CushieBlog

Cushing’s Help RSS Feed

• ❣️The Message Boards Turn 20 Today! ❣️
  Today  is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) As of today, we have 73,024 members who have made countless posts.
• ⭐️ Top PIcks on the Message Boards updated September 28, 2020
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 🖤 In Memory: Bettye Jean Douglas, September 28, 2016
  Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed, a decision was made against surgery and Bettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease, as many patients do, she rapidly lost weight and was admitted into hospice care soon after.
• 🖤 In Memory: Joanne Swain
  Joanne was known on the boards as raggettyjoanne. Mario VandDermeij announced the passing of his loving wife of 23 years. Joanne Swain VanDermeij at the age of 56. After 2 years and 3 months of fighting the system, Joanne was finally diagnosed March the 14th, 2011, with full blown adrenal Cushing's.
• 📞 Webinar: Recurrent Pituitary Adenomas – What are the options?
  Learning objectives: -          the basic characteristics of the different types of pituitary adenomas -          the potential predictors of recurrence and aggressiveness in pituitary adenomas -          the surgical and radiotherapy options for recurrent pituitary adenomas -          the potential medical interventions, including chemotherapy, for recurren […]
• ✍️ Comment on Matt, Undiagnosed Bio
  By the way, I know these symptoms very well. Ever heard of chiari malformation? This can also be responsible for your endocrine trouble. Talk to an neurologist and try to get an mri of your skull done.
• 💉 CLINICAL TRIALS | Awareness Project
  Everyone who has taken part in a clinical trial is asked to share. We are interested in learning why you decided to take part in a clinical trial and how your experience went.
• ‼️ Message Board Upgrade (and new features!) Today (September 23, 2020)
  It's going to look a little different but please let me know if anything is not working properly. 
• ✍️ Comment added to Rachel, Undiagnosed Bio
  Thanks for your comment. Wow, I never knew low progesterone caused diarrhea. That’s good to know. I haven’t had my progesterone checked in years. That’s interesting you mention stuff related to the thyroid, as I have thyroid issues, too, that I just recently found out. My blood tests show high T4 and normal T3...
• 📰 Corticotroph hyperplasia and Cushing disease: diagnostic features and surgical management
  This study was done to compare corticotroph hyperplasia and histopathologically proven adenomas in patients with Cushing disease by analyzing diagnostic features, surgical management, and clinical outcomes.
• 📞 Webinar: Expect more from pituitary surgery: difference-makers for post-operative outcomes
  Learning objectives: 1.  To understand the surgical steps of endoscopic pituitary surgery 2.  To understand how the surgical steps of endoscopic pituitary surgery translate to post-operative outcomes 3.  To understand surgical factors that can modify post-operative outcomes after endoscopic pituitary surgery 4.  To understand post-operative care that can mod […]
• ✍️ Comment added to Rachel, Undiagnosed Bio
  I am not a doctor, but I have almost the exact issues as well. Doctors “diagnosed” me with ibs-d, as that is the most obvious symptom, but the others are all true as well. I gave up on doctors about 10 years ago, and started doing my own research and self-experimentation. I discovered that I sometimes have high testosterone, and usually have extremely high d […]
• 📰 No Increased COVID-19 Risk With Adequately Treated Adrenal Insufficiency
  Tthere is no evidence that COVID-19 has a more severe course among individuals with primary and secondary adrenal insufficiency; however, those with adrenal insufficiency are at increased risk for respiratory and viral infections, and patients experiencing major inflammation and fever are at risk for life-threatening adrenal crisis.
• 📰 LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels
  If approved, Recorlev could be available to patients in the U.S. in 2022. “We are delighted to announce the positive and statistically significant top-line results of the LOGICS study, which add to the growing body of evidence supporting the potential of Recorlev (levoketoconazole) as an effective and well tolerated cortisol synthesis inhibitor to treat Cush […]
• 📰 Study Shows Metyrapone Effective for Treating Rare Cushing’s Syndrome
  Frederique Welgryn, Managing Director of HRA Pharma Rare Diseases, added: “Cushing’s Syndrome is a chronic disease that can lead to deterioration in patients’ conditions if not treated appropriately. We are thrilled to announce that this first prospective study verifies that metyrapone is both an effective and safe way to treat endogenous Cushing’s Syndrome. […]
• ✍️ Comment added to High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism
  Thanks for sharing this Mary. This encourages me even more that I might be on the right track in my belief that I am able to control my cortisol levels through not eating starchy foods. Starch transforms into sugar. I am saying the source of the problem is starch before it even reaches the sugar stage...
• 📰 High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism
  Abnormally high levels of cortisol in the urine — one of the hallmarks of Cushing’s syndrome — seem to be associated with alterations in blood sugar metabolism in obese patients, a study found.
• 🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
  Kandy Klein long-time member of the message boards passed away September 9, 2007.
• 📰 New Cushing’s Saliva Test Does Not Meet Standard Methods
  Late-night salivary cortisol (LNSC) measured by enzyme immunoassay (EIA-F) is a first-line screening test for Cushing’s syndrome (CS) with a reported sensitivity and specificity of >90%. However, liquid chromatography-tandem mass spectrometry, validated to measure salivary cortisol (LCMS-F) and cortisone (LCMS-E), has been proposed to be superior diagnost […]
• 📰 WP Thyroid and Nature-Throid recall-August 2020
  Dr. Friedman prescribes various thyroid hormone preparations to his patients with hypothyroidism. This includes natural desiccated thyroid (NDT) of which two preparations are WP Thyroid and Nature-Throid, both made by RLC Labs. On August 25, 2020, RLC Labs announced a voluntary, consumer-level recall of all lots of Nature-Throid and WP Thyroid tablets becaus […]