Filed under: Cushing's Awareness Challenge 2012 |
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Cushing’s Help RSS Feed- ❣️We're 19 Years Old Today❣️It’s unbelievable but the idea for Cushing's Help and Support arrived 19 years ago last night. That’s a long time for anything online..... The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life! […]
- ⭐️ Top PIcks updated July21, 2019Top content from across the community, hand-picked by MaryO and the Cushing's community,
- ✍️ Kim H, Ectopic BioKim H is from Grays, UK. She has ectopic Cushing's but nearly 16 years later the ectopic source has never been found despite many more tests. It is still there because it still produces ACTH. Update May 2007: The ectopic source was in Kim's appendix. After testing, it was found to be a carcinoid tumour.
- 📰 Researchers Report Rare Case of Cushing’s Caused by Bilateral Adrenal TumorsCases of adrenocorticotropic hormone (ACTH)-independent Cushing’s syndrome are often caused by unilateral tumors in the adrenal glands, but Indian researchers have now reported a rare case where the condition was caused by tumors in both adrenal glands.
- ✍️ Comment on Why It's Safer Than Ever To Remove Pituitary TumorsI had Cushings disease and was fortunate to have my transphenoidal surgery with Dr Edward Laws as my surgeon and Dr Laurence Katznelson as my endocrinologist At Stanford University Med center. It’s a horrible disfiguring disease. I’m so grateful it’s getting more press coverage and that more doctors are becoming aware of it. I suffered over10 years with no d […]
- 🎬 Video: Taylor Davis spreads awareness about Cushing's Disease21-year-old Taylor Davis, spent nearly three years battling a mysterious illness called Cushing’s Disease. “I could barely walk to class anymore. I was in pain. I gained like 70 pounds, despite extreme dieting and exercising,” said Davis.
- 📰 Adrenal incidentalomas—do they need follow up?Are adrenal incidentalomas, which are found by chance on imaging, really harmless? In this paper, the authors looked at 32 studies, including 4121 patients with benign non-functioning adrenal tumours (NFATs) or adenomas that cause mild autonomous cortisol excess (MACE).
- 📰 Why It's Safer Than Ever To Remove Pituitary TumorsPituitary tumors are unusually common. Fifteen percent of adults have one. Most do not cause symptoms or require treatment. If you have one that does, your treatment may involve medication, radiation, and surgery. Removing a pituitary tumor by surgery can be tricky. The gland is surrounded by carotid arteries, optic nerves, and lots of important brain matter […]
- 🎬 Video: Pituitary tumors: Mayo Clinic RadioThis interview originally aired July 6, 2019. Dr. William Young Jr., a Mayo Clinic endocrinologist, discussed pituitary gland tumors.
- 😃 New Testimonial From LiliI just know I am grateful to you and this site.
- ✍️ Lili, Pituitary Post-Op UpdateLili is from Florida. She updated her bio after her pituitary surgery.
- 📰 Post-traumatic Stress Symptoms Common in Cushing’s Patients Before SurgeryPatients with Cushing’s disease may develop post-traumatic stress symptoms, which are generally resolved once they undergo surgery to remove the tumor, but can persist in some cases, a study shows. The study, “Posttraumatic stress symptoms (PTSS) in patients with Cushing’s disease before and after surgery: A prospective study,” was published in the Journal o […]
- 🖤 In Memory: Kassey Whiterock, June 30, 2016Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.
- 📰 Temozolomide Effective Against Cushing’s Caused by Aggressive TumorsRemoval of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment option for pediatric patients, despite its inherent technical difficulties, a new study shows.
- 💉 New Helpful Doctor added to TexasSasan Mirfakhraee, specializing in Cushings Disease/Syndrome, type 1 and type 2 diabetes mellitus, as well as thyroid, pituitary, and bone remodeling disorders.
- ✍️ Meghan T, Pituitary BioMeghan is from Arlington, Texas. At age 21 (2015) she was diagnosed with Cushings Disease. After a failed pituitary surgery, she had a BLA.
- ‼️ Message Board Upgrade Coming This WeekendPlease let me know if anything is not working properly.
- 🏞 New Cushie added to the Cushing's MemberMapKaren is from Winnipeg. She is not yet diagnosed with Cushing's.
- 🖤 In Memory: Kalyn Allen, June 28, 2017Kalyn was only 41 when she died on June 28, 2017. She had recently had pituitary surgery.
- ✔️ New on the Message BoardsWhen you sign up/sign in, you'll see even more items!. Some areas are open to guests for reading and posting. Enjoy!
- ❣️We're 19 Years Old Today❣️
Well, I have to participate in the 30-day challenge and post about my Cushing's experience. I would like to just use this website as my blog site, but I'm not sure if that's how this works. April is the one-year anniversary of my pituitary macroadenoma removal. Last Friday, was my annual MRI check-up for the pituitary tumor. Since I also have an adrenal tumor, Monday is a CT scan to check the status of that one. The adrenal tumor was thought to be non-hormone secreting and non-cancerous, so it's been left alone to the "wait and watch" part of monitoring my condition. I have an appointment with my neurosurgeon next week and one with the infusion clinic. This is to do a thorough check to determine which, if any, hormone has began working again since the surgery. To be honest, I have mixed feelings. Part of me things that maybe the Cushing's is back, because I have similar symptoms. Another part kind of wishes it wasn't back and that the symptoms are just the new "me". Not knowing who you really are after being told you had a tumor in your head for 15+ years which caused you to do crazy things and then finally feeling like perhaps you are figuring it out — but then realizing that you just may have the tumor back and it's back to Cushings!!!! Life is a roller coaster ride and even though I know that I am much better than I was a year ago, I still do not know who I am and if I am dying.
Daisy, the basic way this works is for you to have your own blog somewhere. <a href="http://www.blogger.com” target=”_blank”>www.blogger.com , <a href="http://www.posterous.com” target=”_blank”>www.posterous.com and <a href="http://www.wordpress.com” target=”_blank”>www.wordpress.com are easy ways to get your own blog and get started.
However, if you don't want to do that or can't for whatever reason, you could respond to my post each day. Let me know how you want to proceed.
Sounds like you're going through a lot post-pituitary. Unfortunately, many Cushies have recurrences and end up having their adrenal glands removed post-pit. Are you a member of the message boards at http://cushings.invisionzone.com/ ? There are lots of people who understand there.
Let me know about the blogging challenge. If you want to get your own blog or just respond here.
Best if luck to you!