CushieBlog

Cushing’s Help RSS Feed

• ❓Comment added to Guest Question: PTSD and Cushings
  Every ache or pain or out of the ordinary experience triggers anxiety. I am 7 years post op. I don’t have panic attacks per se, but I do get upset and frightened. These feelings also occur when the doctor sends me for routine testing just to make sure there is no relapse...
• 📰 Relacorilant Effectively Manages Cortisol Effects in Cushing’s Patients
  Relacorilant, an investigational therapy developed by Corcept Therapeutics, may effectively manage the effects of excess cortisol in patients with Cushing’s syndrome, interim data from an ongoing Phase 2 trial show. In particular, the treatment significantly improved sugar tolerance and the levels of osteocalcin, a bone growth biomarker  commonly suppressed […]
• ❓Guest Question: PTSD and Cushings
  I’m wondering if anyone post surgery is dealing with PTSD, specifically feeling like you are re-experiencing Cushings when you are having anxiety. I’m almost 3 years post surgery and have regular panic attacks where I feel like I am re-living having the disease Please either respond here or in the comments below.
• 😃 New Testimonial From Diane
  ...Today I challenge a wonderful woman who I really admire Mary Kelly O'Connor who can disregard if she's already been tagged or doesn't want to take part (completely understand as I know these posts can be annoying) but I just wanted to select you because as the founder of the website www.cushings-help.com that saved my life when I was diagno […]
• ✍️ Summer J (Summer84), Pituitary Bio
  Summer is from Fresno CA. She had pituitary surgery 1-24-17
• ✍️ sjw (Jane W), Adrenal Bio
  Jane is from California. She 76 years old and was recently diagnosed with Cushing's Syndrome after years and years and years of suffering symptoms.
• 🖤 Rare Malignant Tumor of Adrenal Gland Led to Cushing’s, Girl’s Death
  Adrenocortical carcinoma is a malignant tumor that develops in the cortex of the adrenal gland. It usually is identified by increased amounts of hormones that are produced by the adrenal glands, like cortisol. This tumor type is very rare in children, representing fewer than two in every 1,000 pediatric tumors.
• 📰 Cushing’s Patient Exhibits Cortisol-Secreting Lesions in Both Adrenal Glands
  In rare cases, Cushing’s syndrome may be caused by cortisol-secreting masses in both adrenal glands, a case report shows.
• ✍️ Pam M (mapgirl23), Undiagnosed Bio
  Pam is from Ypsilanti, Michigan. She is the mother of an 18 year old daughter who she suspects has Cushing's.
• ✍️ Comment added to Stacy B, Pituitary/Adrenal Bio
  I’m in Indiana as well and undergoing testing now to confirm Cushing’s but I’m not impressed with the Endo my family doctor referred me to....
• 😃 New Testimonial From Autumn
  Mary Kelly O'Connor, you are an inspiration to so many! Thank you for all you have done and continue to do for our community!
• 📞 Webinar: Preserving Function in Pituitary Surgery
  May 8, 2018. Understand the importance of gland function preservation during pituitary surgery.
• 😍 Mary Kelly O’Connor, Person of the Month-May 2018
  .The EPIC Foundation would like to recognize Mary Kelly O’Connor as a pioneer in the Cushing’s community as an advocate and life changer! Mary Kelly O’Connor is Person of the Month for May, 2018! Mary O wants to support, educate, and share! She has been able to provide support to an entire community of people on her own and with very little funding. She puts […]
• 🖤 In Memory of Kathryn Miller, Murdered May 1, 2007
  'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and sh […]
• 🦓 Comment added to Day 23: Cushing’s Awareness Challenge 2018
  ... I went to my family doctor and asked him for the test it came back showing high cortisol. I also had the 8am and 4pm blood work which came back high indicating Cushings. I sent both those reports to my endo who is in the process of setting up an appointment for me. Finally I have clinical proof. It will be interesting to see how my endo will proceed.
• ✍️ Comment added to Stuart M, Parent of a Teenager
  I too have Cushings. Initially I had my 1.8 cm removed and had about three years of feeling better. And I now have a reoccurrence . I started taking Cagaberline but I could not take it. I am currently taking Metyripone....
• 🎤 Robin (staticnrg) and Mary O’Connor (MaryO) Discussed Spreading the Word about Cushing’s
  Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing’s Patients.
• ✍️ Patty, Pituitary Bio
  Patty neurosurgeon and ENT and had surgery June 2017 to remove a 1 centimeter pituitary tumor
• 🦓 Day 30: Cushing’s Awareness Challenge 2018
  Today is the final day of the Cushing's Awareness Challenge and I wanted to leave you with this word of advice…
• ✍️ Angie (Angie), Pituitary Bio
  Angie is from Alamo. Her My Endo Dr did test on me and within 6 months they were positive I had Cushing. It showed I had a tumor on my pituitary gland. I surgery on my pituitary gland on April 11,2017. The endo dr at the hospital I had surgery at told me that the surgery was unsucessful I still had Cushing. They did a MRI in Oct. of 2017 and it showed I have […]