Plan C: A local oncologist specializing in GI NETs

Posted on April 2, 2015 by MaryO

attot's avatara tale of two tumors

Last week, I had an appointment with an oncologist specializing in NETs.  I was my usual nightmare patient self, walking into the appointment with a stack of symptoms and labs as long as my arm.  I tried my best to keep the list short and to the point, but the more questions she asked, the more messy it got.

I got a good first impression of this doctor.  She spent a lot of time with me and M.  She was happy to look at the pictures I brought with me and we discussed my labs at length.   I even ran my crazy somatostatinoma theory past her and showed her my suppressed TSH, IGF-1, gastrin and glucagon labs that were indirect evidence supporting this theory.  She didn’t laugh at me, which other doctors undoubtably would have.  Instead, she peppered me with questions about pituitary function post pituitary surgery (as this is…

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Next-Generation Compounds and Support Commercialization of Korlym(R)

Posted on April 2, 2015 by MaryO

Corcept markets Korlym® for the treatment of Cushing’s syndrome, a severe orphan illness that afflicts 20,000 people in the United States, approximately half of whom are cured by surgery. Corcept believes that revenue from the sale of Korlym, combined with the company’s cash reserves, will allow it to reach cash flow breakeven while fully supporting its development activities.

via Warrant Exercises Generate $17.2 Million; Proceeds to Advance Next-Generation Compounds and Support Commercialization of Korlym(R).

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Cushing’s syndrome vs simple obesity. How can a needle be found in the haystack?

Posted on April 2, 2015 by MaryO

Endocrinology Today 02/2015; 4(1):30-35.

Clinical recognition of Cushing’s syndrome should generally follow from the observation of a constellation of compatible clinical features that progress over time. Screening for Cushing’s syndrome in patients with individual features of the metabolic syndrome, such as obesity, hypertension and hyperglycaemia, is not recommended.

Early diagnosis reduces unnecessary suffering and the ultimate lifetime sequelae of Cushing’s syndrome. Confirmation involves the demonstration of biochemical hypercortisolism, and the extent of diagnostic testing needs to be based on the degree of clinical suspicion.
Read the whole article here, in PDF format

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What are you thinking?! Cushing’s Disease is never part time or on the side!

Posted on April 2, 2015 by MaryO

Some of you may wonder why I have named this blog “zebraontheside.” First of all, Cushing’s Disease is a huge part of my life and it has impacted every aspect of my life in some way or another. Not only has it impacted my life but it also impacts those who continue to support me…

via What are you thinking?! Cushing’s Disease is never part time or on the side!.

 

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Cushing’s Awareness Month Day 1: Know Your Body

Posted on April 1, 2015 by MaryO

Another great Cushing’s Awareness 2015 Blog!

Rachel's avatarLiving with Cushing's Disease

Today begins Cushing’s Awareness Month, in celebration of Dr. Harvey Cushing’s birthday on April 8th. Not only is he the father of modern neurosurgery, but he is also the one that discovered – and researched, and researched some more – the phenomenon now known as Cushing’s Disease.  Our guru/Gandhi/den mother, Mary O., came up with the idea of posting a blog a day during the month of April as a way for bloggers like myself to help raise awareness for this disease.

Today was an insane day at my job. Anyone that works in the legal field understands the crunches, deadlines and craziness when several matters collide into one huge mess. Not only are you stretched thin, but you also feel like you leave bits and pieces of yourself scattered throughout your workplace like breadcrumbs. Days like those are incredibly taxing on anyone, but the physical, emotional and mental ramifications for…

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