CushieBlog

Cushing’s Help RSS Feed

• 🏞 One New Cushie added to the Cushing's MemberMap
  Tanya is from Western Australia. She is testing now for Cushing's and has been diagnosed with other health issues including diverticular disease, hypothyroidism, Hashimoto's autoimmune thyroiditis (including multi-nodular gland), secondary hyperparathyroidism, non alcoholic fatty liver, high cholesterol, major depressive disorder and social anxiety […]
• ✍️ Tanya (Tanylou), Testing for Cushing's
  Tanya is from Western Australia. She is testing now for Cushing's and has been diagnosed with other health issues including diverticular disease, hypothyroidism, Hashimoto's autoimmune thyroiditis (including multi-nodular gland), secondary hyperparathyroidism, non alcoholic fatty liver, high cholesterol, major depressive disorder and social anxiety […]
• 🦓 Day 18, Cushing’s Awareness Challenge 2021
  After I was finished with the Cushing’s long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
• 🖤 In Memory of Diane, April 2008
  I am not sure of the exact date but this was originally posted April 18, 2008... My name is Amy and my very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue.
• 🦓 Day 17, Cushing’s Awareness Challenge 2021
  I asked doctors for several years – PCP, gynecologist, neurologist, podiatrist – all said the now-famous refrain. “It’s too rare. You couldn’t have Cushing’s.” I kept persisting in my reading, making copies of library texts even when I didn’t understand them, keeping notes. I just knew that someone, somewhere would “discover” that I had Cushing’s. […]
• ❓ Can You Help? Many Symptoms
  So i think I maybe have Cushings. For 3 years now I have been feeling tired, with muscle and joint pain, fatigue.also diabetes insipidus ( I think, excessive thirst and urination) and excessive brusing on legs. My period stoped for a year or so after the pill. That's when I started looking for a couse. My doctor gave me metformin for my period wich help […]
• 🦓 Day 16, Cushing’s Awareness Challenge 2021
  I used to carry a print out of this everywhere I go because I find it very soothing. This print out was in a plastic page saver. On the other side there is a Psalm 116, part of the post from Day Nineteen of the 2015 Cushing’s Challenge. These days, both these readings are available on my phone.
• 🦓 Day 15, Cushing’s Awareness Challenge 2021
  Today’s Cushing’s Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing’s. I think it is, either directly or indirectly.
• ⭐️ Top PIcks on the Message Boards updated April 15, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 🖤 Cushing Death Rate 'Unacceptable,' Triple That of General Population
  Excess mortality among people with endogenous Cushing syndrome (CS) has declined in the past 20 years yet remains three times higher than in the general population, new research finds. Among more than 90,000 individuals with endogenous CS, the overall proportion of mortality ― defined as the ratio of the number of deaths from CS divided by the total number o […]
• 🦓 Day 14, Cushing’s Awareness Challenge 2021
  Way back when we first got married, my husband thought we might have a big family with a lot of kids. He was from a family of 6 siblings, so that’s what he was accustomed to. I am an only child so I wasn’t sure about having so many. I needn’t have worried...
• 🎤 Archived Interview with Jayne, Ectopic Cushing’s Patient
  Mary O’Connor (MaryO) hosted an interview with Jayne, a Cushing’s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing’s.
• 📞 Webinar: Updates on Treating Hypothyroidism
  On Sunday, April 25 Dr. Theodore Friedman will host a webinar on Hypothyroidism and treatment options.
• 🦓 Day 13, Cushing’s Awareness Challenge 2021
  Cushing’s Conventions have always been special times for me – we learn a lot, get to meet other Cushies, even get referrals to endos! As early as 2001 (or before) my pituitary function was dropping. My former endo tested annually but did nothing to help me with the symptoms.
• 🦓 Day 12, Cushing’s Awareness Challenge 2021
  As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing’s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a […]
• 🎤 Archived Interview: Cushing’s Diagnosis and Symptoms, part 2
  Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.
• 🦓 Day 11, Cushing’s Awareness Challenge 2021
  Blue and Yellow – we have those colors on ribbons, websites, T-shirts, Cushing’s Awareness Challenge logos and even cars.
• ✍️ Shea S (Shea), Undiagnosed Bio
  Shea is from Grass Valley, CA. She is a a 54-year-old woman who over the past two years has developed a buffalo hump and gained 60 pounds.
• 🦓 Kind Words for Cushing’s Awareness Month
  Through the newly available dial-up internet, I joined forces with a small group of wonderful Cushing’s advocates. Cathy Gifford and Mary O’Connor, were my first Cushing’s friends, and are still dear friends twenty one years later. Together we got things moving. Mary, has built the largest Cushing’s support boards, and her admirable dedication continues to h […]
• 🦓 Day 10: Cushing’s Awareness Challenge 2021
  This one is so easy. I’ve said it a thousand times – you know your own body better than any doctor will. Most doctors have never seen a Cushing’s patient, few ever will in the future. If you believe you have Cushing’s (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take […]