CushieBlog

Cushing’s Help RSS Feed

• ✍️ EvE7070, Pituitary Bio
  EvE7070 is from Tucson, Az.USA She was finally diagnosed with Cushing's 2015
• 💉 New Helpful Doctor added to Oregon
  Dr. Marie Fleseriu
• ✍️ Louise, Updated Adrenal Bio
  Louise is from Portland, OR. She has ACTH independent bilateral adrenal hyperplasia.
• ✍️ Gina, Pituitary Bio
  Gina is from Illinois. She has a PCOS and I have a 2mm pituitary microadenoma Some salivas high most are normal. I went to Dr. Findling and he was beyond rude and a waste of time. I need a doctor close to Illinois.
• 👥 Ohio State Pituitary Patient Symposium 2019
  Saturday, Sept 14, 2019 7:30am – 4:00pm Please join the Pituitary Network Association and The Ohio State University for a Pituitary Patient Symposium featuring a series of pituitary and hormonal patient education sessions presented by some of the top physicians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date informati […]
• ✍️ Wendy I, Pituitary Bio
  Wendy is from Grand Rapids MI. She is newly diagnosed (5/2019) with a pituitary tumor, waiting for appointment at the University of Michigan on 9/26.
• 🏞 Two New Cushies added to the Cushing's MemberMap
  Amy G is from Ogden, Utah and Kendra is from Calgary, AB, Canada
• ✍️ Kendra D, Adrenal Bio
  Kendra is from Calgary, AB, Canada.. Her issues started with a left adrenal gland in 2014. She hopes to have an adrenalectomy soon.
• 📞 Webinar: Update on the Management of Cushing's Disease
  Learning Objectives: Describe the signs and symptoms of Cushing's Disease Describe the work up for patients with Cushing's Disease Understand the goals, risks, and expected outcomes for treatment Describe alternative treatments when surgery is not curative.
• ✍️ Amy G, Cyclical Cushing's Bio
  Amy G is from Ogden, Utah.. She has been diagnosed with Cyclical Cushings Disease with Empty Sella Turcia. 1/4 sized damaged pituitary. She also rare complications with my Cushings Disease.  I am having trouble finding the right doctors in Utah
• ⭐️ Top PIcks updated August 3, 2019
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 📰 Recovery of HPA Axis Can Occur Late After Transsphenoidal Adenomectomy
  Recovery of the hypothalamus-pituitary-adrenal (HPA) axis can occur as late as 12 months after transsphenoidal adenomectomy (TSA), according to study results published in The Journal of Clinical Endocrinology & Metabolism. These findings emphasize the need to periodically assess these patients to avoid unnecessary hydrocortisone replacement.
• ✍️ Taylor D, Pituitary Bio
  Taylor is from Florence SC.. She was a healthy young adult when she started as a student at the University of South Carolina in the fall of 2015, but soon into her college career, she began experiencing several symptoms, such as weight gain, insomnia and panic attacks. Davis spent the next three years going from doctor to doctor trying to get a diagnosis for […]
• ✍️ Comment added to❣️We're 19 Years Old Today❣️
  t's incredible to think how far things have come since then and that the boards have been around that long. I can't even imagine trying to get diagnosed almost two decades ago. Thanks for creating and providing an invaluable resource for so many years.
• 📞 Webinar: Approaches for Pituitary Surgery
  Dr. Theodore Friedman hosts Gautam Mehta, MD for a fascinating webinar on Approaches for Pituitary Surgery Dr. Mehta is a neurosurgeon specializing in pituitary surgery at the House Clinic in Los Angeles. He was trained by Ian McCutcheon, MD and Ed Oldfield, MD
• ❣️We're 19 Years Old Today❣️
  It’s unbelievable but the idea for Cushing's Help and Support arrived 19 years ago last night. That’s a long time for anything online..... The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life! […]
• ✍️ Kim H, Ectopic Bio
  Kim H is from Grays, UK. She has ectopic Cushing's but nearly 16 years later the ectopic source has never been found despite many more tests. It is still there because it still produces ACTH. Update May 2007: The ectopic source was in Kim's appendix. After testing, it was found to be a carcinoid tumour.
• 📰 Researchers Report Rare Case of Cushing’s Caused by Bilateral Adrenal Tumors
  Cases of adrenocorticotropic hormone (ACTH)-independent Cushing’s syndrome are often caused by unilateral tumors in the adrenal glands, but Indian researchers have now reported a rare case where the condition was caused by tumors in both adrenal glands.
• ✍️ Comment on Why It's Safer Than Ever To Remove Pituitary Tumors
  I had Cushings disease and was fortunate to have my transphenoidal surgery with Dr Edward Laws as my surgeon and Dr Laurence Katznelson as my endocrinologist At Stanford University Med center. It’s a horrible disfiguring disease. I’m so grateful it’s getting more press coverage and that more doctors are becoming aware of it. I suffered over10 years with no d […]
• 🎬 Video: Taylor Davis spreads awareness about Cushing's Disease
  21-year-old Taylor Davis, spent nearly three years battling a mysterious illness called Cushing’s Disease. “I could barely walk to class anymore. I was in pain. I gained like 70 pounds, despite extreme dieting and exercising,” said Davis.