CushieBlog

Cushing’s Help RSS Feed

• Comment - ❣️The Message Boards Turn 22 Today! ❣️
  Comment from LinkedIn: Congratulations Mary! You have helped more lives than you will ever know including mine. I am forever grateful for finding your website 18 years ago when I was finally diagnosed with Cushings Disease after a 2-year search for answers. Thank you 😊
• ❣️The Message Boards Turn 22 Today! ❣️
  Today  is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) As of today, we have 73,024 members who have made countless posts.
• 🖤 In Memory: Bettye Jean Douglas, September 28, 2016
  Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed, a decision was made against surgery and Bettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease, as many patients do, she rapidly lost weight and was admitted into hospice care soon after.
• 🖤 In Memory: Joanne Swain
  Joanne was known on the boards as raggettyjoanne. Mario VandDermeij announced the passing of his loving wife of 23 years. Joanne Swain VanDermeij at the age of 56. After 2 years and 3 months of fighting the system, Joanne was finally diagnosed March the 14th, 2011, with full blown adrenal Cushing's.
• 📰 Recordati scores FDA nod for Cushing's disease med—and Novartis castoff—Isturisa
  The FDA on Friday approved Recordati's Isturisa (osilodrostat) to treat Cushing's disease—a rare disease in which patients' adrenal glands produce too much cortisol—in those who have undergone a prior pituitary gland surgery or are not eligible for one.
• ⭐️ Top Picks on the Message Boards updated September 26, 2022
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• ℹ️ Basics: Diagnostic Procedures in Suspected Adrenocortical Carcinoma
  Patients with suspected adrenocortical carcinoma (ACC) may also undergo additional tests to identify excess sex steroids and steroid precursors, mineralocorticoids and glucocorticoids.
• 📰 TP53 Mutations in Functional Corticotroph Tumors Are Linked to Invasion and Worse Clinical Outcome
  Mutations in the two Cushing’s disease mutational hotspots USP8 and USP48 are less frequent in corticotroph macroadenomas and invasive tumors. There is evidence that TP53 mutations are not as rare as previously thought in these tumors.
• 📰 Osilodrostat normalizes urinary free cortisol in Cushing’s disease for most at 72 weeks
  More than 80% of adults with Cushing’s disease receiving osilodrostat had normalized mean urinary free cortisol levels at 72 weeks of treatment, according to findings from the LINC 3 study extension.
• ℹ️ Basics: Pseudo-Cushing’s syndrome
  Pseudo-Cushing’s syndrome is when symptoms are similar to those of Cushing’s syndrome, but further tests show that the syndrome is not present.
• 👎 Guest Board
  Unfortunately, the Guest Board is closed again due to too much spam :(
• ‼️ Message Board Upgrade (and new features!) Completed Today (Again!)
  Version 4.7.1 This is our September maintenance release. Key Changes include: Improved search bar UI. New ability for topics to be published on a future date.
• ℹ️ Basics: What Causes Abnormal Cortisol Levels?
  “In general, cortisol levels tend to peak in the late morning and gradually decline throughout the day,” he explains. “When a stressful event occurs, the increased cortisol will work alongside our ‘fight or flight’ mechanisms to either upregulate or downregulate bodily functions. [Affected systems include] the central nervous system, cardiovascular system, g […]
• ❓Can You Help? Sudden hearing loss
  I have many symptoms of cushings, I have used cloatasol propionate for about 5 years for my chronic eczema I was on oral steroids in July then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in September it was for sudden hearing loss. Now I need a hearing aid. I seen one place after googling that connects cushi […]
• 🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
  Kandy Klein long-time member of the message boards passed away September 9, 2007.
• 📰 Unmet needs in Cushing’s Syndrome: the Patients
  Cushing’s syndrome (CS) is a rare condition of chronically elevated cortisol levels resulting in diverse comorbidities, many of which endure beyond successful treatment affecting the quality of life. Few data are available concerning patients’ experiences of diagnosis, care and persistent comorbidities.
• 📰 Persistent vs Recurrent Cushing’s Disease Diagnosed Four Weeks Postpartum
  We describe the first report of recurrent Cushing's Disease that was quiescent during pregnancy and diagnosed in the immediate postpartum period. Understanding the risk and mechanisms of CD recurrence in pregnancy allows us to counsel these otherwise healthy, reproductive-age women in the context of additional family planning.
• 📰 Ectopic Adrenocorticotropic Hormone-Secreting Pituitary Adenoma in the Clivus Region: A Case Report
  Ectopic pituitary adenoma (EPA) is a pituitary adenoma unrelated to the intrasellar component and is an extremely rare disease.
• 🖤 In Memory: Ryan Tyler Monds ~ September 4, 2016
  Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.
• 🖤 In Memory: Janice, Tuesday, September 4, 2001
  In Memory of those we have lost. Janice died Tuesday, September 4, 2001. The very first Cushing's Awareness Ribbons were made for, and worn at, Janice's funeral. She had adrenal Cushing's.