CushieBlog

Cushing’s Help RSS Feed

• 📰 Blood Lipid Levels Linked to High Blood Pressure in Cushing’s Disease Patients
  In children and adults with Cushing’s syndrome, the relationship between increased cortisol levels and higher blood pressure has also been reported. Patients with Cushing’s syndrome may remain hypertensive even after surgery to lower their cortisol levels, suggesting their hypertension is caused by changes in blood vessels.
• 🎤 Archived Interview with Donna Sellers, Mother of a Cushing’s patient
  Donna Sellers, President, John’s Foundation for Cushing’s Awareness, mother of a Cushing’s patient.
• 🦓 Day 25: Cushing’s Awareness Challenge 2018
  I’ll never know if that hit on my head contributed to my Cushing's but I have seen several people mention on the message boards that they had a traumatic head injury of some type in their earlier lives.
• ⁉️ Myths and Facts about Cushing’s: “You should be all better by now!”
  Fact: However, in the case of the chronically ill, a different cycle occurs. In the chronically ill, the person loses his normal health. He goes through a period of treatment and sometimes recovers... Read more at https://cushieblogger.com/2017/04/24/myth-you-should-be-all-better-by-now/
• 🎤 Dr. Dori Middleman, Pituitary Cushing’s Survivor
  Dr. Dori Middleman is a Psychophamacologist, Certified Gestalt Psychotherapist and Cushing’s Patient. She has had both pituitary surgery and two gamma knife radiosurgeries.
• 🦓 Day 24: Cushing’s Awareness Challenge 2018
  Today’s Cushing's Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing's. I think it is, either directly or indirectly.
• 🎤 Interview with Heather S, Pituitary Cushing’s Survivor
  Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM
• 🦓 Cushing’s Awareness Ribbon Stickers are Here
  A long-time member of the Cushing’s Help message boards, AutumnOMA , gave me permission to share info about these wonderful Cushing’s Awareness Stickers she has made
• ⁉️ Myths and Facts about Cushing’s: “Each Person Requires the Same Dose of Steroid in Order to Survive…
  Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand th […]
• 🎤 Archived Interview with Leslie, Pituitary Cushing's survivor
  Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.
• ⁉️ Myths and Facts about Cushing’s: “All Cushing’s patients have the exact same symptoms"
  Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not...
• 🎤 Archived Interview with Jackie (samsmom) and Jordan
  Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s ol […]
• 🎤 Archived Interview with FerolV, pituitary survivor
  Ferol started noticing irregular symptoms in her late 20’s, but more developed since 2001, and rapidly more chronic as time went by. Finally, at her March 2005 physical, she had enough symptoms listed for her GP to start getting the connection to Cushing’s...
• ⁉️ Myths and Facts about Cushing’s: “Men1 and Men2 are the only genetic causes of Cushing’s”
  This is a Myth. More current research has explored multiple etiologies of Cushing’s. It was once thought that heredity had no influence on the development of Cushing’s Syndrome/Disease and our knowledge was once limited in this sense.
• 🎤 Archived Interview with Monica, pituitary survivor
  Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.
• ⁉️ Comment added to Myths and Facts about Cushing’s: UFC’s are the Gold Standard for Cushing’s testing
  I was diagnosed with ACTH independent cyclical cushings. It took 5 years to get a diagnosis.....
• 🦓 Day 23: Cushing’s Awareness Challenge 2018
  I have seen this image several places online and it never ceases to crack me up. Sometimes, we really have strange things going on inside our bodies.
• 🦓 Day 22: Cushing’s Awareness Challenge 2018
  In 1986 I was finally diagnosed with Cushing's after struggling with doctors and trying to get them to test for about 5 years. I was going to go into the NIH (National Institutes of Health) in Bethesda, MD for final testing and then-experimental pituitary surgery. I was terrified and sure that I wouldn’t survive the surgery.
• ✍️ Comment added to Roxanna (Dawn), Undiagnosed Bio
  I definitely know how you feel. My MRI confirmed a Pituitary Tumor 13x16mm (benign/macroadenoma). Just got officially diagnosed last week.
• 🎤 Archived Interview with Steve Owens, adrenal patient
  Steve was diagnosed with HyperBeta Adrenergic Syndrome in August, 2005. Doctors thought he might have a pheo, now they’re checking for ACC cancer. Steve also has a newspaper article written about him. Steve’s daughter may also have Cushing’s.