Day Seventeen, Cushing’s Help Challenge

Way back when we first got married, my husband thought we might have a lot of kids.  He was from a family of 6 siblings, so that’s what he was accustomed to.  I am on only child so I wasn’t sure about having so many.

I needn’t have worried.

In January, 1974 I had a miscarriage.  I was devastated. My father revealed that my mother had also had a miscarriage.  I had no idea.

At some point after this I tried fertility drugs.  Clomid and another drug.  One or both drugs made me very angry/depressed/bitchy (one dwarves I left off the image)  Little did I know that these meds were a waste of time.

Eventually,  I did get pregnant and my wonderful son, Michael was born.  It wasn’t until he was seven that I was finally, actually diagnosed with Cushing’s.

When I had my early Cushing’s symptoms, I thought I was pregnant again but it was not to be.

I’ll never forget the fall when he was in second grade.  He was leaving for school and I said good bye to him.  I knew I was going into NIH that day for at least 6 weeks and my future was very iffy.  He just turned and headed off with his friends…and I felt a little betrayed.

Michael wrote this paper on Cushing’s when he was in the 7th grade. From the quality of the pages, he typed this on typing paper – no computers yet!

Click on each page to enlarge.

When Michael started having headache issues in middle school, I had him tested for Cushings.  I had no idea yet if it could be familial but I wasn’t taking any chances.  It turned out that my father had also had some unnamed endocrine issues.  Hmmm…

I survived my time and surgery at NIH and Michael grew up to be a wonderful young man, if an only child.  🙂

After I survived kidney cancer (see the post from April 12) Michael and I went zip-lining – a goal of mine after surviving that surgery.  This was taken in a treetop restaurant in Belize.

For the mathematically inclined, this is his blog.  Xor’s Hammer.  I understand none of it.

40 Days of Thankfulness: Days Twenty-Two to Thirty

I haven’t been too great on keeping this list up online but I have been keeping up on my computer so there will be a few catchup posts like this one.

Day 22 (November 5): Jack Canfield’s book Chicken Soup for the Surviving Soul: 101 Healing Stories About Those Who Have Survived Cancer.  There is a great piece in there called The Best Day of my Life.  I’ve written about it before on http://cushingshelp.blogspot.com

Day 23 (November 6): Lou Argow.  She’s been my counselor for many years, starting with my terrifyingly real dreams of death. Thanks, Lou!

Day 24 (November 7): SusanM on the message boards.  She did something so wonderful for me a few years ago, words can’t even describe it.  Fortunately, I have described it before. 🙂  Read more here!  People on the message boards can check this thread out.  Thanks again, Susan!

Day 25 (November 8): Travel.  I’ve been fortunate to be able to travel to several interesting places.  Some, like Iceland, we just lucked in to.  We’ wanted to go to Ireland but the travel agent couldn’t get us in at any time over that summer.  She did get us a deal where, if we flew Iceland Air, they’d give us a free week in a hotel in Iceland before flying us to London.  Duh!  Wonderful trip.

Day 26 (November 9): My dear friend, and sister I never had, Alice.  We’ve only met twice in person but we talk for several hours about every other day.  We’re closer than any of my local friends.  Happy Birthday, Alice!

Day 27 (November 10): TiVo.  I love that I can fast forward through commercials and have all my favorite shows waiting for me when I lie down on the sofa (and fall asleep!)  I probably wouldn’t have gotten one of these when we did but our son got us one for Christmas.  He had it all set up and ready to go on Christmas morning.  At that time, I had no idea of its capabilities but now, I don’t think I could live without it!

Day 28 (November 11): Veteran’s Day.  I am thankful for those who have served and are serving now.  My husband served during the Vietnam-era although he never had to go to Vietnam.

Day 29 (November 12): Crockpot.  Yay!

Day 30 (November 13): Rainbows. I have a special affinity for them.  To me, a rainbow is a sign that things are going to be ok.  Years ago, our little family was in Florida.  I felt guilty about going because my dad was terminally ill with his second bout of colon cancer.  I was worried about him and said a little prayer for him.  I was lying on the beach while DH and our son were in the ocean and I looked up and saw a rainbow.  It was a perfectly clear, sunny afternon.   I even called the people out of the water, in case it was something I wanted to see that didn’t really exist.  They saw it, too.

Where in the world did that rainbow come from, if it wasn’t a sign?

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