Cushing’s Awareness Challenge 2014

Past Cushing’s Awareness Challenge Bloggers

Posted on April 1, 2015 by MaryO

The page over at http://cushie-blogger.blogspot.com/ is starting to load pretty slowly and I’m guessing that it’s maybe because of all the blog posts it has to load. So, I’m going to take all the Cushing’s Awareness Challenge Bloggers from 2012-2014 and post them here so I can delete the blog rolls that they’re in now.

Eventually, when I have time, I’ll add the blogs to the general “All Cushie Blogs” list. Hopefully, that will speed the page up! I don’t know if there was a problem last year because I’m sure we had more than 2 of us participating!

Filed under: Cushing's, Cushing's Awareness Challenge 2012, Cushing's Awareness Challenge 2013, Cushing's Awareness Challenge 2014 | Tagged: Cushing Awareness Challenge 2013, Cushing's Awareness, Cushing's Awareness Challenge 2012, Cushing's Awareness Challenge 2014, Cushing's Awareness Challenge 2015 | Leave a comment »

Cushing’s Awareness Challenge 15

Posted on April 15, 2014 by MaryO

A continuation of the last post with another of Robin’s great images. I’ve also heard many of these comments.

I did have #6, cancer – kidney cancer or renal cell carcinoma – in 2006 and the diagnosis was much faster/easier than Cushing’s. My cancer diagnosis took about an hour in the emergency room. Cushing’s took about 5 years or so. Cancer surgery recovery was faster with fewer long-term consequences.

When I told people I had cancer, everyone understood. When I told them I had Cushing’s, no one did.

That being said, I don’t recommend getting either cancer or Cushing’s!

Filed under: Cancer, Cushing's, Cushing's Awareness Challenge 2014 | Tagged: Cancer, Cushing's, Cushing's Awareness Challenge 2014, diagnosis, kidney cancer, recovery, renal cell carcinoma, surgery | Leave a comment »

Cushing’s Awareness Challenge, Day 6

Posted on April 6, 2014 by MaryO

This seems to be nostalgia time. Yesterday, I posted a picture from 2007. This one is from Rockford, IL, Cushing’s Weekend, 2006:

Yes, that’s me asleep.

I flew out to Chicago, drove up to Rockford, IL. The next day, we all drove up to Wisconsin to have lunch with some other Cushies. I missed most of that meeting because I fell asleep on the sofa. 😦

Tired, fatigued, missing the main event because I can’t stay awake.

Something similar happened today. I ring handbells at my church. I got up and rang at the first service just fine. I brought my mom home at 9:30. I needed to leave at 10:30 for the other service we were playing. Checked my email. Next thing I knew, it was just after 11. AACK!

After a quick note apologizing to the director, I fell asleep again and here it is, nearly 6:30pm. Another day, gone.

I hate this, sleeping all day, missing things, missing beautiful weather.

But that’s life, post-Cushing’s.

Filed under: Cushing's, Cushing's Awareness Challenge 2014 | Tagged: Chicago, church, Cushing's Awareness Challenge 2014, fatigue, handbells, mom, Rockford, sleep, tired, Wisconsin | Leave a comment »

Cushing’s Awareness Challenge, Day Five

Posted on April 5, 2014 by MaryO

The picture above is from a 2007 Cushing’s meeting in Columbus, OH when we all gathered around my rented yellow Cushie Cruiser. There are more pictures from that year at Columbus, OH 2007

As always, it was great to get together with other Cushies.

Today, April 5, 2014 there was a local Cushie meeting in Northern Virginia. This time, I drove the bright blue (Pacific Coast Highway blue in Chrysler parlance) Cushie Cruiser.

Some of the Cushies were old friends, some were new ones but it’s always wonderful to get together, to share stories, to not feel so alone with this disease.

If you can, go to local meetings, get out for coffee, connect somehow with others.

You’ll be glad you did!

Filed under: Cushing's, Cushing's Awareness Challenge 2014, Meetings and Conferences | Tagged: alone, coffee, Columbus, connect, Cushie Car, Cushing's Awareness Challenge 2014, friends, local Cushie meeting, meeting, Ohio, stories | Leave a comment »

Cushing’s Awareness Challenge, Day 3: Symptoms

Posted on April 3, 2014 by MaryO

Robin has made another excellent graphic of some of the symptoms of Cushing’s. There are far too many to be listed in any image, as shown by the list at http://www.cushings-help.com/toc.htm#symptoms

- Symptoms
- Buffalo Hump
- Checklists
  - Checklist of Symptoms
  - Body and Skin
  - Bones
  - Children
  - Eyes
  - Hair
  - Heart
  - Men
  - Miscellaneous
  - Psychological
  - Sleep
  - Women
- Central Serous Retinopathy (CSR)
- Depression (NIMH)
- Depression (Troya)
- Dry Mouth
- Pituitary Tumors and Headaches
- hGH (Growth Hormone)
  - Adult Growth Hormone Replacement
    from The Society for Endocrinology
  - Adult Growth Hormone Deficiency Syndrome
    by David Cook, M.D.
  - hGH (Growth Hormone)
  - hGH (Growth Hormone) FAQ (Frequently Asked Questions)
  - Premature Aging
  - Webcast on Diagnosing and Treating Adult Growth Hormone Deficiency
    with David Cook, M.D., Marie Cook, BSN, Mary Andrews and several patients
  - Zomacton
- Hirsuitism (excess hair)
- Infertility
- Osteoporosis
  - Osteoporosis
  - Actonel®
  - Calcium
  - Diabetes
  - Soy
- Pituitary Tumors
- Rosacea
- Stress
  - Stress/NIH
  - Stress
- Steroids
- You’d Rather Be Dead …

Just to be silly, a few years ago, I did my own version of Cushing’s symptoms:

Filed under: Cushing's, Cushing's Awareness Challenge 2014, FAQ, pituitary, Rare Diseases | Tagged: Actonel, aging, body, bones, buffalo hump, Calcium, Central Serous Retinopathy, checklist, children, corticosteroids, CSR, Cushing's Awareness, Cushing's Awareness Challenge 2014, depression, diabetes, Dr. David Cook, Dr. Mary Lee Vance, dry mouth, Eflornithine, eyes, Flutamide, graphic, growth hormone, hair, headache, heart, hGH, hirsuitism, infertility, men, miscellaneous, NIH, osteoporosis, pituitary tumors, prednisone, psychological, Robin, Rosacea, skin, sleep, soy, steroids, stress, symptoms, Vanqua, women, Zomacton | Leave a comment »

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