CushieBlog

Cushing’s Help RSS Feed

• ✍️ Margaret (Margaret), Pituitary Bio
  (Golden Oldie) Margaret is from SW, Virginia. She has recently been diagnosed with Cushing's Disease. She is scheduling an IPSS.
• 📰 Cushing’s Syndrome: A Tale of Frequent Misdiagnosis
  Cushing’s syndrome is a condition you probably have never heard of, but for those who have it, the symptoms can be quite scary.  Worse still, getting it diagnosed can take a while.  Cushing’s syndrome occurs when the tissues of the body are exposed to high levels of cortisol for an extended amount of time. Cortisol is the hormone the body produces to help yo […]
• ♦️Other Medical: Targeted drug shows promise in rare advanced kidney cancer
  These results from a single-arm, multicenter phase II clinical trial, reported in the Journal of Clinical Oncology, suggest that savolitinib holds promise as a personalized treatment for a subgroup of patients with metastatic papillary renal cell carcinoma, the researchers said.
• 🖤 In Memory: Kate Myers
  Kate (Fairley on the Cushing's Help message boards) was only 46 when she died on June 23, 2014.
• 😃 New Testimonial
  WOW! You have been through so much. It is a miracle to me that you have as good of an attitude as you do. I think if this had been me, either I would have given up by now or be in a psychiatric ward due to anxiety and panic attacks. You are amazing!
• 📌 Comment added to MaryO ~ Growth Hormone Update
  WOW! You have been through so much. It is a miracle to me that you have as good of an attitude as you do. I think if this had been me, either I would have given up by now...
• 🎗MaryO ~ Growth Hormone Update
  Going back on Growth Hormone? I've been dealing with Cushing's since 1983.  The after effects of pituitary surgery since 1987, kidney cancer since 2006.  It's time I felt better, already!
• ✳️ $5 Bonus for Cushings Help!
  This is a very easy way to give back without it costing you anything. Every new member who joins to support your organization by July 15th and makes their first purchase by July 31st earns a $5 Bonus for Cushings Help!
• ⚠️ Message Board Upgrade is here!
  The upgrade is here, it's different and I need a new "skin" for this to get rid of all the white. Some things are still happening behind the scenes.
• 🖤 In Memory ~ Sarah Fraik, died on June 13, 2011 after a brief illness at the age of 28.
  Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease. She died on June 13, 2011 after a brief illness at the age of 28.
• 😃 New Testimonial
  Please help me if you can. I really enjoy and am grateful for this group. I've learned so much and I now know I'm not alone with this disease. Thank you for your time.
• 📌 Comment added to “Liz L, Pituitary Bio”
  ... My health history is getting long, and I’m pretty much bed ridden, so a Cushings diagnosis could answer and maybe solve a lot of my health issues. I did want to ask you who your doctor is, and if it is someone local. I’m afraid my doctor is not too familiar with Cushings, and I’m hoping to find someone with more experience. If you have any recommendation […]
• 📰 Anomalous Response to Metyrapone in Cushing's Syndrome Due to Adrenocortical Adenoma
  An older article about Metyrapone
• ✍️ Marie C (MarieConleyHbg), Pituitary/ BLA Bio
  Marie is from Elizabethtown, PA. She was diagnosed with pituitary Marie was diagnosed with Cushing’s Disease. She has fought through dozens of hospital stays and numerous surgeries – including pituitary surgery and a BLA.
• ♦️Other Medical: Perioperative Systemic Therapy for Kidney Cancer: Current Data and Ongoing Trials
  Dr. Uzzo gave the third and final talk in this excellent session highlighting systemic therapy in the management of kidney cancer.
• 📘 A Cushing's Collection: A Humorous Journey Surviving Cushing’s Disease, Diabetes Insipidus, and a Bilateral Adrenalectomy
  Diagnosed with a rare disease that only affects between two and ten people per million, Marie Conley used emails to communicate with family, friends, and co-workers to keep them apprised of the diagnosis and prognosis of Cushing's disease and the many complications she experienced on this journey. Her ironic humor and raw, emotional approach helps bring […]
• 🏞New Cushie added to the MemberMap
  Add your own info (or your doctor's) to the Cushie MemberMap
• ✍️ Vic (Tori276), Undiagnosed Bio
  Vic is from London, UK
• 📰 Study links genetic mutations, Cushing syndrome
  Researchers have determined mutations in the gene CABLES1 may lead to Cushing syndrome, a rare disorder in which the body overproduces the stress hormone cortisol....“This discovery could lead to the development of treatment strategies that simulate the function of the CABLES1 protein and prevent recurrence of pituitary tumors in people with Cushing syndrome […]
• ♦️Other Medical: Current Therapeutics of Kidney Cancer: Landmark Trials
  Dr. Vaishampayan provided an excellent walk down memory lane, highlighting the landmark trials in kidney cancer over the last 20 years at this morning’s ASCO 2017 annual meeting session “Evolving Treatment Paradigm in Renal Cell Carcinoma.”