This seems to be nostalgia time. Yesterday, I posted a picture from 2007. This one is from Rockford, IL, Cushing’s Weekend, 2006:
Yes, that’s me asleep.
I flew out to Chicago, drove up to Rockford, IL. The next day, we all drove up to Wisconsin to have lunch with some other Cushies. I missed most of that meeting because I fell asleep on the sofa. 😦
Tired, fatigued, missing the main event because I can’t stay awake.
Something similar happened today. I ring handbells at my church. I got up and rang at the first service just fine. I brought my mom home at 9:30. I needed to leave at 10:30 for the other service we were playing. Checked my email. Next thing I knew, it was just after 11. AACK!
After a quick note apologizing to the director, I fell asleep again and here it is, nearly 6:30pm. Another day, gone.
I hate this, sleeping all day, missing things, missing beautiful weather.
But that’s life, post-Cushing’s.
Filed under: Cushing's, Cushing's Awareness Challenge 2014 | Tagged: Chicago, church, Cushing's Awareness Challenge 2014, fatigue, handbells, mom, Rockford, sleep, tired, Wisconsin | Leave a comment »
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