CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top PIcks on the Message Boards updated March 6, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 💉 Helpful Neurourgeon: Pennsylvania
  Walter Jean, MD, has joined Lehigh Valley Health Network (LVHN) and will serve as Chief of Neurosurgery. Jean is a board-certified neurosurgeon with expertise in complex intracranial surgery. He is known world-wide for his expertise in complex brain surgery. With nearly 20 years’ experience in both open and endoscopic skull base surgery, Jean has several cli […]
• 🖤 In Memory of Erica Michelle “GaGa” Meno, March 6, 2015
  Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
• 📰 Cushing’s Found to Cause ‘Persistent Mental Health Problems’ in Patients
  For years before and after their diagnosis, people with Cushing’s disease use more psychotropic medications — those that affect mood, thoughts, or perception — for mental health problems than their healthy peers, a study in Sweden found. Notably, patients experiencing long-term disease remission still showed higher use of antidepressants and sleeping pills t […]
• 📞 eSummet: Quality of Life of Pituitary Patients March 19-20, 2021
  We seek to empower and improve the Quality of Life of Pituitary Patients, by sharing knowledge and inform you about treatment choices.
• 📰 New Drug Application for RECORLEV® (levoketoconazole) for the Treatment of Endogenous Cushing’s Syndrome
  Nearly 40 Percent of Prescription-Treated Endogenous Cushing’s Syndrome Patients in the U.S. Are Not Well-Controlled, Underscoring Need for New, Safe and Effective Pharmaceutical Options to Help Regulate Cortisol Levels.
• 🖤 Comment added to In Memory: Liz Raftery, March 2012
  This breaks my heart. Liz was so young. She was finally so hopeful after way too long. We have to do something to change this. People especially doctors have to know what we go through. Mary is one person and look at all she has done to raise awareness. We are so many. There has to be something we all can do….
• 🖤 In Memory: Liz Raftery, March 2012
  We sadly learned that Liz died in March 2012 at the age of 45. She was an active member of the Cushing’s Help Message Boards. She had a photo gallery there. The photo below is from that gallery. Liz in 2002The image at left is from 2002. Liz wrote in her bio: Hello, I’m from Hampton, just outside London. Same old story – at least 6 years of various illnesses […]
• 📰 COVID-19 and Cushing's syndrome: recommendations for a special population with endogenous glucocorticoid excess
  Over the past few months, COVID-19, the pandemic disease caused by severe acute respiratory syndrome coronavirus 2, has been associated with a high rate of infection and lethality, especially in patients with comorbidities such as obesity, hypertension, diabetes, and immunodeficiency syndromes. These cardiometabolic and immune impairments are common comorbid […]
• ✍️ For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio
  As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
• 📅 Today is Rare Disease Day
  Today is Rare Disease Day. Learn all about Cushing's Disease at http://www.cushings-help.com/
• 📞 Cushing Syndrome and COVID-19
  A Zoom call to discuss Cushing's Syndrome and COVID-19
• 📰 Psychotropic drugs in patients with Cushing’s disease before diagnosis and at long-term follow-up
  Increased use of psychotropic drugs in CD was observed before diagnosis and remained elevated regardless of remission status, suggesting persisting negative effects on mental health. The study highlights the importance of early diagnosis of CD, and the need for long-term monitoring of mental health.
• 📰 The Effect of Biochemical Remission on Bone Metabolism in Cushing's Syndrome: A 2‐Year Follow‐Up Study
  Endogenous Cushing's syndrome (CS) is a rare cause of secondary osteoporosis. The long‐term consequences for bone metabolism after successful surgical treatment remain largely unknown. We assessed bone mineral density and fracture rates in 89 patients with confirmed Cushing's syndrome at the time of diagnosis and 2 years after successful tumor rese […]
• 📰 Increased Mortality Risk in Patients With Primary and Secondary Adrenal Insufficiency
  A retrospective cohort study was performed to compare mortality risk and causes of death in adrenal insufficiency with an individually-matched reference population. Researchers examined 6,821 patients with adrenal insufficiency (primary, 2052; secondary, 3948) and 6,7564 individually-matched controls (primary, 20366; secondary, 39134). It was shown that in a […]
• 📰 Successful Cushing’s Surgery Leads to Better Bone Density
  Biomarkers in a majority of Cushing’s syndrome patients with surgically induced disease remission showed a high rate of bone turnover and greater bone mineral density one and two years later, a study reports. Before treatment, these patients were found to have greater bone degradation and poorer bone formation, as can be common to disease-related bone disord […]
• 💙 MaryO/COVID Vaccine 1
  Quick takeaway: I have adrenal insufficiency (one adrenal was removed with my kidney due to cancer, steroid-dependent (post-Cushing's Disease), growth hormone insufficiency, panhypopituitary.  I had some issues after my first COVID-19 injection (Moderna) but not too bad.  My second injection will be March 15.
• $$$ Attention Cushing's Patients ~ Patient Advisory Board $$$
  Virtual Patient Panel for Cushing's Syndrome Patients.  Patients that are accepted will be compensated for their participation.
• 📰 New study identifies the main genetic causes of autoimmune Addison's disease
  Scientists from the University of Bergen (Norway) and Karolinska Institutet (Sweden) have discovered the genes involved in autoimmune Addison's disease, a condition where the body's immune systems destroys the adrenal cortex leading to a life-threatening hormonal deficiency of cortisol and aldosterone.
• ❓Can You Help? Possible Recurrence
  I thought I had moved on from this terrible disease. .. I have had two unsuccessful put surguries, a bla 2x (due to ectopic adrenal tissue) and fear I may be having a recurrence.