CushieBlog

Cushing’s Help RSS Feed

• 📞 Pituitary Support Meeting
  From group leader Sharmyn McGraw: Hi All, I hope you can join us on Zoom this Saturday, Nov. 14, 2020 starting at 9:00 a.m. (PST). For those that can't make it, I will record the meeting and post it later on our Facebook page. I look forward to seeing you!
• ⭐️ Top PIcks on the Message Boards updated November 7, 2020
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• ✍️ Comment on Kelsey G (kelcann44), Undiagnosed Bio
  I have been struggling for years with blood and urine tests coming back just under the threshold for a definitive diagnosis of Cushings. And when I ask for a repeat test I get hit with questions like “what makes you think you have cushings?” when the original idea came from a rheumatologist. Very frustrating!
• 📞 Cushing's Disease Study
  We have an opportunity for you to take part in a Cushing's Disease study (IPS_4636) for Patients. Our project number for this study is IPS_4636.
• 📰 Earwax may reveal how stressed you are
  A new method of collecting and analyzing earwax for levels of the stress hormone cortisol may be a simple and cheap way to track the mental health of people with depression and anxiety. Cortisol is a crucial hormone that spikes when a person is stressed and declines when they're relaxed. In the short-term, the hormone is responsible for the "fight […]
• ‼️ Message Board Upgrade (and new features!) November 7, 2020
  It's going to look a little different but please let me know if anything is not working properly.
• 🖤 In Memory: Erin Lee Rechel Pugh
  Erin was from Canton, Ohio and several other Cushies met her at local meetings. She was 35 when she died.
• 🖤 In Memory of Stacy Ollenberger ~ November 4, 2015
  Stacy had two pituitary surgeries, radiation and an adrenalectomy. She died of an adrenal crisis on November 4, 2015.
• ✍️ MaryO: Adapted From 40 Days of Thankfulness
  I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now. Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do web design, how to navigate NIH. It taught me patience, how to make ph […]
• ✍️ MaryO, 33rd Pituitary Surgery Anniversary
  Today is the anniversary of MaryO's pituitary surgery at NIH in 1987. Today is the 33rd anniversary of my pituitary surgery at NIH. As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
• ✍️ Comment on Kristin T, Undiagnosed Bio
  You mentioned your testosterone is on point but also have ovaries? I’m confused
• 📰 Hydrocortisone in Granule Form Effectively Treats Childhood Adrenal Insufficiency
  The researchers concluded that “hydrocortisone granules are an effective treatment for childhood adrenal insufficiency providing the ability to accurately prescribe pediatric appropriate doses.”
• 🖤 In Memory: Barbara "Cookie" Rothenberg, October 11, 2003
  Cookie died October 11, 2003. She had a pituitary tumor, recurrence, BLA, PCOS, radiation... Cookie touched a lot of lives. I would get these perky, cheerful and witty emails. It is terrible to lose her. She has left such a legacy, though, that she will go on touching lives for many years to come. She loved people and wanted to make a difference in the lives […]
• ❓Can You Help? Buffalo Hump
  Hi I recently became aware of my possible buffalo hump after xrays of my neck were normal except for a fat pad at the base of my neck. After reading of some of the symptoms of Cushings it was a light bulb moment with so many symptoms being similar to what I’m going through. 
• ✍️ Comment on Comment on Leah (Lele), diagnosed Bio
  i have been on high doses of prednisone for over a year and have all the symptoms of exogenous cushing syndrome but have been made to feel like i;m going mad. they have not diagnosed me as having this. i get so depressed with the pain sometimes and feel like they are only interested in the original condition not the side effects.
• ❣️Comments added to The Message Boards Turn 20 Today! ❣️
  Comments from Facebook :)
• ❣️Comments added to The Message Boards Turn 20 Today! ❣️
  Comments from Facebook :)
• 🎬 Video: Happy Girl tells her Story So Far
  Happy Girl writes: I am not so great at typing since my mind gets so jumbled but I have been at this journey for 2 years. I did make a detailed youtube video to tell my story so far
• 🏞 One New Cushie added to the Cushing's MemberMap
  Matt was diagnosed with Stage 2 small cell lung cancer causing high levels of Cortisol, low testosterone and thyroid. He is from Liverpool, England.
• ✍️ Matt (MattHill), Ectopic Cushing's
  Matt was diagnosed with Stage 2 small cell lung cancer causing high levels of Cortisol, low testosterone and thyroid. He is from Liverpool, England.