CushieBlog

Cushing’s Help RSS Feed

• ℹ️ Basics: Testing: What Is a TSH Test?
  TSH stands for “thyroid stimulating hormone” and the test measures how much of this hormone is in your blood. TSH is produced by the pituitary gland in your brain. This gland tells your thyroid to make and release the thyroid hormones into your blood.
• ❓Response to Can You Help?
  Yes, I did, thanks. I called them (877.456.6794) and I got my new pen the next day. Others said they got a whole new kit every 3 years….
• 📰 Final Diagnosis: ACTH-dependent Cushing’s syndrome • ectopic ACTH syndrome
  This was a challenging condition and requires a multidisciplinary approach in diagnosis and management, which can be very difficult in resource-limited areas. In addition, a delay in diagnosis and management often results in rapid deterioration of clinical status.
• ❓Response to Can You Help?
  Did you try contacting Omnitrope directly? https://www.omnitrope.com/contact-us
• ℹ️ Basics: The Pituitary Gland: Small But Mighty
  “The pituitary is commonly referred to as the ‘master’ gland because it does so many important jobs in the body,” says Karen Frankwich, MD, a board-certified endocrinologist at Mission Hospital. “Not only does the pituitary make its own hormones, but it also triggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. T […]
• ⭐️ Top Picks on the Message Boards updated December 3, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• ✍️ Actress Charly Clive, Pituitary Adenoma
  In 2015, Charly came home for a visit, and went to see her GP about her lack of periods and a blind spot in her peripheral vision. An MRI scan showed a mass on her brain. ‘They said it had eroded the bone in my nose and was pressing on the optic nerve, and it was lucky we had caught it,’ she says. ‘The next step would have been discovering it because I’d gon […]
• 👕Cushing's TShirts! You're Right - It's All in my Head
  From Board Member HappyGirl - So honored that our wonderful vendor Squishy Faces offered to make this shirt for Cushing’s Awareness! It is a unisex fit for these. As some of you may know, I have a tumor in my pituitary that is causing Cushing’s Disease. I am getting brain surgery Oct 13th 2021! This is one of the worst and hardest illnesses to diagnose. For […]
• 📰 Desmopressin Stimulation Test in a Pregnant Patient with Cushing’s Disease
  The hypothalamic-pituitary-adrenal axis stimulation during pregnancy complicates the investigation of Cushing's syndrome. Our objective is to present a pregnant patient with Cushing syndrome caused by pituitary tumor in which the desmopressin stimulation test helped in the diagnosis and led to appropriate management.
• 👥 Cushie Helper
  Can you go the extra mile and maybe help another Cushie out? They all seem to be so good at this in Oregon. We need to get other areas involved, too. If you can help in any of these areas, please post your info and I'll add it to the chart. Thanks! Volunteer to be an Cushie Helper for someone in your area, either for doctor visits or as an online contac […]
• 👍 Coronavirus Update
  Wow - this post is from March of 2020 - and it's still relevant :(
• ✍️ Sushmita Sen's battle with Addison's disease
  It was in 2014 when the actress left her fans shocked when she revealed that she was diagnosed with Addison's disease. Talking about her condition, Sushmita said that the years she battled Addison's disease "were pretty traumatising". After fighting for 4 long years with the chronic condition, the actress healed and emerged stronger by ex […]
• 🖤 In Memory: Millie Niss ~ November 29, 2009
  Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu. She was only 36. Millie developed a confirmed case of the H1N1 virus. She spent 29 days in the ICU of Millard Suburban Hospital before dying of complications of the flu, compounded by Behcet’s Disease and Cushings Disease.
• 🖤 In Memory: Hermina Dala ~ November 29, 2002
  Hermina had Cushing’s Disease. She passed away November 29, 2002.
• ℹ️ Basics: Testing: Dex Tests
  Dexamethasone suppression test measures whether adrenocorticotrophic hormone (ACTH) secretion by the pituitary can be suppressed. How the Test is Performed During this test, you will receive dexamethasone. This is a strong man-made (synthetic) glucocorticoid medicine. Afterward, your blood is drawn so that the cortisol level in your blood can be measured. […]
• ❓Do you Live with Congenital Adrenal Hyperplasia (CAH)?
  CAHmelia 203 and CAHmelia 204 are clinical trials to test tildacerfont in adults with classic CAH, which may offer you and your loved ones hope of a brighter future – one where you may not have to choose between symptom management and long-term health.
• 📰 Adrenal Fatigue: Faux Diagnosis?
  You may have heard of so-called 'adrenal fatigue,' supposedly caused by ongoing emotional stress. Or you might have come across adrenal support supplements sold online to treat it. But if someone suggests you have the controversial, unproven condition, seek a second opinion, experts say. And if someone tries to sell you dietary supplements or other […]
• ❓Can You Help?
  HI there - question about 24 hr urine and dex. I have 2 positive high serum acth and cortisol positive pm saliva and did not suppress on dex test…
• ❓Can You Help?
  I'm on my second round of GH (I had to stop the first time due to cancer). I've been on Omnitrope since 2006 and the threads inside my pen must have worn down - I'm having a lot of trouble injecting it now.
• 📰 Dynamic And Invasive Testing in Cushing’s Disease
  Dynamic testing represents the mainstay in the differential diagnosis of ACTH-dependent Cushing’s syndrome. However, in case of undetectable or detectable lesion