CushieBlog

Cushing’s Help RSS Feed

• ⭐️ Top PIcks on the Message Boards updated May 15, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Severe Infection Including Disseminated Herpes Zoster Triggered by Subclinical Cushing’s Disease
  The case of an elderly woman who developed shingles triggered by subclinical Cushing’s disease, and later died from sudden cardiac arrest, underscores the importance of closely monitoring immune responses in patients showing signs of that disorder.
• 💊 FDA accepts NDA for novel Cushing’s syndrome treatment
  The FDA accepted for review a new drug application for the steroidogenesis inhibitor levoketoconazole for the treatment of endogenous Cushing’s syndrome, according to an industry press release.
• 💰Study Opportunity for Cushing's Patients
  This is a 30 min Online Survey and Compensation is $50.00 Sign up at the link below to receive an email invite to the study and see if you qualify https://rarepatientvoice.com/CushingsHelp/
• 🥸The Mohs Nose
  After I posted Just Nosing Around, I joined a Facebook group for Skin Cancer Warriors. I was amazed how supportive they are. I never had any support with Cushing’s or Kidney Cancer pre-op, so it was really nice to be on the receiving end for once… Also, I remembered that I should stress dose tomorrow! I started packing my bag to include Tylenol and I’ll add […]
• 🖤 In Memory of Melinda Smith ~ May 9, 2014
  Sadly, we lost another Cushing’s patient on Friday, May 9, 2014. Melinda was a member of the Cushing’s Help message boards since Jun 24, 2007. She was only 25 and left behind a young son and many loving family members.
• 💐 Mother's Day
  Prayers and much love to Cushies who have lost their mothers, to friends who have lost their child, to friends who gave their child the amazing gift of adoption and can not celebrate today with their babies, and to our precious friends who have not been able to have a child yet, you are all precious in God’s eyes. May each of you feel His peace this weekend. […]
• 📰 Acromegaly: Chronic disease root of young man's abnormally gray hair and facial changes
  A chronic, progressive disease was discovered to be the reason why a man in his 20s experienced a sudden increase of gray hair and facial changes, local doctors said… Doctors suspected he suffered from acromegaly, a chronic disease characterized by enlargement of head bones, soft parts of the feet and hands and sometimes other parts of the body due to excess […]
• 📰 Vision Loss May Herald Brain Tumor
  Tumors arising in the pituitary gland show symptoms either due to excessive hormone secretion or due to excessive growth and compression and spread to the surrounding tissues. Adenomas that do not secrete hormones usually grow slowly and can remain asymptomatic for years. Those who secrete hormones show early symptoms due to the effects of hormones in the bo […]
• 📰 Chronic Insomnia Can Be Sign of Cushing’s
  Chronic insomnia can be a sign of Cushing’s syndrome, and doctors need be aware of this possibility, according to a case report of a woman diagnosed with Cushing’s shortly after seeking help for her insomnia. This case also emphasized the usefulness of the dexamethasone suppression test in identifying the specific cause of Cushing’s.
• 🖤 In Memory of Gregory J. Bart Jr. ~ May 7, 2016
  He died of a presumed heart attack. September 19, 2015 he said ''I was diagnosed hypertensive way back when I was 20. The condition remained for years, and became more acute with my cushings pit tumor. I still have high blood pressure, partially teated with three meds. I'll have to consult my doc and see if this may also be an issue.'
• 🖤 In Memory of Patti ~ May 2, 2002
  From the Message Boards: ” I loved her, she was a great friend. She died of adrenal cortical carcinoma.”
• 🦓 Day 30, Cushing’s Awareness Challenge 2021
  Today is the final day of the Cushing’s Awareness Challenge and I wanted to leave you with this word of advice… To that end, I’m saving some of what I know for future blog posts, maybe even another Cushing’s Awareness Challenge next year.
• ✍️ Hannah B, Pituitary Bio
  After countless doctors appointments and misdiagnoses, Hannah was diagnosed with Cushing syndrome. She has a tumor on her pituitary glad [sic] which causes it to release too much cortisol into her body, affecting her metabolism and growth hormones. It also affects her energy levels and her ability to recover from workouts. “Labs are normal, this is normal an […]
• 🧪 Home cortisol tests: 3 of the best
  There are several home cortisol tests available to purchase over the counter or online. These allow a person to take a sample of blood, urine, or saliva before sending it off for analysis. After taking a home cortisol test, people can usually receive their results within 2–5 days online or via a telephone call with a healthcare professional. However, there a […]
• 🦓 Day 29, Cushing’s Awareness Challenge 2021
  In 1983 I came across a little article in the Ladies Home Journal which said: “If you have these symptoms…” I found the row with my symptoms and the answer read “…ask your doctor about Cushing’s”.
• 📰 Acute Pancreatitis Associated With Cushing Syndrome
  Cushing's syndrome (CS) is a rare and severe disease. Acute pancreatitis is the leading cause of hospitalization. The association of the two disease is rare and uncommon. We report the case of a 37-year-old woman admitted in our service for acute pancreatitis and whose Cushing syndrome was diagnosed during hospitalization. The aim of this work is to try […]
• ⁉️ Cushing’s Myths and Facts: “Vitamins and Natural Remedies can cure/heal Cushing’s”
  Do you know how many people have told me that if I just “juice”, I will be cured from Cushing’s or Adrenal Insufficiency?! I appreciate the sentiment, but the sad reality is that no amount of juicing and no vitamin will cure Cushing’s. Some Cushing’s patients do take vitamins, some do eat raw food or paleo diets, and some even juice. However, this is just a […]
• 🦓 Day 28, Cushing’s Awareness Challenge 2021
  I was walking somewhere on deck and suddenly a wave came up over the deck making it very slippery. I fell and cracked the back of my head on the curved edge of a table in the dining area. I had the next-to-the-worse headache I have ever had, the worst being after my pituitary surgery. At least after the surgery, I got some morphine.
• ⁉️ Cushing’s Myths and Facts: Even Though You Are Chronically Ill, You Should Have The Same Amount Of Energy Every Day…
  Christine Miserandino uses the spoon theory to answer the question, “What does it feel like to be sick?” The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.