Ohio Pituitary Patient Symposium at OSU and Gentle Giant Awards Dinner

Please join the Pituitary Network Association and The Ohio State University for a Pituitary Patient Symposium featuring a series of pituitary and hormonal patient education seminars presented by some of the top physicians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date information and be available to answer your most pressing questions.

Following the Patient Symposium you are cordially invited to attend Pituitary Network Association’s Gentle Giant Award Reception and Dinner. Join us in honoring Dr. Daniel Prevedello for his exemplary accomplishments in the field of pituitary medicine.  Dr. Prevedello is an Associate Professor of Neurosurgery at The Ohio State University Wexner Medical center and Director of OSU’S Minimally Invasive Cranial Surgery Program.  Dr. Prevedello is internationally recognized in the field of minimally invasive surgery for brain, pituitary, and skull based tumors and has been a member of Best Doctors of America the last five years.  As a practicing neurosurgeon for over 15 years, Dr. Prevedello has performed over 1,800 procedures of which, over 800 were using the Endoscopic Endonasal Approach.  His current surgical practice encompasses the full spectrum of brain and skull based tumors, both benign and malignant, treated with minimally invasive and conventional approaches.

Registration is available for one or both events. The Patient Symposium registration fee is $30 and includes continental breakfast and lunch*. The Award Reception and Dinner is $50 per person or $80 for two (bring a friend or loved one and receive a discount of $20 on the purchase of 2 tickets).

 

*This registration is for the Patient Symposium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu

Date:  April 18, 2015

Fawcett Event Center
Ohio State University
Columbus, OH

Registration and Continental Breakfast 8:00 – 9:00am

Opening remarks 9:00am – Dr. Prevedello

Pituitary Disorders and the Effects on the Family

Epidemiology of Pituitary Tumors

Defining Clinically Significant Pituitary Disease

Treatment Options: Surgery

State of the Art Surgery for Cushing’s Disease

Question and Answer Session with Morning Symposium Faculty

Lunch with guest patient speakers: Concetta Troskie, Lori Burkhoff

Sexual Dysfunction and Infertility

Acromegaly

Pituitary Trivial Pursuit

Psychosocial Aspects of Pituitary Disease

Pituitary Disease and Your Symptoms

Question and Answer Session with Afternoon Symposium Faculty

Closing Remarks – Dr. Prevedello

Symposium Adjourns 5:45pm

Cushing’s Awareness Challenge: Day 11

robin-uncontrolled

Robin has shared this quote from Dr. Prevedallo.  You can read more at the link at http://brainsurgery.upmc.com/_pdf/Review-of-Endocrin-Cushings.pdf

Over the years, I have seen that this is true, sometimes even for controlled Cushing’s.  Far too many Cushies have died.

Here are some of those that I know of:

Cushing’s is a terrible disease.

There is another Cushie I should add to this list. During the time I was home from NIH just before pituitary surgery, a college classmate of mine (I didn’t know her) did die at NIH of a Cushing’s-related problem. I’m so glad I didn’t find out until a couple months later!  I still have the college alumni magazine that mentioned this.  I’ll have to find that and add it to the In Memory list.

My husband shared a bit about her in my bio:

During the same time Mary was at NIH, another woman had the same operation. She came from Mary’s home town. They were class mates at college. They had the same major. They were the same age. They had the same surgical and medical team. Mary recovered. The other woman died during surgery.

 

I know we’re always fighting with doctors to get diagnosed, to get treated but reading the stories of these people will hopefully inspire people to fight even harder to be heard.

Stay safe – don’t get added to this list!

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Cushing’s on the Dr. Oz Show!

More than 150 staff members will receive the BRAVO! Team Values in Action Award for their collaborative efforts when The Dr. Oz Show came to videotape an inspirational patient story at Ohio State’s Wexner Medical Center.

Lori Burkhoff (Cushings-Help board member cmondwn), a 34-year-old mother from Long Island, NY, who came to Ohio State seeking a cure for Cushing’s disease, will be featured on The Dr. Oz Show along with Neurosurgeon Daniel Prevedello, MD, and Otolaryngology (ENT) Surgeon Ricardo Carrau, MD.

With only four days notice, staff members at Ohio State’s Wexner Medical Center and James Cancer Hospital and Solove Research Institute collaborated to make this visit a success for all — the patient and The Dr. Oz Show video crew.

Along with Collaboration, the Ohio State team also demonstrated the values of Leadership and of Acting with Integrity and Personal Accountability, as they worked to ensure the patient’s safety while accommodating the video crew.

Staff directly involved with this project spanned a broad spectrum of departments, including Admissions, Ambulatory Surgical Unit, Anesthesiology, Housekeeping, Pre-Op, Operating  Room, PACU/Post-Op/ Recovery, In-patient recovery on 7 East James, Marketing and Strategic Communications, Nutrition Services, Patient Experience, Security, and Media Relations.

Each year, our Media Relations team routinely handles hundreds of media escorts and requests for interviews with our expert staff members. But there was nothing routine about this media request. For starters, TV celebrity Dr. Oz would be on site for the entire shoot, starting at 5:30 a.m. Sept. 17, chronicling Burkhoff’s efforts to be cured of a debilitating disease she has battled since she was a teenager. Media Relations staffers escorted the crew throughout the visit.

Cushing’s disease is caused by the pituitary gland releasing too much adrenocorticotropic hormone (ACTH).  People with Cushing’s disease accumulate an excessive amount of ACTH, and this stimulates the production and release of cortisol, which is a stress hormone. If left untreated, Cushing’s disease can cause severe illness and even death.

In Burkhoff’s case, despite three previous surgeries to remove benign tumors on or near her pituitary gland, the disease had returned with a vengeance, causing her to gain weight and putting her at risk for diabetes, stroke, high blood pressure and heart disease, among other complications.

In an effort to raise awareness about the often-misdiagnosed Cushing’s disease, Burkhoff had contacted The Dr. Oz Show.

In the meantime, she learned about the innovative surgical procedure performed at Ohio State. Burkhoff met with Prevedello, the Ohio State neurosurgeon who works in tandem with ENT surgeon Ricardo Carrau, to perform endoscopic endonasal surgery. This is a minimally invasive neurosurgical technique that gives surgeons access to the base of the skull, intracranial cavity and top of the spine by operating via the nose and paranasal sinuses.

Prevedello is one of only a few neurosurgeons worldwide trained in this approach that leaves no facial incisions or scarring, causes less trauma to the brain and nerves, has fewer side effects and results in quicker recovery times.

Burkhoff and the surgeons agreed to be videotaped “documentary style” — meaning that Dr. Oz wanted to capture everything that happened to Burkhoff leading up to and including her surgery. Cameras were rolling at 6 a.m. when Dr. Oz warmly greeted Burkhoff as she walked through the main lobby doors of Rhodes Hall.

Dr. Oz and his video crew remained with Burkhoff as she was admitted to the hospital and during a pre-op discussion with her surgeons in the Ambulatory Surgical Unit. They were with her during the 2.5-hour surgery in University Hospital OR 16, and they followed her into the Post Anesthesia Care Unit recovery area after surgery. By noon, Dr. Oz had departed and the video crew had called it a “wrap.”

During the surgery, Prevedello removed two benign tumors near the pituitary gland. However, Burkhoff did not respond as well as doctors had hoped.

Within a few days, Prevedello and Carrau decided to schedule an unprecedented fifth surgery on Sept. 22.

Even though Dr. Oz couldn’t make it back for the fifth and final surgery, his video crew arrived at 6 a.m. on a football home-game Saturday. The crew interviewed Burkhoff and the surgeons before the four-hour surgery, and the surgeons again after the operation. This surgery proved successful, and Burkhoff continues to improve.

Prevedello and Carrau, members of Ohio State’s Cranial Base Center, will join Burkhoff on the set of The Dr. Oz Show in New York City to share her inspirational story with an international audience during an episode slated to air on Thursday, December 20, 2012.

 

More information at http://oncampus.osu.edu/pdf/Insight10-18-12.pdf

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