CushieBlog

Cushing’s Help RSS Feed

• ❓Comment added to Guest Question: Can you have Cushing's with Normal Cortisol Levels?
  One of the other Cushies I know.said:  "I was dx with dex suppression test. Normal levels in AM, normal 24 hr urine."
• ❓Guest Question: Can you have Cushing's with Normal Cortisol Levels?
  Has anyone had normal cortisol levels come back and still had cushing’s Disease? 
• 📰 Metyrapone Reduced Urinary-Free Cortisol Levels in Cushing Syndrome
  This observational, longitudinal study evaluated the effects of the 11β -hydroxylase inhibitor metyrapone on adult patients with Cushing syndrome. Urinary-free cortisol and late-night salivary cortisol levels were evaluated in 31 patients who were already treated with metyrapone to monitor cortisol normalization and rhythm.
• ✍️ Steve, Ectopic Bio
  Steve was went undiagnosed for 12 years. After a pituitary surgery, he turned out to have Ectopic cushings in right lung
• 📰 Night Cortisol Levels for Diagnosing Cushing’s Syndrome Less Accurate in Clinical Practice
  In healthy individuals, the levels of cortisol — a steroid hormone secreted by the adrenal glands — go through changes over a 24-hour period, with the lowest levels normally detected at night. But this circadian rhythm is disrupted in certain diseases such as Cushing’s syndrome, where night cortisol levels can be used as a diagnostic tool. Among the tests th […]
• ✍️ Comment added to Alexis (Alexis), Undiagnosed Bio
  Alexis, can you tell me if your workup has revealed any answers? Someone I love is experiencing the same symptoms. With weight gain, rounded face, resting HR high, heat intolerance, nausea, vomiting, fainting..
• ✍️ Comment added to Stacy B, Pituitary/Adrenal Bio
  I have very complex issues also with the pcos and all how it basically attached to new system. It’s very very hard to treat for the many unknowns. I have found odd dr whom thinks outside box typically works best. ....
• ✍️ Danielle G, Pituitary Bio
  Danielle had suddenly gained more than 20kg, found herself losing hair, constantly breaking bones and struggling to sleep. Making matters worse, the young mother became severely depressed and noticed an unusual-looking ‘hump’ on her back.
• 📰 Transsphenoidal Surgery Is Safe and Effective Treatment for Cushing’s Disease
  Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment. Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%, depending on the location and type of tumor, the neurosurgeon’s expertise, follow-up period, and the definition of remission. Today, TSS consists of […]
• 📰 Health Alert: Adrenal Crisis Causes Death in Some People Who Were Treated with hGH
  Treatment with hGH does not cause adrenal crisis, but because a number of people lacking growth hormone also lack ACTH, adrenal crisis has occurred in some people who were treated with hGH. In earlier updates we have talked about how adrenal crisis can be prevented, but people continue to die from adrenal crisis, which is brought on by lack of cortisol. Thes […]
• ❣️Many Thanks!❣️
  Many thanks to everyone who is making a difference and helping Cushing's Help stay afloat for another year!
• 😃 New Testimonial From Melanie C
  I remember my first guest post in 2007, was overjoyed to find I wasn't the only medical anomaly lol! Congratulations to Cushing's Help for coming of age! 😁
• 😃 New Testimonial From Christina P
  I found it 11 years ago quite by accident and it not only changed my life but saved my life! Thank you, Mary Kelly O'Connor! 🥂 make mine a Dr. Pepper 😁
• ❣️We're 18 Years Old Today❣️
  It’s unbelievable but the idea for Cushing's Help and Support arrived 18 years ago last night. That’s a long time for anything online..... The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life! […]
• 📰 Medical therapy ‘reasonable option’ vs. surgery in Cushing’s disease
  “Medical treatment is a reasonable treatment option for Cushing’s disease patients in case of a contraindication for surgery, a recurrence, or in patients choosing not to have surgery,” Broersen told Endocrine Today. “In case of side effects or no treatment effect, an alternate medical therapy or combination therapy can be considered.”
• 📞 Theodore Friedman Webinar on Nuances of Diagnosing and Treating Hypothyroidism ~ July 29
  Review Cushing’s disease treatment guidelines Evaluate currently available medical therapies for Cushing’s disease Discuss new therapies in clinical trials
• 💊 Top Doctors Receiving Payments From Corcept, makers of Korlym
  Updated: Is Your Doctor Being Paid to Prescribe Korlym? Top Doctors and Hospitals Receiving Payments From Corcept, makers of Korlym
• ‼️Message Board Upgrade Today
  Please let me know if anything is not working properly. I already removed one item from the sidebar and will try to fix that soon
• 📰 Cushing's Syndrome Eludes Treatment Paradigm or Standard Approach to Care
  Results of two systematic reviews indicate that while surgery is the preferred treatment, many patients present with contraindications without an accepted management paradigm leaving clinicians to follow a patient-centric approach to care.
• 🖤In Memory: Kassey Whiterock, June 30, 2016
  Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.