Cushing’s Help is 15 Today!

happybirthday-2015

 

It’s unbelievable but the idea for Cushing’s Help and Support arrived 15 years ago last night.

I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.

The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m going to make some helpful differences in someone else’s life!

The message boards are very active and we have weekly online text chats, weekly live interviews, local meetings, email newsletters, a clothing exchange, a Cushing’s Awareness Day Forum, podcasts, phone support and much more.

Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.

 

maryo colorful zebra

One Response

  1. Can’t believe I’m showing up here at Cushing’s Help on your 15th anniversary! Congratulations all. I was a regular visitor here in 2003-4. I just learned that my CD has probably returned (waiting for results of MRI now). What a comfort to find my old friends at Cushing’s Help are still here. Thank you so much.

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