That’s for sure! Cushing’s patients have a lot of support these days, at least online. I’m not seeing much offline in the way of regular group support meetings.
Over the years, there have been lots of local meetings but they’re mostly one-time events. There are pictures of some of the past meetings here: https://www.facebook.com/CushingsInfo/photos_albums listed by place and date.
Many Cushing’s patients on the message boards and in Facebook groups exchange phone numbers and email addresses to get offline support.
Other ways to help support others you may never meet are to agree to be interviewed in a live voice chat (these are added to the podcast for later listening) or submit a bio.
The more you share, the more support others get…and the more they’ll share with you.
Filed under: adrenal, Cushing's, Interview, Meetings and Conferences, pituitary, podcast | Tagged: bio, BlogTalkRadio, Facebook, Interview, meetings, message boards, online, podcast, support | Leave a comment »
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