CushieBlog

Cushing’s Help RSS Feed

• ⛑In the UK? A study to investigate the prevalence of pituitary gland dysfunction and it's risk factors following traumatic brain injuries (TBI)
  Post- traumatic brain injury (anterior) pituitary gland dysfunction (PTPD) is common following traumatic brain injury and clinical and radiological factors at the time of trauma may predict the risk of developing long-term PTPD.
• 🖊 Christine G, Pituitary Bio
  Christine is from Loudonville, New York. It took her approximately 6 years o be diagnosed with Cushing’s Disease. Her insurance company denied out of network coverage. She did not feel comfortable with any local surgeons because of the lack of surgical experience with Cushing’s Disease so Dr. Swearingen at Mass General performed her surgery.
• ✍️ Comment added to Matt, Undiagnosed Bio
  It’s terrible that you have to feel like you’re going through this alone. It would help to find a doctor that is really listening to your story and hopefully asking you the right questions. I’d suggest meeting with a naturopathic doctor if possible and see where that leads you. Mine was able to help me when other doctors were unable to...
• 😃 New Testimonial From Lynn
  ...Thank you Mary for these boards which back in 2000 were the only source of support and education there was for a patient like me. I joined them in 2000 and again in 2004. I will always be grateful for the sense of normalcy and belonging I found on this web site. I work from home now and have a great life! To all of you just starting the journey......DONT […]
• 🖤In Memory: Kandace Bankston 'Kandy' Kline, September 9, 2007
  Kandy Klein, long-time member of the Cushing's Help message boards, passed away September 9, 2007.
• 📌 Massachusetts Hospital Opens New Neurosurgery Program
  Dr. Safain received his medical degree from Yale University School of Medicine.  He completed his neurosurgery residency at Tufts Medical Center serving as chief resident during his final year.  Dr. Safain also completed fellowship training in pituitary and neuro-endoscopic surgery at Brigham and Women’s Hospital.
• 📰 Crinetics Pharmaceuticals Awarded Two SBIR Grants to Develop New Therapeutics for Congenital Hyperinsulinism and Cushing’s Disease
  Crinetics Pharmaceuticals, Inc., a rare disease therapeutics company focused on endocrine disorders and endocrine-related cancers, announced that it was awarded two new grants from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institutes of Health (NIH), which will be used for the development of Crinetics’ nonpe […]
• 📰 Glowing cancer tool illuminates benign, but dangerous, brain tumors during pituitary surgery
  "Pituitary adenomas are rarely cancerous, but they can cause other serious problems for patients by pushing up against parts of their brain, which can lead to Cushing's disease, gigantism, blindness and death," Lee explained. "The study shows that this novel, targeted, near infrared fluorescent dye technique is a safe, and we believe this […]
• 🖤 In Memory: Cassandra Dills-Dailey ~ August 29, 2017
  Casey Dailey, age 38, was fighting Cushing's disease, a pituitary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weekend, she began feeling sick. She vomited, sometimes with blood. Then, she couldn't stand or talk, relatives said. A high fever started Sunday, a […]
• ✍️ Comment added to Deborah S, Undiagnosed Bio
  ...I feel the same as you. No doctor seems to put everything together did you get a diagnosis
• 🖤 In Memory: Ryan Tyler Monds ~ September 4, 2016
  Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.
• 🖤 In Memory: Janice, Tuesday, September 4, 2001
  In Memory of those we have lost. Janice died Tuesday, September 4, 2001. The very first Cushing's Awareness Ribbons were made for, and worn at, Janice's funeral.
• 🖊 Flying with Refrigerated Growth Hormone
  After 20 hours at 4:15pm  (11:15 am at home) I finally removed the growth hormone from the cases.  The 2 ice packs had melted but the GH in its weekender case was still cool and that gel pack mostly frozen. 
• 🏞New Cushie added to the MemberMap
  Pituitary Cushing's with recurrence. Add your own info (or your doctor's) to the Cushie MemberMap
• ❣️The Message Boards are Back!
  Hooray!  The boards have been fixed and all is well with the world!  :)
• ⚠️ Yet Another Message Board Upgrade
  Another message board upgrade happening right now. I'm not sure how long it will take (or what cosmetic changes need to be done afterwards....The boards are only 86.62% complete as I write this.  
• 🖥 Comment added to Cushing's Slideshow
  I am so appreciated for your story and journey...
• 🏞New Cushie added to the MemberMap
  Lynne is from the United Kingdom. Her Cushing's has been caused by corticosteroids. She has been on steroids or 40 years daily.for severe brittle asthma. She has been on prednisolone and IV steroids on hospital admissions for years. Add your own info (or your doctor's) to the Cushie MemberMap
• 🖊 Lynne (jim4lynne), Steroid-Induced Bio
  Lynne is from the United Kingdom. been caused by corticosteroids. I have been on steroids or 40years daily.for severe brittle asthma. I have been on prednisolone and iv steroids on hospital admissions for years.
• 📰 Mild Cases of Cushing's Syndrome Present Diagnostic Challenges
  "It can be challenging to differentiate the milder forms from pseudo-Cushing's states," which are characterized by altered cortisol production and many of the same clinical features as Cushing's syndrome, according to Roberto Salvatori, MD, the medical director of the Johns Hopkins Pituitary Center, Baltimore, Maryland. These may include […]