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Cushing’s Help RSS Feed

• 📰 7 Things Your Hair Reveals About Your Health
  Brittle hair is one of the symptoms of Cushing’s syndrome, which is a rare condition caused by excess cortisol, the main hormone body stress. But, there are many other, more obvious symptoms of Cushing’s syndrome, including high blood pressure, fatigue, and back pain. Treatment for Cushing’s syndrome may involve changing the dose of medication that may be ca […]
• 📰 Lung Neuroendocrine Tumors With Cushing Syndrome Not Biologically Aggressive
  Neuroendocrine pulmonary tumors in people with Cushing syndrome (CS) are associated with increased nodal metastasis, higher recurrence, and lower disease-free survival compared with quiescent bronchopulmonary tumors, according to results from an observational case series published in JAMA Network Open. Researchers said their study shows these tumors are not […]
• ❓Can *you* Help?
  Hi there, I (22F, 140 pounds) just got the results from my 24 hr ufc and was hoping someone could take a look at them for me and possibly clear some things up as it'll be a while until I see my endocrinologist. I know that hypoglycemia is not typical of Cushing's, I was actually looking into adrenal insufficiency…
• ℹ️ Basics: Post-Op BLA
  I'm going to try to keep all of my post-op BLA updates in this thread. I am hoping it will eventually show positive progression and be a realistic and inspirational thread for others. Today I am two weeks post-op BLA. So far, no scares. I am on 30/20/20 of hydrocortisone and weaning by 10 mg every four days. I am sleeping a good bit during the day and r […]
• ⭐️ Top Picks on the Message Boards updated January 13, 2022
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Pediatric Adrenal Insufficiency: Challenges and Solutions
  However, children that experience low cortisol concentrations and symptoms of cortisol insufficiency can take advantage using a modified release hydrocortisone formulation. The acute adrenal crisis is a life-threatening condition in all ages, treatment is effective if administered promptly, and it must not be delayed for any reason.
• 📰 Frequently Asked Questions in Patients With Adrenal Insufficiency in the Time of COVID-19
  Adrenal insufficiency (AI) is a life-threatening disorder, with increased morbidity and mortality, especially in case of an acute illness that can increase the requirement of cortisol. A novel infectious disease, termed Coronavirus Disease 2019 (COVID-19), appeared in 2020.
• 📰 Unique Cell in Rare Tumor Tied to Ectopic Cushing’s
  Ectopic Cushing’s syndrome due to ectopic ACTH&CRH-secreting by pheochromocytoma is extremely rare and can be fatal if not properly diagnosed. It remains unclear whether a unique cell type is responsible for multiple hormones secreting.
• 👥 Join us for a Virtual RDLA Regional Meet and Greet Session!
  This is a fun opportunity for the rare disease community in each region and state to get together before Rare Disease Week to foster community and camaraderie. Whether you are new or a veteran of the rare disease community, there will be something for everyone. We want to take time to get together socially before the excitement of Rare Disease Week! See belo […]
• 📰 Korlym: Failure to Show a Reasonable Expectation of Success Dooms Obviousness Allegations
  [t]he degree of change in exposure of mifepristone when co-administered with strong CYP3A inhibitors is unknown” and “may present a safety risk.” The concern was that without the required study the patients with Cushing’s syndrome that take strong inhibitors may be unable to use mifepristone.
• 🖤 In Memory: Lori Holt ~ January 6, 2008
  During the first few days of September 2007, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surgery and never recovered.
• 📰 'Benign' Adrenal Gland Tumors Might Cause Harm to Millions
  As many as 1 in 10 people have a non-cancerous tumor on one or both of their adrenal glands that could cause the gland to produce excess amounts of the stress hormone cortisol.
• 🖤 In Memory: Jill's Father. January 5, 2005
  Jill wrote: 'In December 2004 my dad who had addison's for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were complete […]
• 🖤 In Memory of Malia Kenney ~ January 4, 2017
  Malia died January 4, 2017 at the age of 40. She has been dealing with Cushings Disease for the past 18 yrs or so.
• 📰 Xeris Biopharma Scores FDA Approval for Endogenous Cushing's Syndrome Drug Recorlev
  Recorlev's approval covers the treatment of endogenous hypercortisolemia in adults with Cushing’s syndrome who aren't eligible for surgery or haven't responded to surgery.
• 2️⃣0️⃣2️⃣ 2️⃣ Goals for 2022?
  So, what goals do you have for 2022, Cushing's or otherwise? For me, personally, I'm not entirely sure yet. I know I want to avoid…
• 💡 Light Up for Rare
  The National Organization for Rare Disorders (NORD) asks Americans to plan ahead to participate in the Light Up for Rare campaign to raise awareness of rare diseases. NORD is the U.S. sponsor for  Rare Disease Day  on Feb. 28. The annual awareness day spotlights approximately 7,000 rare diseases that affect more than 300 million people worldwide. More than 2 […]
• 🎄Merry Christmas!
• 📰 New test may help in early diagnosis of Cushing's Syndrome
  To treat Cushing's syndrome (CS) as soon as feasible, a rapid diagnosis is required. A simple measure, the Cushing score, was created and ...
• 👩🏻‍✈️👨🏽‍🍳 👨🏾‍🌾Cushies Have All Kinds of Professions and Jobs