CushieBlog

Cushing’s Help RSS Feed

• 🖤 In Memory: Shianne Lombard-Treman, March 28, 2018
  Shianne was a Cushing's Survivor who had just published a book, Be Your Own Doctor She was 41.
• 📞Webinar: Dr. Theodore Friedman will host an important webinar on Coronavirus Information for Endocrine Patients
  Many patients have asked Dr. Friedman what do during the Coronavirus Pandemic. He will give candid answers from his view as an Endocrinologist. He will also talk about new telehealth opportunities for his patients.
• 📰 FDA Approves New Treatment for Adults with Cushing's Disease
  The U.S. Food and Drug Administration today approved Isturisa (osilodrostat) oral tablets for adults with Cushing's disease who either cannot undergo pituitary gland surgery or have undergone the surgery but still have the disease. Cushing's disease is a rare disease in which the adrenal glands make too much of the cortisol hormone. Isturisa is the […]
• ⭐️ Top PIcks on the Message Boards updated March 9, 2020
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 🔴 Update on Coronavirus (COVID-19)
  Those with adrenal insufficiency fall into that category. When sick with a viral infection, they can have a more serious illness, and certainly require stress dose steroids to help to respond to the illness. If someone with adrenal insufficiency contracts the coronavirus, it is more likely to lead to the need for supportive care, including hospitalization.
• 🖤 In Memory of Erica Michelle “GaGa” Meno, March 6, 2015
  Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
• ✍️ For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio
  As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
• 📅 Today is Rare Disease Day
  Today is Rare Disease Day. Learn all about Cushing's Disease at http://www.cushings-help.com/
• 🏞 One New Cushie added to the Cushing's MemberMap
  Alayna is from South Dakota
• 👥2020 Barrow Pituitary Center Patient Education Day
  Saturday, March 14, 2020 8:00 a.m. to 4:00 p.m. $30 per person
• 📞 Webinar: Perioperative Care for the Pituitary Patient: Optimizing the Surgical Experience
  Learning Objectives: Discuss patient expectations for pituitary surgery and recovery Discuss best practices to minimize risk of complications What questions to ask your medical providers
• 📰 Clinical Characterization of Patients With Primary Aldosteronism Plus Subclinical Cushing’s Syndrome
  Primary aldosteronism (PA) plus subclinical Cushing’s syndrome (SCS), PASCS, has occasionally been reported. We aimed to clinically characterize patients with PASCS who are poorly profiled.
• 📰 New way to study pituitary tumors holds potential for better diagnoses and treatments
  The new tests being investigated at Houston Methodist not only have the potential to lead to better diagnoses for patients with pituitary adenomas, but also for many other types of brain tumors in the future. The findings, which were published Jan. 28 in Scientific Reports, an online journal from Nature Publishing Group, describe a new way being looked at to […]
• 📰 Adrenocortical Carcinoma and Pulmonary Embolism From Tumoral Extension
  Cushing syndrome or a mixed picture of excess androgen and glucocorticoid production are the most common presentations of Adrenococortical carcinoma. Other uncommon presentations include abdominal pain and adrenal incidentalomas. In the present report, a 71-year-old male presented with abdominal pain and was eventually diagnosed with ACC. He was found to hav […]
• 📰 Clinical trial: Multicenter Study of Seliciclib (R-roscovitine) for Cushing Disease
  This phase 2 multicenter, open-label clinical trial will evaluate safety and efficacy of 4 weeks of oral seliciclib in patients with newly diagnosed, persistent, or recurrent Cushing disease.
• 🔵 Cushing's Help Guest Forum
  The Guest Forum has returned on a trial basis.  At the moment, new guest questions are not moderated.
• ✍️ Comment added to Stefanie, Pituitary Bio
  Hi Stefanie I would be happy to talk or email which ever is more convenient. I have pituitary cushings. 2 surgeries later last one oct 2019 I seem to be doing good so far.
• 📰 Pasireotide Reduces Pituitary Tumor Volume in Cushing’s Disease
  Five children had Cushing’s disease (mean age, 14 years; two girls), including one macroadenoma. Those with Cushing’s disease presented with obesity (100%), short stature (60%) and headache (40%). Transsphenoidal resection resulted in biochemical cure; however, two patients experienced relapse 3 and 6 years after surgery, respectively, requiring radiotherapy […]
• 🖤 In Memory: Lori Holt ~ January 6, 2008
  During the first few days of September 2007, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surgery and never recovered.
• 🖤 In Memory: Jill's Father. January 5, 2005
  Jill wrote: 'In December 2004 my dad who had addison's for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were complete […]