CushieBlog

Cushing’s Help RSS Feed

• ✍️ Deva, Pituitary Bio
  Deva suffered for 14 years until she read an article in reader's Digest. She had pituitary surgery.
• ⭐️ Top Picks on the Message Boards updated January 20, 2022
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Women with Mild Autonomous Cortisol Secretion are at Greater Risk for Cardiometabolic Disease
  While benign adrenal tumors are routinely incidentally discovered by imaging, not all these tumors have pathological effects, existing as nonfunctional adrenal tumors (NFAT). However, others overproduce steroids resulting in mild autonomous cortisol secretion (MACS) or Cushing’s syndrome (CS) if severe.
• ‼️ From Reader's Digest!
  The February 2022 issue of Reader's Digest has information about a pituitary Cushing's patient.
• 💉 Helpful Doctor in Tennessee?
  CHI Memorial Medical Group announces the opening of CHI Memorial Endocrinology Associates, a practice that provides comprehensive medical management and care for conditions like type 1 and 2 diabetes, thyroid disease, thyroid cancer and a range of metabolic, pituitary and adrenal disorders. The practice will be led by Prashanth Sekhar, MD, a fellowship train […]
• 📰 In the US? Free COVID Tests
  Just in case – hopefully, not needed! 
• 📰 Post-Operative Cushing Syndrome Care
  Among 174 patients with Cushing's Syndrome included in the longitudinal cohort study (pituitary in 106, ectopic in 25, adrenal in 43), median baseline HbA1c was 6.9%. Of these, 41 patients were not on any therapy for hyperglycemia, 93 (52%) took oral medications, and 64 (37%) were on insulin.
• 📰 7 Things Your Hair Reveals About Your Health
  Brittle hair is one of the symptoms of Cushing’s syndrome, which is a rare condition caused by excess cortisol, the main hormone body stress. But, there are many other, more obvious symptoms of Cushing’s syndrome, including high blood pressure, fatigue, and back pain. Treatment for Cushing’s syndrome may involve changing the dose of medication that may be ca […]
• 📰 Lung Neuroendocrine Tumors With Cushing Syndrome Not Biologically Aggressive
  Neuroendocrine pulmonary tumors in people with Cushing syndrome (CS) are associated with increased nodal metastasis, higher recurrence, and lower disease-free survival compared with quiescent bronchopulmonary tumors, according to results from an observational case series published in JAMA Network Open. Researchers said their study shows these tumors are not […]
• ❓Can *you* Help?
  Hi there, I (22F, 140 pounds) just got the results from my 24 hr ufc and was hoping someone could take a look at them for me and possibly clear some things up as it'll be a while until I see my endocrinologist. I know that hypoglycemia is not typical of Cushing's, I was actually looking into adrenal insufficiency…
• ℹ️ Basics: Post-Op BLA
  I'm going to try to keep all of my post-op BLA updates in this thread. I am hoping it will eventually show positive progression and be a realistic and inspirational thread for others. Today I am two weeks post-op BLA. So far, no scares. I am on 30/20/20 of hydrocortisone and weaning by 10 mg every four days. I am sleeping a good bit during the day and r […]
• 📰 Pediatric Adrenal Insufficiency: Challenges and Solutions
  However, children that experience low cortisol concentrations and symptoms of cortisol insufficiency can take advantage using a modified release hydrocortisone formulation. The acute adrenal crisis is a life-threatening condition in all ages, treatment is effective if administered promptly, and it must not be delayed for any reason.
• 📰 Frequently Asked Questions in Patients With Adrenal Insufficiency in the Time of COVID-19
  Adrenal insufficiency (AI) is a life-threatening disorder, with increased morbidity and mortality, especially in case of an acute illness that can increase the requirement of cortisol. A novel infectious disease, termed Coronavirus Disease 2019 (COVID-19), appeared in 2020.
• 📰 Unique Cell in Rare Tumor Tied to Ectopic Cushing’s
  Ectopic Cushing’s syndrome due to ectopic ACTH&CRH-secreting by pheochromocytoma is extremely rare and can be fatal if not properly diagnosed. It remains unclear whether a unique cell type is responsible for multiple hormones secreting.
• 👥 Join us for a Virtual RDLA Regional Meet and Greet Session!
  This is a fun opportunity for the rare disease community in each region and state to get together before Rare Disease Week to foster community and camaraderie. Whether you are new or a veteran of the rare disease community, there will be something for everyone. We want to take time to get together socially before the excitement of Rare Disease Week! See belo […]
• 📰 Korlym: Failure to Show a Reasonable Expectation of Success Dooms Obviousness Allegations
  [t]he degree of change in exposure of mifepristone when co-administered with strong CYP3A inhibitors is unknown” and “may present a safety risk.” The concern was that without the required study the patients with Cushing’s syndrome that take strong inhibitors may be unable to use mifepristone.
• 🖤 In Memory: Lori Holt ~ January 6, 2008
  During the first few days of September 2007, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surgery and never recovered.
• 📰 'Benign' Adrenal Gland Tumors Might Cause Harm to Millions
  As many as 1 in 10 people have a non-cancerous tumor on one or both of their adrenal glands that could cause the gland to produce excess amounts of the stress hormone cortisol.
• 🖤 In Memory: Jill's Father. January 5, 2005
  Jill wrote: 'In December 2004 my dad who had addison's for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were complete […]
• 🖤 In Memory of Malia Kenney ~ January 4, 2017
  Malia died January 4, 2017 at the age of 40. She has been dealing with Cushings Disease for the past 18 yrs or so.