CushieBlog

Cushing’s Help RSS Feed

• 🦓 Day 15, Cushing’s Awareness Challenge 2021
  Today’s Cushing’s Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing’s. I think it is, either directly or indirectly.
• ⭐️ Top PIcks on the Message Boards updated April 15, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 🖤 Cushing Death Rate 'Unacceptable,' Triple That of General Population
  Excess mortality among people with endogenous Cushing syndrome (CS) has declined in the past 20 years yet remains three times higher than in the general population, new research finds. Among more than 90,000 individuals with endogenous CS, the overall proportion of mortality ― defined as the ratio of the number of deaths from CS divided by the total number o […]
• 🦓 Day 14, Cushing’s Awareness Challenge 2021
  Way back when we first got married, my husband thought we might have a big family with a lot of kids. He was from a family of 6 siblings, so that’s what he was accustomed to. I am an only child so I wasn’t sure about having so many. I needn’t have worried...
• 🎤 Archived Interview with Jayne, Ectopic Cushing’s Patient
  Mary O’Connor (MaryO) hosted an interview with Jayne, a Cushing’s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing’s.
• 📞 Webinar: Updates on Treating Hypothyroidism
  On Sunday, April 25 Dr. Theodore Friedman will host a webinar on Hypothyroidism and treatment options.
• 🦓 Day 13, Cushing’s Awareness Challenge 2021
  Cushing’s Conventions have always been special times for me – we learn a lot, get to meet other Cushies, even get referrals to endos! As early as 2001 (or before) my pituitary function was dropping. My former endo tested annually but did nothing to help me with the symptoms.
• 🦓 Day 12, Cushing’s Awareness Challenge 2021
  As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing’s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a […]
• 🎤 Archived Interview: Cushing’s Diagnosis and Symptoms, part 2
  Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.
• 🦓 Day 11, Cushing’s Awareness Challenge 2021
  Blue and Yellow – we have those colors on ribbons, websites, T-shirts, Cushing’s Awareness Challenge logos and even cars.
• ✍️ Shea S (Shea), Undiagnosed Bio
  Shea is from Grass Valley, CA. She is a a 54-year-old woman who over the past two years has developed a buffalo hump and gained 60 pounds.
• 🦓 Kind Words for Cushing’s Awareness Month
  Through the newly available dial-up internet, I joined forces with a small group of wonderful Cushing’s advocates. Cathy Gifford and Mary O’Connor, were my first Cushing’s friends, and are still dear friends twenty one years later. Together we got things moving. Mary, has built the largest Cushing’s support boards, and her admirable dedication continues to h […]
• 🦓 Day 10: Cushing’s Awareness Challenge 2021
  This one is so easy. I’ve said it a thousand times – you know your own body better than any doctor will. Most doctors have never seen a Cushing’s patient, few ever will in the future. If you believe you have Cushing’s (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take […]
• ⁉️ Cushing’s Myths and Facts: “All types of Cushing’s are the same”
  There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on...
• 🎤 Archived Interview: JenS discussed Bilateral Adrenalectomy (BLA)
  Jen had Pituitary surgery by Dr. Shahinian 4/28/04, removed ACTH secreting corticotroph hyperplasia and prolactinoma.
• 🦓 Day 9: Cushing’s Awareness Challenge 2021
  Uh, Oh – I’m nearly a day late (and a dollar short?)…and I’m not yet sure what today’s topic will be. I seem swamped by everything lately, waking up tired, napping, going to bed tired, waking up in the middle of the night, starting all over again…and the coronavirus which makes everything more hectic, stressful and tiring.
• 🦓 From a Past Blogging Challenge
  I remember the moment I realized something wasn’t right. My mom was taking me to the mall, because none of my jeans fit me anymore. She was talking about how she wished I would try to lose weight, because she has been overweight most of her life, and didn’t want that for me. But, I needed pants to wear to school, so I bought another size up. I remember think […]
• 🦓 Day 8: Cushing’s Awareness Challenge 2021
  Today, April 8th, is Cushing's Awareness Day. Please wear your Cushing's ribbons, t-shirts, awareness bracelets or Cushing's colors (blue and yellow) and hand out Robin’s wonderful Awareness Cards to get a discussion going with anyone who will listen. And don’t just raise awareness on April 8. Any day is a good day to raise awareness.
• ⁉️ Cushing’s Myths and Facts: Cushing's Syndrome/Disease can be healed or cured
  Myth: Cushing's Syndrome/Disease can be healed or cured through change in diet or exercise.
• 🎤 Archived Interview with Mary O’Connor aka MaryO, Cushings-Help.com founder
  As part of this year’s Cushing’s Awareness Challenge, I’ve decided to share our Interview Series again since there was lots of great info in there... Interview with Mary O’Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted.