome in 2010 but now I know what I’m looking for I can honestly say I’ve had bouts of it since childhood.
- ✍️ Amy (Amybtru), Pituitary/Adrenal BioAmy is from Michigan. She has a great many symptoms, a pituitary microadenoma, an 8 1/2 mm nodule on the adrenal gland and her left kidney has a some type of cyst on the superior pole.
- ❓Can You Help? California DoctorI’m looking for good doctor in Orange County California. Southern California.
- ❓ Can You Help? Adult DaughterHi, It's important to respect mother/adult child boundaries, and I am careful about how I interact with my beautiful daughter so that she does not think I am criticizing her, but I'm very worried. She is presenting what is listed as classic Cushing's symptoms. We have a family history of pituitary problems.
- ❓ Can You Help? Testing SoonI am very interested in learning everything about Cushings. I hope to be tested soon.
- ⭐️ Top PIcks on the Message Boards updated July 31, 2021
Well, I have to participate in the 30-day challenge and post about my Cushing's experience. I would like to just use this website as my blog site, but I'm not sure if that's how this works. April is the one-year anniversary of my pituitary macroadenoma removal. Last Friday, was my annual MRI check-up for the pituitary tumor. Since I also have an adrenal tumor, Monday is a CT scan to check the status of that one. The adrenal tumor was thought to be non-hormone secreting and non-cancerous, so it's been left alone to the "wait and watch" part of monitoring my condition. I have an appointment with my neurosurgeon next week and one with the infusion clinic. This is to do a thorough check to determine which, if any, hormone has began working again since the surgery. To be honest, I have mixed feelings. Part of me things that maybe the Cushing's is back, because I have similar symptoms. Another part kind of wishes it wasn't back and that the symptoms are just the new "me". Not knowing who you really are after being told you had a tumor in your head for 15+ years which caused you to do crazy things and then finally feeling like perhaps you are figuring it out — but then realizing that you just may have the tumor back and it's back to Cushings!!!! Life is a roller coaster ride and even though I know that I am much better than I was a year ago, I still do not know who I am and if I am dying.
Daisy, the basic way this works is for you to have your own blog somewhere. <a href="http://www.blogger.com” target=”_blank”>www.blogger.com , <a href="http://www.posterous.com” target=”_blank”>www.posterous.com and <a href="http://www.wordpress.com” target=”_blank”>www.wordpress.com are easy ways to get your own blog and get started.
However, if you don't want to do that or can't for whatever reason, you could respond to my post each day. Let me know how you want to proceed.
Sounds like you're going through a lot post-pituitary. Unfortunately, many Cushies have recurrences and end up having their adrenal glands removed post-pit. Are you a member of the message boards at http://cushings.invisionzone.com/ ? There are lots of people who understand there.
Let me know about the blogging challenge. If you want to get your own blog or just respond here.
Best if luck to you!