CushieBlog

Cushing’s Help RSS Feed

• 🖤 Comment added to In Memory of Sherry Carlson ~ May 30, 2020
  I am so...so sorry that Sherry had to go through all of this pain. I had surgery to remove a pituitary tumor on February 2, 2021 and going through the challenging recovery stages of Cushing's Disease but certainly not like Sherry's. My condolences to her family.
• 🖤 In Memory of Thomas F. Zachman ~ June 3, 2010
  Thomas “Tommy” F. Zachman, of Windsor, formerly of Toledo, Ohio, died suddenly and unexpectedly at University Hospital in Denver on June 3, 2010, complications of Cushing’s Syndrome.
• ❓Can You Help?
  I think I have Cushing’s I have about 10 symptoms...my cortisol levels came out high with a 24 hour urine hormone panel but my endocrinologist did not even mention it. At the time when I had the test done, (March 2020)I had no idea what cortisol was. I just figured and trusted my endocrinologist would prescribe me with whatever hormones and or treatment I ne […]
• 🖤 Comment added to In Memory of Sherry Carlson ~ May 30, 2020
  Sherry was a gentle hearted soul. We met on the Cushing's Support Message Board run by Mary O nearly two decades ago. She suffered much and all the while offered kindness to those she knew. May her memory be a blessing. Like me Sherry traded Cushing's Disease for Addison's, and she's the latest in a long line of friends and acquaintances […]
• 🖥 Cushing's Slideshow
  Message board member sherryc presented this PowerPoint at pioneer Pacific College. It took a lot of work with her failing memory but she did It! She wanted to get the word out about Cushing's and her journey with this awful disease.
• 🖤 In Memory of Sherry Carlson ~ May 30, 2020
  Sherry passed away, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love and support she’s received over the years.
• 💊 Testing Vitamin B3
  Since I just had Mohs surgery for squamous cell carcinoma, I immediately went to amazon to search for nicotinamide….
• ⭐️ Top PIcks on the Message Boards updated May 29, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 More Gradual Dose Titration Could Reduce Hypocortisolism Risk with Osilodrostat in Cushing's Disease
  Data from LINC3 and LINC4 provide insight into the impact of dosing titration schedules on risk of hypocortisolism-related adverse events associated with osilodrostat use in patients with Cushing's disease.
• ✍️ She thought her weight gain was due to giving birth. She learned it was a tumor
  Hemphill sought a second opinion at Cleveland Clinic Weston, where more MRIs of her brain, combined with an Inferior Petrosal Sinus Sampling (IPSS) procedure, detected she had a tumor on her pituitary gland. That led her to be diagnosed with Cushing’s Disease — caused by excess cortisol.
• 💊 Slow and Steady With Osilodrostat Best in Cushing's Disease
  Acting as a potent oral 11-beta-hydroxylase inhibitor, osilodrostat was first approved by the FDA in March 2020 for adults with Cushing's disease who either cannot undergo pituitary gland surgery or have undergone the surgery but still have the disease. The drug is currently available in 1 mg, 5 mg, and 10 mg film-coated tablets.
• 🩺 In Manchester? New Endocrinology Unit
  These are the conditions which are diagnosed and treated by the clinic’s consultants. Some of the examples include thyroid problems, adrenal nodules, which may lead to Cushing’s syndrome with hypertension, diabetes and osteoporosis; or pituitary nodules, which may lead to pituitary deficiency or cause blindness. Some of these conditions are difficult to diag […]
• ✍️ Comment on Melissa, Pituitary Bio
  Have you had a functional doctor check your B12 levels? B12 deficiency can cause the exhaustion you are experiencing.
• 📰 Metyrapone Effective and Safe in Endogenous Cushing’s Syndrome in Long Term
  Metyrapone is approved in Europe for the treatment of endogenous Cushing’s syndrome. It works by inhibiting the 11-beta-hydroxylase enzyme, the final step in cortisol synthesis.
• 📰 Rapid Control Of Ectopic Cushing's Syndrome During The Covid-19 Pandemic in a Patient With Chronic Hypokalaemia
  In this case report, we describe the management of a patient who was admitted with an ectopic ACTH syndrome during the COVID pandemic with new-onset type 2 diabetes, neutrophilia and unexplained hypokalaemia. These three findings when combined should alert physicians to the potential presence of Cushing’s syndrome (CS).
• ✍️ Joanna, Undiagnosed Bio
  Joanna is from Colorado. She is testing now. Her symptoms are buffalo hump, thin arms and thinner legs, fatigue, extreme leg aching, skin feels like its sunburned, high triglycerides, high cholesterol, weight gain, hair growth on face, the list goes on and on and on.
• 💰Study Opportunity for Cushing's Patients
  This is a 30 min Online Survey and Compensation is $50.00 Sign up at the link below to receive an email invite to the study and see if you qualify https://rarepatientvoice.com/CushingsHelp/
• ✍️ Comment on Michelle (Michelle), Cyclical Cushing’s Bio
  I have a very very similar experience. I’m scheduled to go to the mayo clinic in Minnesota in July. I live in Massachusetts so it’s a major decision but I am desperate. Like you I’m a very active runner, cycler, CrossFit etc. and I just I started progressively gaining weight, so much slowly in the beginning and then more rapidly in a bit in the past year. Od […]
• 📰 What Causes Blood Sugar to Rise in Non-Diabetics?
  People with Cushing’s syndrome are at an increased risk of developing impaired glucose tolerance and hyperglycemia as a result of increased levels of cortisol throughout the body… Approximately 10% to 30% of people with Cushing’s syndrome will develop impaired glucose tolerance, while 40% to 45% will develop diabetes.
• 🎥 Pituitary Tumors and Treatments
  Pituitary tumors start in the pituitary gland. They’re usually benign (not cancerous) and rarely spread to other parts of the body. Dr. Borghei-Razavi discusses pituitary tumors and treatments through minimally invasive surgical approaches offered at Cleveland Clinic Florida.