CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top PIcks on the Message Boards updated October 17, 2020
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 📰 Hydrocortisone in Granule Form Effectively Treats Childhood Adrenal Insufficiency
  The researchers concluded that “hydrocortisone granules are an effective treatment for childhood adrenal insufficiency providing the ability to accurately prescribe pediatric appropriate doses.”
• 🖤 In Memory: Barbara "Cookie" Rothenberg, October 11, 2003
  Cookie died October 11, 2003. She had a pituitary tumor, recurrence, BLA, PCOS, radiation... Cookie touched a lot of lives. I would get these perky, cheerful and witty emails. It is terrible to lose her. She has left such a legacy, though, that she will go on touching lives for many years to come. She loved people and wanted to make a difference in the lives […]
• ❓Can You Help? Buffalo Hump
  Hi I recently became aware of my possible buffalo hump after xrays of my neck were normal except for a fat pad at the base of my neck. After reading of some of the symptoms of Cushings it was a light bulb moment with so many symptoms being similar to what I’m going through. 
• ✍️ Comment on Comment on Leah (Lele), diagnosed Bio
  i have been on high doses of prednisone for over a year and have all the symptoms of exogenous cushing syndrome but have been made to feel like i;m going mad. they have not diagnosed me as having this. i get so depressed with the pain sometimes and feel like they are only interested in the original condition not the side effects.
• ❣️Comments added to The Message Boards Turn 20 Today! ❣️
  Comments from Facebook :)
• ❣️Comments added to The Message Boards Turn 20 Today! ❣️
  Comments from Facebook :)
• 🎬 Video: Happy Girl tells her Story So Far
  Happy Girl writes: I am not so great at typing since my mind gets so jumbled but I have been at this journey for 2 years. I did make a detailed youtube video to tell my story so far
• 🏞 One New Cushie added to the Cushing's MemberMap
  Matt was diagnosed with Stage 2 small cell lung cancer causing high levels of Cortisol, low testosterone and thyroid. He is from Liverpool, England.
• ✍️ Matt (MattHill), Ectopic Cushing's
  Matt was diagnosed with Stage 2 small cell lung cancer causing high levels of Cortisol, low testosterone and thyroid. He is from Liverpool, England.
• 📰 Muscle Weakness Persists in Cushing’s Syndrome Despite Remission
  In the new study, researchers analyzed data for 88 people with endogenous Cushing’s syndrome diagnosed between 2012 and 2018 who had undergone regular muscle function tests. The data were collected as part of the German Cushing’s Registry, and the assessed group was mostly female (78%), with an average age of 49.
• 🖤 In Memory of Alice Baker ~ October 3, 2002
  Alice died Thursday, October 3, 2002 of lung cancer and Cushing's.
• 📰 WP Thyroid, Nature-Throid and NP Thyroid recall-October 2020 update
  Dr. Friedman wants to update his patients about natural desiccated thyroid (NDT) recalls based on new information from the FDA.
• 🖤 In Memory of Lenise Petersen, October 2, 2002
  Lenise passed away at 23 years old, just after her pituitary surgery.
• ❣️The Message Boards Turn 20 Today! ❣️
  Today  is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) As of today, we have 73,024 members who have made countless posts.
• 🖤 In Memory: Bettye Jean Douglas, September 28, 2016
  Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed, a decision was made against surgery and Bettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease, as many patients do, she rapidly lost weight and was admitted into hospice care soon after.
• 🖤 In Memory: Joanne Swain
  Joanne was known on the boards as raggettyjoanne. Mario VandDermeij announced the passing of his loving wife of 23 years. Joanne Swain VanDermeij at the age of 56. After 2 years and 3 months of fighting the system, Joanne was finally diagnosed March the 14th, 2011, with full blown adrenal Cushing's.
• 📞 Webinar: Recurrent Pituitary Adenomas – What are the options?
  Learning objectives: -          the basic characteristics of the different types of pituitary adenomas -          the potential predictors of recurrence and aggressiveness in pituitary adenomas -          the surgical and radiotherapy options for recurrent pituitary adenomas -          the potential medical interventions, including chemotherapy, for recurren […]
• ✍️ Comment on Matt, Undiagnosed Bio
  By the way, I know these symptoms very well. Ever heard of chiari malformation? This can also be responsible for your endocrine trouble. Talk to an neurologist and try to get an mri of your skull done.
• 💉 CLINICAL TRIALS | Awareness Project
  Everyone who has taken part in a clinical trial is asked to share. We are interested in learning why you decided to take part in a clinical trial and how your experience went.