YOUR Vote Matters to the Rare Community!



It’s that time of year again, when the rare disease community looks amongst themselves to identify and nominate agents of change, agents of innovation, and individuals who are working tirelessly on behalf of those affected by one of the 7,000 rare diseases impacting over 350 million people worldwide.

Rare disease activists come from many different disciplines and are usually not recognized for the good work that they are doing. This is our opportunity as a community to come together to celebrate and honor those who are setting higher standards, making significant changes and fearlessly attacking challenges differently.

Join Global Genes in recognizing these incredible individuals by nominating your Champion of Hope today.

All nominees will receive a special recognition gift, and those who win, will be asked to join us in Southern California in September at the Tribute To Champions of Hope Gala. Winners must be available Friday, September 25 and Saturday, September 26.


We are looking to YOU to nominate individuals and organizations who are making a difference in the Rare Disease Community!


The 2015 Community Nominated Awards 

for the Tribute to Champions of Hope Gala are until April 30th!  


 The six nomination categories are:


·         RARE Champion in Medical Care & Treatment

·         RARE Champion in Science

·         RARE Champion in Advocacy

·         RARE Champion in Teen Advocacy

·         RARE Champion, Collaborations in Advocacy

·         RARE Champion, Collaborations in Science & Technology

For more details on each award, please click here.

Nominations close on April 30th.  Awards will be determined by nominees’ merit, not by number of submissions.

 Nominate here


The 2015 Tribute to Champions of Hope Gala will take place September 26th at the Hyatt Regency Resort & Spa in Huntington Beach, CA. Winners will also be expected to attend an afternoon ceremony on September 25th.


Please email any questions or comments to Amy at


Global Genes is a 501(c)(3) nonprofit organization advocating for rare disease globally.

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