CushieBlog

Cushing’s Help RSS Feed

• 🖤In Memory: Kassey Whiterock, June 30, 2016
  Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.
• 📰 Measuring TSH Levels Could Improve Diagnosis for Cushing’s Syndrome
  Measuring the variation in thyroid stimulating hormone blood levels between midnight and morning may be better for diagnosing Cushing’s syndrome than current approaches, a study suggests. 
• ✍️ Comment added to Diana B (Diana Brown), Undiagnosed Bio
  My symptoms are almost identical to yours, but I have yet to have any cortisol testing done (I have doctors appointments coming up that I will ask about having the tests done).
• 📰 Tumors in Cushing’s Patients Have Distinct Genetic Profiles
  Based on their genetic profile, researchers were able to cluster tumors into three distinct subgroups... Collectively, the findings add new clues to the molecular mechanisms involved in the progression of benign pituitary tumors. They also provide new ground for developing targeted therapies, the researchers said.
• 🖤 In Memory: Kate Myers
  Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
• 🖤 In Memory of Samantha Cohn June 20, 2015
  Juilliard graduate Samantha Cohn, 34, crawled out a window in her 16th-floor apartment at West 71st Street and Broadway and jumped at 10:10 a.m. Her mother told investigators she had been diagnosed with Cushing’s syndrome, police sources said.
• 📞 Dr Theodore Friedman Webinar June 24
  Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue.
• ❓Comment added to Guest Question: Is Itching Common with Cushing’s Syndrome?
  Were your itching, flushing and elevated BP episodes (cyclic) or there all of the time?
• ✍️ Comment added Pituitary Dysfunction as a Result of Traumatic Brain Injury
  A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?
• 📰 Cushing’s Patients at Risk of Life-threatening Pulmonary Fungal Infection
  Cushing’s disease patients who exhibit nodules or masses in their lungs should be thoroughly investigated to exclude fungal infection with Cryptococcus neoformans, a study from China suggests. While rare, the infection can be life-threatening, showing a particularly worse prognosis in patients with fluid infiltration in their lungs or with low white blood ce […]
• 📰 Cushing’s syndrome caused by ACTH-producing thymic typical carcinoid with local invasion and regional lymph node metastasis: a case report
  Ectopic ACTH-producing thymic carcinoid tumors are rare, but often behave aggressively with local invasion and distant metastasis. We herein report a case of ACTH-producing thymic typical carcinoid tumor with lymph node metastasis treated by surgery and postoperative radiation therapy.
• 🖤In Memory: Sarah Fraik
  Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
• 📰 Radiation to the Whole Pituitary Compartment Effective at Controlling Cushing’s
  Radiation therapy targeting the entire sella — the compartment where the pituitary gland resides at the base of the brain — is effective at controlling Cushing’s disease and should be considered for patients with suspected invasive adenoma tumors, a new study shows.
• 📰 Comment added to Relacorilant Effectively Manages Cortisol Effects in Cushing’s Patients
  Those are some really useful findings and a big relief for patients suffering from cushing syndrome. Seems like the relacorilant treatment will reduce the time taken to give relief to these patients through Korlym treatment by half.
• ❓Comment adderd to Guest Question: Is Itching Common with Cushing’s Syndrome?
  I itched for a year…it was horrible. Flushed face, high blood pressure…
• ❓Guest Question: Is Itching Common with Cushing’s Syndrome?
  Is itching common with Cushing’s Syndrome? Is it common to feel somewhat good for a day and then have itching, high blood pressure, nausea, flushed red face?
• ❓Guest Question: Vision Issues Post Surgery!
  I have been a recovering Cushings patient for 20 years, I still get all of the vision issues that I had before surgery, it comes and goes, normally last a month or 2 then goes away for a while. Is anyone else having the same issues?
• 📞 Webinar: Oxytocin and Hypopituitarism: A Missing Forgotten Hormone?
  Learning Objectives: 1) Review the functions of oxytocin in humans 2) Describe areas of active research on oxytocin effects 3) Review the relevant oxytocin and hypopituitarism literature
• 📰 Endoscopic Surgery Should Be Standard for Cushing’s Patients with Large Tumors
  When classifying patients by tumor size, however, researchers found that patients with macroadenomas — tumors larger than 10 mm — had higher rates of remission and lower recurrence rates after endoscopic surgery. Patients with microadenomas (tumors smaller than 10 mm) had comparable outcomes with either technique.
• 📰 Etomidate Found Effective in Severe Cushing’s Syndrome
  In April 2017, the patient arrived at the emergency room with sepsis — a potentially life-threatening complication of an infection — that originated in the gut. Because ketoconazole had failed to lower cortisol levels, the patient started receiving infused etomidate, an inhibitor of the enzyme 11‐beta‐hydroxylase that prevents cortisol synthesis. This treatm […]