CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top PIcks on the Message Boards updated February 27, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📞 Cushing Syndrome and COVID-19
  A Zoom call to discuss Cushing's Syndrome and COVID-19
• 📰 The Effect of Biochemical Remission on Bone Metabolism in Cushing's Syndrome: A 2‐Year Follow‐Up Study
  Endogenous Cushing's syndrome (CS) is a rare cause of secondary osteoporosis. The long‐term consequences for bone metabolism after successful surgical treatment remain largely unknown. We assessed bone mineral density and fracture rates in 89 patients with confirmed Cushing's syndrome at the time of diagnosis and 2 years after successful tumor rese […]
• 📰 Psychotropic drugs in patients with Cushing’s disease before diagnosis and at long-term follow-up
  Increased use of psychotropic drugs in CD was observed before diagnosis and remained elevated regardless of remission status, suggesting persisting negative effects on mental health. The study highlights the importance of early diagnosis of CD, and the need for long-term monitoring of mental health.
• 📰 Increased Mortality Risk in Patients With Primary and Secondary Adrenal Insufficiency
  A retrospective cohort study was performed to compare mortality risk and causes of death in adrenal insufficiency with an individually-matched reference population. Researchers examined 6,821 patients with adrenal insufficiency (primary, 2052; secondary, 3948) and 6,7564 individually-matched controls (primary, 20366; secondary, 39134). It was shown that in a […]
• 📰 Successful Cushing’s Surgery Leads to Better Bone Density
  Biomarkers in a majority of Cushing’s syndrome patients with surgically induced disease remission showed a high rate of bone turnover and greater bone mineral density one and two years later, a study reports. Before treatment, these patients were found to have greater bone degradation and poorer bone formation, as can be common to disease-related bone disord […]
• 💙 MaryO/COVID Vaccine 1
  Quick takeaway: I have adrenal insufficiency (one adrenal was removed with my kidney due to cancer, steroid-dependent (post-Cushing's Disease), growth hormone insufficiency, panhypopituitary.  I had some issues after my first COVID-19 injection (Moderna) but not too bad.  My second injection will be March 15.
• $$$ Attention Cushing's Patients ~ Patient Advisory Board $$$
  Virtual Patient Panel for Cushing's Syndrome Patients.  Patients that are accepted will be compensated for their participation.
• 📰 New study identifies the main genetic causes of autoimmune Addison's disease
  Scientists from the University of Bergen (Norway) and Karolinska Institutet (Sweden) have discovered the genes involved in autoimmune Addison's disease, a condition where the body's immune systems destroys the adrenal cortex leading to a life-threatening hormonal deficiency of cortisol and aldosterone.
• ❓Can You Help? Possible Recurrence
  I thought I had moved on from this terrible disease. .. I have had two unsuccessful put surguries, a bla 2x (due to ectopic adrenal tissue) and fear I may be having a recurrence.
• ✍️ Comment on Liberty, Undiagnosed Bi0
  This sounds SO much like me! Especially the pms/pmdd
• 📰 Thyroid dysfunction highly prevalent in Cushing’s syndrome
  Central hypothyroidism is prevalent in about 1 in 2 adults with Cushing’s syndrome, and thyroid function can be restored after curative surgery for most patients, according to study findings.
• 📰 Treatment for Rare Cancer May Help Cushing’s Patients
  Oral osilodrostat (Isturisa) normalized cortisol levels in Cushing's disease patients who were ineligible for or not cured with pituitary surgery, according to the phase III LINC 3 trial.
• 📰 Treatment for Rare Cancer May Help Cushing’s Patients
  The cancer medicine bexarotene may hold promise for treating Cushing’s disease, a study suggests.
• 🖤 Comment on In Memory: Liz Raftery
  I’m so sorry to read all this, Ciara. I didn’t know your mom well but she was on the Cushing’s Help message boards and posted there over 1000 times…
• 🖤 Comment on In Memory: Liz Raftery
  This is Ciara – Liz’s daughter – obviously a bit more grown up than back in 2012. I’m just trying as following on from Liz’s death in 2012, her mother and brother both passed away the following year, and so I really have no knowledge about her…
• 📰 Cushing's syndrome in a child
  Cushing's syndrome is a rare entity in children. Adrenal tumour is the common cause of this syndrome in young children, whereas, iatrogenic causes are more common among older children. We report a 4 year old male child diagnosed with Cushing syndrome due to a right adrenal adenoma; the child presented with obesity and increase distribution of body hair. […]
• 📰 Acute and life-threatening complications in Cushing syndrome: Prevalence, predictors and mortality
  Researchers conducted this retrospective cohort study to investigate acute and life-threatening complications in patients with active Cushing syndrome (CS). Participants in the study were 242 patients with CS, including 213 with benign CS (pituitary n = 101, adrenal n = 99, ectopic n = 13), and 29 with malignant disease.
• 📰 Thyroid cancer: Cushing syndrome is a lesser-known warning sign – what is it?
  Thyroid cancer survival rates are 84 percent for 10 years or more if diagnosed early. Early diagnosis is crucial therefore and spotting the unusual signs could be a matter of life and death. A sign your thyroid cancer has advanced includes Cushing syndrome.
• ✍️ Update to Sarah, Cyclical Cushing's Disease
  Sarah is 15 from Brazil. Last year her parents started to suspect that she had Cushing's and now she is very close to a final diagnosis. Sarah shared more of her bio at https://cushings.invisionzone.com/topic/55512-introducing-myself/