CushieBlog

Cushing’s Help RSS Feed

• ✍️ Comment added to Amy (Amybtru), Pituitary/Adrenal Bio
  I have been ill for years & years. Was diagnosed Cushing’s Syndrome in 2010 but now I know what I’m looking for I can honestly say I’ve had bouts of it since childhood.
• ✍️ Amy (Amybtru), Pituitary/Adrenal Bio
  Amy is from Michigan. She has a great many symptoms, a pituitary microadenoma, an 8 1/2 mm nodule on the adrenal gland and her left kidney has a some type of cyst on the superior pole.
• 🖤 In Memory of Sarah Fraik ~ June 13, 2011
  Sarah had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing's Disease. She died on June 13, 2011 after a brief illness at the age of 28.
• ❓Can You Help? California Doctor
  I’m looking for good doctor in Orange County California. Southern California.
• ❓ Can You Help? Adult Daughter
  Hi, It's important to respect mother/adult child boundaries, and I am careful about how I interact with my beautiful daughter so that she does not think I am criticizing her, but I'm very worried. She is presenting what is listed as classic Cushing's symptoms. We have a family history of pituitary problems.
• ❓ Can You Help? Testing Soon
  I am very interested in learning everything about Cushings. I hope to be tested soon.
• ✍️ Comment added to Shea S (Shea), Undiagnosed Bio
  I am 53 and have many of the same symptoms. Almost no eyebrows or eyelashes and now I am becoming bald. I have a huge belly, diabetes, heart failure and high blood pressure. Plus so many other symptoms. My endocrinologist wants to run more and more tests but I am afraid I am running out of time.
• ✍️ Comment added to Shea S (Shea), Undiagnosed Bio
  I am 53 and have many of the same symptoms. Almost no eyebrows or eyelashes and now I am becoming bald. I have a huge belly, diabetes, heart failure and high blood pressure. Plus so many other symptoms. My endocrinologist wants to run more and more tests but I am afraid I am running out of time.
• ⭐️ Top PIcks on the Message Boards updated June 5, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 🧂SaltStick Fastchews, Electrolyte Replacement Tablets for Rehydration
  I take the SaltStick in the green bottle (my endo knows) and I always have some in a container on my keychain - along with a container for extra cortef and one for Tylenol. It's a heavy keychain!
• 📰 Prevalence of Nelson’s Syndrome After Bilateral Adrenalectomy in Patients with Cushing’s Disease
  Bilateral adrenalectomy (BA) still plays an important role in the management of Cushing's disease (CD). Nelson’s syndrome (NS) is a severe complication of BA, but conflicting data on its prevalence and predicting factors have been reported. The aim of this study was to determine the prevalence of NS, and identify factors associated with its development. […]
• 📰 Osilodrostat Improves Signs and Symptoms Associated With Cushing Disease
  Osilodrostat therapy was found to be effective in improving blood pressure parameters, health-related quality of life, depression, and other signs and symptoms in patients with Cushing disease, regardless of the degree of cortisol control, according to study results presented at the 30th Annual Scientific and Clinical Congress of the American Association of […]
• 🖤 Comment added to In Memory of Sherry Carlson ~ May 30, 2020
  I am so...so sorry that Sherry had to go through all of this pain. I had surgery to remove a pituitary tumor on February 2, 2021 and going through the challenging recovery stages of Cushing's Disease but certainly not like Sherry's. My condolences to her family.
• 🖤 In Memory of Thomas F. Zachman ~ June 3, 2010
  Thomas “Tommy” F. Zachman, of Windsor, formerly of Toledo, Ohio, died suddenly and unexpectedly at University Hospital in Denver on June 3, 2010, complications of Cushing’s Syndrome.
• ❓Can You Help?
  I think I have Cushing’s I have about 10 symptoms...my cortisol levels came out high with a 24 hour urine hormone panel but my endocrinologist did not even mention it. At the time when I had the test done, (March 2020)I had no idea what cortisol was. I just figured and trusted my endocrinologist would prescribe me with whatever hormones and or treatment I ne […]
• 🖤 Comment added to In Memory of Sherry Carlson ~ May 30, 2020
  Sherry was a gentle hearted soul. We met on the Cushing's Support Message Board run by Mary O nearly two decades ago. She suffered much and all the while offered kindness to those she knew. May her memory be a blessing. Like me Sherry traded Cushing's Disease for Addison's, and she's the latest in a long line of friends and acquaintances […]
• 🖥 Cushing's Slideshow
  Message board member sherryc presented this PowerPoint at pioneer Pacific College. It took a lot of work with her failing memory but she did It! She wanted to get the word out about Cushing's and her journey with this awful disease.
• 🖤 In Memory of Sherry Carlson ~ May 30, 2020
  Sherry passed away, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love and support she’s received over the years.
• 💊 Testing Vitamin B3
  Since I just had Mohs surgery for squamous cell carcinoma, I immediately went to amazon to search for nicotinamide….
• 📰 More Gradual Dose Titration Could Reduce Hypocortisolism Risk with Osilodrostat in Cushing's Disease
  Data from LINC3 and LINC4 provide insight into the impact of dosing titration schedules on risk of hypocortisolism-related adverse events associated with osilodrostat use in patients with Cushing's disease.