CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Cushie Memories
  It makes me sad just thinking about that conference. Since that time, three of my close Cushie friends in attendance have died. Sue, Natalie, and Diana. Cookie had died the previous year but she had also been a force to reckon with. All died too young. All the Cushies who have died have been too young. I hate this disease/syndrome.
• 📅 Webinar: Make Sense of Your Dollars
  A rare disease diagnosis is something that no one can plan or prepare for and it can often lead to financial burdens, but with the right guidance in financial planning, you can overcome these budgeting obstacles. Listen in to hear professionals in finance guide you through money management and budget preparation.
• 📰 A retrospective analysis of postoperative hypokalemia in pituitary adenomas after transsphenoidal surgery
  Pituitary adenoma is one of the most common intracranial neoplasms, and its primary treatment is endoscopic endonasal transsphenoidal tumorectomy. Postoperative hypokalemia in these patients is a common complication, and is associated with morbidity and mortality. This study aimed to analyze the etiopathology of postoperative hypokalemia in pituitary adenoma […]
• 🏥 Sloan Kettering Clinical Trials & Research
  Clinical trials are research studies that test new treatments to see how well they work. Our Pituitary and Skull Base Tumor Center is leading clinical trials investigating new medical therapies for patients with Cushing’s disease and acromegaly. They are also involved in quality-of-life studies aimed at improving long-term follow-up care for patients who nee […]
• 📅 Register Now for Johns Hopkins Pituitary Day!
  The 9th annual Pituitary Day will take place on October 14, 2017. Patients living with pituitary disorders can hear lectures from our pituitary specialists, see movies of pituitary surgeries and hear from other patients about their experience living with pituitary disease and undergoing surgery. Attendance is free, and patients can bring one guest.
• ✍️ Sheryl, Adrenal Bio
  Sheryl had adrenal surgery (BLA) in 1974.
• 🎤Interview with Sheryl (sherylr)
  Gracie says: "I've been having symptoms of Cushing's at least 14 yrs. I began testing with Dr. F. June, 2007. I was diagnosed in May, 2008 with cyclical Cushing's disease. I have surgery coming up soon. I'm going to see Dr. J. next Monday, and I'll get my surgery date that day, so I will know by the night of the program, when I […]
• 🏥 Cushing's Testing at NIH
  Currently recruiting clinical trials at the NIH (National Institutes of Health)
• 💊 NIH Clinical Center: Facts at a Glance
  As a research facility, only patients with the precise kind or stage of illness under investigation are admitted for treatment at the NIH Clinical Center. There are no labor and delivery services and no other services common to community hospitals.
• 💊 9 Tips For Safe Travel With Diabetes (or other conditions)
  Many of these tips work for Cushing's patients on Growth Hormone, as well.
• 🏞New Cushie added to the MemberMap
  Add your own info (or your doctor's) to the Cushie MemberMap
• 📅 Cushie Calendar
  Our Cushie Calendar has been updated with a new look and it's now embedded with the message board calendar.
• ✍️ Danielle, Undiagnosed (Cyclical Cushing's)
  Danielle is from Toronto, Canada. She has been having Cushing's symptoms since May-Aug 2013 when she was 17-18. A T3 MRI of her pituitary showed an enlargement right side pituitary
• ✍️ Kathryn (Kathryn), Pituitary Bio
  (Golden Oldie) Kathryn is from West Yorkshire, England. She had a pituitary adenoma removed and is on replacement of cortisol, thyroxine and soon to be on growth hormone. She was to be having a hip replacement
• 😃 New Testimonial
  I would first like to say how happy i am that this website exists it makes me feel so much better that others have gone through what i am currently experiencing and have made amazing recoveries!
• ✍️ Victoria (Victoria), Undiagnosed Bio
  Victoria is from Texas and just finished her first year of college. She has many Cushing's symptoms and is awaiting results of blood and urine testing.
• 📰 Basal Cortisol Elevated in Patients with ACTH-Staining Pituitary Macroadenoma
  We hypothesized that patients with subclinical Cushing's disease or silent ACTH-secreting tumors would have a higher delta cortisol on the ACTH stimulation tests vs. other types of macroadenoma pathologies
• 📰 Primary Adrenal Insufficiency (PAI)
  Primary adrenal insufficiency (PAI) in children is an uncommon, but potentially fatal. The current symptoms include weakness, fatigue, anorexia, abdominal pain, weight loss, orthostatic hypotension, salt craving and characterized by hyperpigmentation.
• 📰 Cushing’s appears to begin its cardiovascular effects during childhood
  Children as young as 6 years old with the disorder already may show signs of cardiovascular remodeling, with stiffer aortas and higher aortic pulse-wave velocity than do age-matched controls..
• 📰 Corcept Therapeutics Announces Presentations on Mifepristone for the Treatment of Patients with Hypercortisolism
  "There is growing awareness that even less severe degrees of hypercortisolism are harmful," said Joseph K. Belanoff, M.D., Corcept's Chief Executive Officer. "As a result, physicians are increasingly screening patients whose metabolic and cardiovascular symptoms have not responded to conventional therapy and finding cases of previously un […]