2 Responses

  1. Well, I have to participate in the 30-day challenge and post about my Cushing's experience. I would like to just use this website as my blog site, but I'm not sure if that's how this works. April is the one-year anniversary of my pituitary macroadenoma removal. Last Friday, was my annual MRI check-up for the pituitary tumor. Since I also have an adrenal tumor, Monday is a CT scan to check the status of that one. The adrenal tumor was thought to be non-hormone secreting and non-cancerous, so it's been left alone to the "wait and watch" part of monitoring my condition. I have an appointment with my neurosurgeon next week and one with the infusion clinic. This is to do a thorough check to determine which, if any, hormone has began working again since the surgery. To be honest, I have mixed feelings. Part of me things that maybe the Cushing's is back, because I have similar symptoms. Another part kind of wishes it wasn't back and that the symptoms are just the new "me". Not knowing who you really are after being told you had a tumor in your head for 15+ years which caused you to do crazy things and then finally feeling like perhaps you are figuring it out — but then realizing that you just may have the tumor back and it's back to Cushings!!!! Life is a roller coaster ride and even though I know that I am much better than I was a year ago, I still do not know who I am and if I am dying.

    • Daisy, the basic way this works is for you to have your own blog somewhere. <a href="http://www.blogger.com” target=”_blank”>www.blogger.com , <a href="http://www.posterous.com” target=”_blank”>www.posterous.com and <a href="http://www.wordpress.com” target=”_blank”>www.wordpress.com are easy ways to get your own blog and get started.

      However, if you don't want to do that or can't for whatever reason, you could respond to my post each day. Let me know how you want to proceed.

      Sounds like you're going through a lot post-pituitary. Unfortunately, many Cushies have recurrences and end up having their adrenal glands removed post-pit. Are you a member of the message boards at http://cushings.invisionzone.com/ ? There are lots of people who understand there.

      Let me know about the blogging challenge. If you want to get your own blog or just respond here.

      Best if luck to you!

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