CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top Picks on the Message Boards updated September 17, 2022
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Osilodrostat normalizes urinary free cortisol in Cushing’s disease for most at 72 weeks
  More than 80% of adults with Cushing’s disease receiving osilodrostat had normalized mean urinary free cortisol levels at 72 weeks of treatment, according to findings from the LINC 3 study extension.
• ℹ️ Basics: Pseudo-Cushing’s syndrome
  Pseudo-Cushing’s syndrome is when symptoms are similar to those of Cushing’s syndrome, but further tests show that the syndrome is not present.
• 👎 Guest Board
  Unfortunately, the Guest Board is closed again due to too much spam :(
• ‼️ Message Board Upgrade (and new features!) Completed Today (Again!)
  Version 4.7.1 This is our September maintenance release. Key Changes include: Improved search bar UI. New ability for topics to be published on a future date.
• ℹ️ Basics: What Causes Abnormal Cortisol Levels?
  “In general, cortisol levels tend to peak in the late morning and gradually decline throughout the day,” he explains. “When a stressful event occurs, the increased cortisol will work alongside our ‘fight or flight’ mechanisms to either upregulate or downregulate bodily functions. [Affected systems include] the central nervous system, cardiovascular system, g […]
• ❓Can You Help? Sudden hearing loss
  I have many symptoms of cushings, I have used cloatasol propionate for about 5 years for my chronic eczema I was on oral steroids in July then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in September it was for sudden hearing loss. Now I need a hearing aid. I seen one place after googling that connects cushi […]
• 🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
  Kandy Klein long-time member of the message boards passed away September 9, 2007.
• 📰 Unmet needs in Cushing’s Syndrome: the Patients
  Cushing’s syndrome (CS) is a rare condition of chronically elevated cortisol levels resulting in diverse comorbidities, many of which endure beyond successful treatment affecting the quality of life. Few data are available concerning patients’ experiences of diagnosis, care and persistent comorbidities.
• 📰 Persistent vs Recurrent Cushing’s Disease Diagnosed Four Weeks Postpartum
  We describe the first report of recurrent Cushing's Disease that was quiescent during pregnancy and diagnosed in the immediate postpartum period. Understanding the risk and mechanisms of CD recurrence in pregnancy allows us to counsel these otherwise healthy, reproductive-age women in the context of additional family planning.
• 📰 Ectopic Adrenocorticotropic Hormone-Secreting Pituitary Adenoma in the Clivus Region: A Case Report
  Ectopic pituitary adenoma (EPA) is a pituitary adenoma unrelated to the intrasellar component and is an extremely rare disease.
• 🖤 In Memory: Ryan Tyler Monds ~ September 4, 2016
  Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.
• 🖤 In Memory: Janice, Tuesday, September 4, 2001
  In Memory of those we have lost. Janice died Tuesday, September 4, 2001. The very first Cushing's Awareness Ribbons were made for, and worn at, Janice's funeral. She had adrenal Cushing's.
• 🖤 In Memory: Edward H. Oldfield, MD, 1947–2017
  Dr. Oldfield was my pituitary surgeon at NIH back in 1987. He saved my life. Ed started as Senior Staff Fellow in the Surgical Neurology Branch at the NIH (1981). After 5 years, Ed would become the Chief of the Surgical Neurology Branch. He would stay on as Branch Chief and lead the neurosurgical effort at the NIH for the next 21 years. During his tenure, he […]
• 🖤 In Memory: Cassandra Dills-Dailey ~ August 29, 2017
  Casey Dailey, age 38, was fighting Cushing's disease, a pituitary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weekend, she began feeling sick. She vomited, sometimes with blood. Then, she couldn't stand or talk, relatives said. A high fever started Sunday, a […]
• 🖤 In Memory: Jessica Lee Pierson, August 29, 2018
  Jessica Lee Pierson, 35, passed away Wednesday, August 29, 2018 from complications of Addison’s disease.
• 📰 Characterization of Adrenal miRNA-Based Dysregulations in Cushing’s Syndrome
  miRNA-based next-generation sequencing was performed in adrenal tissues taken from patients with ACTH-independent cortisol-producing adrenocortical adenomas (CPA), from patients with ACTH-dependent pituitary Cushing’s disease (CD) after bilateral adrenalectomy, and from control subjects.
• ❓Can You Help?
  From my email - I know high blood pressure is quite common with Cushing’s but has anyone who has been diagnosed experienced very low blood pressure?
• 📰 Pasireotide-Induced Shrinkage in GH and ACTH Secreting Pituitary Adenoma
  Pasireotide (PAS) is a novel somatostatin receptor ligands (SRL), used in controlling hormonal hypersecretion in both acromegaly and Cushing’s Disease (CD). In previous studies and meta-analysis, first-generation SRLs were reported to be able to induce significant tumor shrinkage only in somatotroph adenomas.
• 📰 Hypercortisolemic Cushing's Patients Possess a Distinct Class of Hematopoietic Progenitor Cells Leading to Erythrocytosis
  We characterized the phenotype of a large cohort of patients with Cushing’s Disease, a rare condition associated with elevated cortisol levels. Results from hypercortisolemic patients with active Cushing’s were compared with those obtained from eucortisolemic patients after remission and from non-diseased volunteers.