CushieBlog

Cushing’s Help RSS Feed

• ✍️ MaryO – 13 Years Cancer-Free!
  Today is the Thirteenth Anniversary of my kidney cancer surgery. These thirteen years have been bonus years for me. For my cancer stage, the 5-year survival rate was 81% and I’ve made it more than twice that long – so far.
• 🎤 Archived Interview: Kathy C, Pituitary Patient
  Kathy was diagnosed with a pituitary tumor in 1991. At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy for 23 days. They said they could not remove all of the tumor.
• 🖤 In Memory: Melinda Smith 1988-2014
  Sadly, we lost another Cushing’s patient on Friday, May 9, 2014. Melinda was a member of the Cushing’s Help message boards since Jun 24, 2007. She was only 25 and left behind a young son and many loving family members.
• ⭐️ Top PIcks updated May 8, 2019
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 📰 Metoclopramide Can Mask Adrenal Insufficiency After Gland Removal in BMAH Patients
  Metoclopramide, a gastrointestinal medicine, can increase cortisol levels after unilateral adrenalectomy — the surgical removal of one adrenal gland — and conceal adrenal insufficiency in bilateral macronodular adrenal hyperplasia (BMAH) patients, a case report suggests...BMAH is a subtype of adrenal Cushing’s syndrome, characterized by the formation of nodu […]
• 👥 Stanford Pituitary Patient Education Day May 18, 2019
  The Stanford Pituitary Center invites patients with pituitary disease, their family and friends to Stanford's Pituitary Patient Education Day! May 18, 2019 at the Sheraton Palo Alto Hotel625 El Camino RealPalo Alto, CA 94301 USA
• 🖤 In Memory: Gregory J. Bart Jr., 2016
  He died of a presumed heart attack. September 19, 2015 he said "'I was diagnosed hypertensive way back when I was 20. The condition remained for years, and became more acute with my cushings pit tumor. I still have high blood pressure, partially teated with three meds. I'll have to consult my doc and see if this may also be an issue."
• 🎈 Birthday - In Memory: Shianne Lombard-Treman, March 28, 2018
  Shianne's name is in the message boards birthday section today. Shianne was a Cushing's Survivor who had just published a book, Be Your Own Doctor. She was 41.
• ✍️ Comment added to Deborah S, Undiagnosed Bio
  I am having the exact same thing (symptoms, test results and Dr. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis?
• 🖤 In Memory: Patti, May 2, 2002
  From the Message Boards: ” I loved her, she was a great friend. She died of adrenal cortical carcinoma.”
• 🖤 In Memory: Kathryn McBride ‘Bridie’ Miller, May 1, 2007
  'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and sh […]
• 🎤 Archived Interview: Robin (staticnrg) and Mary O’Connor (MaryO) Discussed Spreading the Word about Cushing’s
  Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing’s Patients.
• 🦓 Day 30: Cushing’s Awareness Challenge 2019
  Today is the final day of the Cushing's Awareness Challenge and I wanted to leave you with this word of advice…
• ‼️ Message Board Upgrade Coming This Weekend
  Please let me know if anything is not working properly.  I was surprised how smoothly it went...and the skin still works!
• 🎤 Archived Interview: Kate (Fairley)
  Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.
• 🦓 Day 29: Cushing’s Awareness Challenge 2019
  For all of my early life, I was the good, compliant, patient. I took whatever pills the doctor prescribed, did whatever tests h/she (most always a he) wrote for. Believed that whatever he said was the absolute truth. He had been to med school. He knew what was wrong with me even though he didn’t live in my body 24/7 and experience what I did.
• ⁉️ What’s on *Your* Medical ID?
  You do have one, right??? I loved the one that Natalie had and, after her death, I bought the same style as a way to honor her memory.
• 🎤 Archived Interview: Charlie (creativeogre)
  Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past […]
• ❓Comment added to Can You Help? Newbie Question about CBD Oil
  I’m using it now. I dont notice a difference either way to be honest.
• 🆘 Medical ID Jewelry Often Lacks Clear Instructions For Adrenal Insufficiency
  Only 4.8% of patients with adrenal insufficiency who use medical identification jewelry clearly indicate on their emblem the need for urgent parenteral hydrocortisone in the event of an adrenal crisis, potentially jeopardizing the ability to receive proper assistance in an emergency, according to a cross-sectional analysis published in Clinical Endocrinology […]