It’s unbelievable but the idea for Cushing’s Help and Support arrived 23 years ago last night. That’s a long time for anything online.
I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.
The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life!
The message boards are very active and we have weekly online text chats, occasional live interviews, local meetings, email newsletters, a clothing exchange, a Cushing’s Awareness Day Forum, podcasts, phone support and much more.
Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the “Cushie Helper” program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.
Of course, we now have a Facebook page and 2 groups. Both are secret, so if you want to join, please email or PM me for an invitation.
Other sites in the Cushing’s Help “Family”
Filed under: Cushing's | Tagged: Alice, Alice Stamm (Dearest), birthday, Cushing's Help, cushings-help.com, FrontPage, message boards, Microsoft, Power Surge |
CushieBlog 
[…] Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) […]
[…] Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) […]
[…] Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) […]
Comments from Facebook:
Susan said “What a legacy you created. 😘”
Krystine said “Happy 23rd Anniversary!!!!! Thank the Lord for this site! Its helped me so many times & introduced me to some wonderful people. God Bless you Mary Kelly O’Connor !”
Sharymn said “Oh my goodness, I remember it like it was yesterday! Yes, Mary we’ve been at this 23 years. I never dreamt while I sat for hours waiting for dial up internet 🤣 to write on your thread, that we’d still be here helping Patients. God forbid I get a phone call on the landline and get kicked off the Internet and have to start all over to get connected. But it was worth it, we helped get Cushing’s disease on the radar of many patients and doctors at a time, that wasn’t the case. Thank you for all the hours you’ve put into Cush-Help, and all the financial burdens you’ve spent out of your own money to keep everything running so well to help so many patients. You’re the best! I love you, girlfriend. ♥️”
More from Facebook:
Aemi said: “I’m so glad it has kept going. It has helped so many Cushies!”
Gina said “You’ve saved so many lives Mary!!! ”
Catrina said “I am thankful for you every day”