CushieBlog

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• 📰 Minimally Invasive Approaches Lead to High Remission Rates in Children
  In transnasal surgery (TNS), a surgeon goes through the nose using an endoscope to remove a pituitary tumor. The approach is the first-choice treatment for children with Cushing’s disease due to ACTH-secreting adenomas — or tumors — in the pituitary gland.
• 🖤 In Memory: Jessica Lee Pierson, August 29, 2018
  Jessica Lee Pierson, 35, passed away Wednesday, August 29, 2018 from complications of Addison’s disease.
• 🖤 In Memory: Janice, Tuesday, September 4, 2001
  In Memory of those we have lost. Janice died Tuesday, September 4, 2001. The very first Cushing's Awareness Ribbons were made for, and worn at, Janice's funeral.
• 🖤 In Memory: Ryan Tyler Monds ~ September 4, 2016
  Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.
• ❓Guest Question: Upcoming Endo Appointment
  Can someone please help me?  Over the past few years I have gained over 40 lbs, suffer from extreme fatigue, muscle cramps, headaches, just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and she said that there’s just no way I could have this because it is so rare.  […]
• 🎤 Podcast Interview Updates
  A time will be arranged for your interview. On that day, please call the guest call-in number about 5-10 minutes before the interview is scheduled. You can chat informally with the MaryO before the chat begins...
• 🔵 Cushing's Help Guest Forum
  The Guest Forum has returned on a trial basis.  At the moment, new guest questions are not moderated.
• ‼️Message Board Upgrade Today
  Please let me know if anything is not working properly. I already removed one item from the sidebar and will try to fix that soon
• ✍️ New Bio Form
  We have a new form to add your own bio.
• 📰 ACTH test after adenomectomy may accurately predict Cushing’s disease remission
  A plasma adrenocorticotropic hormone suppression test performed shortly after surgical adenomectomy may accurately predict both short- and long-term remission of Cushing’s disease
• 📰 Cushing Syndrome Results in Poor Quality of Life Even After Remission
  Functional remission did not occur in most patients with Cushing syndrome who were considered to be in biochemical and clinical remission, according to a study published in Endocrine. This was evidenced by their quality of life, which remained impaired in all domains.
• ❓Comment added to Guest Question: Can you have Cushing's with Normal Cortisol Levels?
  One of the other Cushies I know.said:  "I was dx with dex suppression test. Normal levels in AM, normal 24 hr urine."
• ❓Guest Question: Can you have Cushing's with Normal Cortisol Levels?
  Has anyone had normal cortisol levels come back and still had cushing’s Disease? 
• 📰 Metyrapone Reduced Urinary-Free Cortisol Levels in Cushing Syndrome
  This observational, longitudinal study evaluated the effects of the 11β -hydroxylase inhibitor metyrapone on adult patients with Cushing syndrome. Urinary-free cortisol and late-night salivary cortisol levels were evaluated in 31 patients who were already treated with metyrapone to monitor cortisol normalization and rhythm.
• ✍️ Steve, Ectopic Bio
  Steve was went undiagnosed for 12 years. After a pituitary surgery, he turned out to have Ectopic cushings in right lung
• 📰 Night Cortisol Levels for Diagnosing Cushing’s Syndrome Less Accurate in Clinical Practice
  In healthy individuals, the levels of cortisol — a steroid hormone secreted by the adrenal glands — go through changes over a 24-hour period, with the lowest levels normally detected at night. But this circadian rhythm is disrupted in certain diseases such as Cushing’s syndrome, where night cortisol levels can be used as a diagnostic tool. Among the tests th […]
• ✍️ Comment added to Alexis (Alexis), Undiagnosed Bio
  Alexis, can you tell me if your workup has revealed any answers? Someone I love is experiencing the same symptoms. With weight gain, rounded face, resting HR high, heat intolerance, nausea, vomiting, fainting..
• ✍️ Comment added to Stacy B, Pituitary/Adrenal Bio
  I have very complex issues also with the pcos and all how it basically attached to new system. It’s very very hard to treat for the many unknowns. I have found odd dr whom thinks outside box typically works best. ....
• ✍️ Danielle G, Pituitary Bio
  Danielle had suddenly gained more than 20kg, found herself losing hair, constantly breaking bones and struggling to sleep. Making matters worse, the young mother became severely depressed and noticed an unusual-looking ‘hump’ on her back.
• 📰 Transsphenoidal Surgery Is Safe and Effective Treatment for Cushing’s Disease
  Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment. Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%, depending on the location and type of tumor, the neurosurgeon’s expertise, follow-up period, and the definition of remission. Today, TSS consists of […]