The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus


Friday, May 17 at 8PM eastern is the deadline for this.

We want to have Caucus Members from all 50 States.

We have 28 to go: AL, AK, AZ, CO, CT, DE, HI, ID, KS, KY, LA, ME, MD, MS, MO, MT, NV, NH, NM, ND, OK, RI, SC, SD, UT, VT, WI, & WY If you live in one of these states or know someone who does – Please take ACTION today!

Original post:

Help us strengthen the rare disease community’s voice on Capitol Hill!  Please take 3 minutes to ask your Member of Congress to join the Rare Disease Caucus at
It’s easy – the Action Center has a draft letter that will automatically be sent to your Member of Congress – just put in your name and address & click send.  We also encourage you to personalize the letter to share information about your specific disease.  If your Congress Member is already on the Caucus, the letter will automatically populate as a thank you letter instead – these are just as important to send!
It can take up to 10 letters from constituents for a Member to respond so please share this Action Alert with your friends, family & colleagues.  Join our Facebook event & invite your friends:
The Rare Disease Congressional Caucus will help bring public and Congressional awareness to the unique needs of the rare disease community – patients, physicians, scientists, and industry, and create opportunities to address roadblocks in access to and development of crucial treatments.  The Caucus will give a permanent voice to the rare disease community on Capitol Hill.  Working together, we can find solutions that turn hope into treatments.
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