CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top PIcks updated May 20, 2019
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 📰 Imaging Agent Effectively Detects, Localizes Tumors in Cushing’s Syndrome
  “Our study demonstrates the high sensitivity of [gallium Ga-68 dotatate] in the localization of [ectopic Cushing’s syndrome], for both occult primary tumors and metastatic lesions,” the researchers wrote. “Importantly, the use of [gallium Ga-68 dotatate] impacted clinical management in 64% of patients with [ectopic Cushing’s syndrome] overall.” The researche […]
• 📞 Theodore Friedman Webinar on Treatments for Insomnia, June 2, 2019
  Dr. Theodore Friedman hosts Jay Khorsandi, DDS and Barbara Burggraaff, MD from Snore Experts for an important webinar on insomnia
• 🎬 Video: Cushing's Syndrome – Story of a Patient
  The signs of the disease are often overlooked. It took 14 years to diagnose Ida with the disease and to start treating it successfully.
• 👥 Register for Johns Hopkins Pituitary Day October 19, 2019!
  The 11th annual Pituitary Day will take place on October 19, 2019  Patients living with pituitary disorders can hear lectures from our pituitary specialists, see movies of pituitary surgeries and hear from other patients about their experience living with pituitary disease and undergoing surgery.
• ✍️ Lili, Undiagnosed Bio
  Lili is from Florida. She is testing for Cushing's due to many symptoms. She shares some of her test results. Lil has had thyroid cancer
• 🏞 New Cushie added to the Cushing's MemberMap
  Dianne has steroid-induced Cushing's
• ✍️ Comment added to Cynthia M, Undiagnosed Bio
  Hi Cynthia! I don’t know much about Lupus and Sjgrens but I know people that have had Cushings and Lupus...
• ‼️ Message Board Upgrade Coming This Weekend
  Please let me know if anything is not working properly. 
• ✍️ Cynthia M, Undiagnosed Bio
  Cynthia is from Ruckersville, VA. She is testing for Cushing's due to many symptoms. tested for CD because after exhaustive research on AVN (Avascular Necrosis) related to other diseases. I have four known areas of AVN & after seeing the symptoms of CD, I realized may have this. I also have numerous other diseases Lupus, Sojgrens, Hypothyroid, High […]
• 🎤 Archived Interview: Rebecca D (Rebecca D), Pituitary Patient
  Rebecca shared her story in an interview.
• ✍️ MaryO – 13 Years Cancer-Free!
  Today is the Thirteenth Anniversary of my kidney cancer surgery. These thirteen years have been bonus years for me. For my cancer stage, the 5-year survival rate was 81% and I’ve made it more than twice that long – so far.
• 🎤 Archived Interview: Kathy C, Pituitary Patient
  Kathy was diagnosed with a pituitary tumor in 1991. At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy for 23 days. They said they could not remove all of the tumor.
• 🖤 In Memory: Melinda Smith 1988-2014
  Sadly, we lost another Cushing’s patient on Friday, May 9, 2014. Melinda was a member of the Cushing’s Help message boards since Jun 24, 2007. She was only 25 and left behind a young son and many loving family members.
• 📰 Metoclopramide Can Mask Adrenal Insufficiency After Gland Removal in BMAH Patients
  Metoclopramide, a gastrointestinal medicine, can increase cortisol levels after unilateral adrenalectomy — the surgical removal of one adrenal gland — and conceal adrenal insufficiency in bilateral macronodular adrenal hyperplasia (BMAH) patients, a case report suggests...BMAH is a subtype of adrenal Cushing’s syndrome, characterized by the formation of nodu […]
• 🖤 In Memory: Gregory J. Bart Jr., 2016
  He died of a presumed heart attack. September 19, 2015 he said "'I was diagnosed hypertensive way back when I was 20. The condition remained for years, and became more acute with my cushings pit tumor. I still have high blood pressure, partially teated with three meds. I'll have to consult my doc and see if this may also be an issue."
• 🎈 Birthday - In Memory: Shianne Lombard-Treman, March 28, 2018
  Shianne's name is in the message boards birthday section today. Shianne was a Cushing's Survivor who had just published a book, Be Your Own Doctor. She was 41.
• ✍️ Comment added to Deborah S, Undiagnosed Bio
  I am having the exact same thing (symptoms, test results and Dr. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis?
• 🖤 In Memory: Patti, May 2, 2002
  From the Message Boards: ” I loved her, she was a great friend. She died of adrenal cortical carcinoma.”
• 🖤 In Memory: Kathryn McBride ‘Bridie’ Miller, May 1, 2007
  'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and sh […]