CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top PIcks on the Message Boards updated July 31, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Cushing’s Disease Presenting with Psychosis
  We present a young woman with 3 weeks of headaches and cognitive disturbance who subsequently developed florid psychosis requiring multiple admissions under neurology and psychiatry.
• ❣️Happy 21st Birthday Cushing’s Help! ❣️
  It’s unbelievable but the idea for Cushing’s Help and Support arrived 21 years ago late last night. I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren’t many support groups online (OR off!) for Cushing’s and I wondered if I could start one myself and we decided that I could.
• ⚠️ Covid info from Dr. Theodore Friedman (Dr. F)
  Statistics are that people who are vaccinated have a 1:1,000,000 chance of dying from COVID, while people who are unvaccinated have a 1:500 chance of dying from COVID.  I think most people would take the 1:1,000,000 risk.  Dr. Friedman has always been a proponent of the COVID-19 vaccine because he is a scientist and bases his decisions on peer-reviewed liter […]
• ✍️ Why Did I Stop Sleeping?
  An article on pituitary Cushing's from Prevention magazine.
• 📰 Patient and Provider Perspectives on Postsurgical Recovery of Cushing Syndrome
  Poor communication between physicians and CS patients may contribute to dissatisfaction with the postsurgical experience. Increased information on recovery, including helpful coping mechanisms, and improved provider-physician communication may improve HRQOL during recovery.
• 🖤 In Memory: Kassey Whiterock, June 30, 2016
  Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.
• 🖤 In Memory: Kalyn Allen, June 28, 2017
  Kalyn was only 41 when she died on June 28, 2017. She had recently had pituitary surgery.
• 🖤 In Memory: Kate Myers, June 23, 2014
  Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
• 📰 Bradley Javorsky, MD, on a New Cortisol Cutoff for Adrenal Insufficiency Diagnosis
  With the goal of reducing false positives for adrenal insufficiency (AI), scientists are recommending a new, more precise diagnostic cutoff of 14-15 μg/dL of serum cortisol, rather than the current 18 μg/dL.
• ❓Can You Help? Connecticut Doctor
  I am trying to find a doctor for my mom. She is located in Monroe, CT. Would prefer someone in Fairfield or New Haven county, but I am willing to drive further if necessary.
• 🖤 In Memory of Diana Crosley ~ June 18, 2014
  Diana Lynn Alexander Crosley, age 58, of Sidney, passed away peacefully on Wednesday, June 18, 2014, at 10:10 p.m. at her residence surrounded by her loving family. She was a long-time Cushie who'd had a BLA at the NIH in 2002
• 📰 Hydrocortisone Autoinjector
  The ZENEO autoinjector is a revolutionary delivery system, and this product is a terrific strategic fit with our current adrenal insufficiency business. Patients, advocacy groups, and physicians in the adrenal insufficiency community have repeatedly expressed to us the need for a hydrocortisone autoinjector, so we are excited to be partnering with Crossject […]
• 💻 Living Rare Living Stronger ~ Nord® Patient and Family Forum June 26-27Th
  2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to engage with our community and our […]
• 🖤 In Memory of Sarah Fraik ~ June 13, 2011
  Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
• ✍️ Comment added to Amy (Amybtru), Pituitary/Adrenal Bio
  I have been ill for years & years. Was diagnosed Cushing’s Syndrome in 2010 but now I know what I’m looking for I can honestly say I’ve had bouts of it since childhood.
• ✍️ Amy (Amybtru), Pituitary/Adrenal Bio
  Amy is from Michigan. She has a great many symptoms, a pituitary microadenoma, an 8 1/2 mm nodule on the adrenal gland and her left kidney has a some type of cyst on the superior pole.
• ❓Can You Help? California Doctor
  I’m looking for good doctor in Orange County California. Southern California.
• ❓ Can You Help? Adult Daughter
  Hi, It's important to respect mother/adult child boundaries, and I am careful about how I interact with my beautiful daughter so that she does not think I am criticizing her, but I'm very worried. She is presenting what is listed as classic Cushing's symptoms. We have a family history of pituitary problems.
• ❓ Can You Help? Testing Soon
  I am very interested in learning everything about Cushings. I hope to be tested soon.