CushieBlog

Cushing’s Help RSS Feed

• 🖤 In Memory: Kate Myers, June 23, 2014
  Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
• ⭐️ Top PIcks on the Message Boards updated June 22, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Bradley Javorsky, MD, on a New Cortisol Cutoff for Adrenal Insufficiency Diagnosis
  With the goal of reducing false positives for adrenal insufficiency (AI), scientists are recommending a new, more precise diagnostic cutoff of 14-15 μg/dL of serum cortisol, rather than the current 18 μg/dL.
• ❓Can You Help? Connecticut Doctor
  I am trying to find a doctor for my mom. She is located in Monroe, CT. Would prefer someone in Fairfield or New Haven county, but I am willing to drive further if necessary.
• 🖤 In Memory of Diana Crosley ~ June 18, 2014
  Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. She was a long-time Cushie who'd had a BLA at the NIH in 2002
• 📰 Hydrocortisone Autoinjector
  The ZENEO autoinjector is a revolutionary delivery system, and this product is a terrific strategic fit with our current adrenal insufficiency business. Patients, advocacy groups, and physicians in the adrenal insufficiency community have repeatedly expressed to us the need for a hydrocortisone autoinjector, so we are excited to be partnering with Crossject […]
• 💻 Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th
  2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our […]
• 🖤 In Memory of Sarah Fraik ~ June 13, 2011
  Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
• ✍️ Comment added to Amy (Amybtru), Pituitary/Adrenal Bio
  I have been ill for years & years. Was diagnosed Cushing’s Syndrome in 2010 but now I know what I’m looking for I can honestly say I’ve had bouts of it since childhood.
• ✍️ Amy (Amybtru), Pituitary/Adrenal Bio
  Amy is from Michigan. She has a great many symptoms, a pituitary microadenoma, an 8 1/2 mm nodule on the adrenal gland and her left kidney has a some type of cyst on the superior pole.
• ❓Can You Help? California Doctor
  I’m looking for good doctor in Orange County California. Southern California.
• ❓ Can You Help? Adult Daughter
  Hi, It's important to respect mother/adult child boundaries, and I am careful about how I interact with my beautiful daughter so that she does not think I am criticizing her, but I'm very worried. She is presenting what is listed as classic Cushing's symptoms. We have a family history of pituitary problems.
• ❓ Can You Help? Testing Soon
  I am very interested in learning everything about Cushings. I hope to be tested soon.
• ✍️ Comment added to Shea S (Shea), Undiagnosed Bio
  I am 53 and have many of the same symptoms. Almost no eyebrows or eyelashes and now I am becoming bald. I have a huge belly, diabetes, heart failure and high blood pressure. Plus so many other symptoms. My endocrinologist wants to run more and more tests but I am afraid I am running out of time.
• ✍️ Comment added to Shea S (Shea), Undiagnosed Bio
  I am 53 and have many of the same symptoms. Almost no eyebrows or eyelashes and now I am becoming bald. I have a huge belly, diabetes, heart failure and high blood pressure. Plus so many other symptoms. My endocrinologist wants to run more and more tests but I am afraid I am running out of time.
• 🧂SaltStick Fastchews, Electrolyte Replacement Tablets for Rehydration
  I take the SaltStick in the green bottle (my endo knows) and I always have some in a container on my keychain - along with a container for extra cortef and one for Tylenol. It's a heavy keychain!
• 📰 Prevalence of Nelson’s Syndrome After Bilateral Adrenalectomy in Patients with Cushing’s Disease
  Bilateral adrenalectomy (BA) still plays an important role in the management of Cushing's disease (CD). Nelson’s syndrome (NS) is a severe complication of BA, but conflicting data on its prevalence and predicting factors have been reported. The aim of this study was to determine the prevalence of NS, and identify factors associated with its development. […]
• 📰 Osilodrostat Improves Signs and Symptoms Associated With Cushing Disease
  Osilodrostat therapy was found to be effective in improving blood pressure parameters, health-related quality of life, depression, and other signs and symptoms in patients with Cushing disease, regardless of the degree of cortisol control, according to study results presented at the 30th Annual Scientific and Clinical Congress of the American Association of […]
• 🖤 Comment added to In Memory of Sherry Carlson ~ May 30, 2020
  I am so...so sorry that Sherry had to go through all of this pain. I had surgery to remove a pituitary tumor on February 2, 2021 and going through the challenging recovery stages of Cushing's Disease but certainly not like Sherry's. My condolences to her family.
• 🖤 In Memory of Thomas F. Zachman ~ June 3, 2010
  Thomas “Tommy” F. Zachman, of Windsor, formerly of Toledo, Ohio, died suddenly and unexpectedly at University Hospital in Denver on June 3, 2010, complications of Cushing’s Syndrome.