CushieBlog

Cushing’s Help RSS Feed

• 🦓 Day 15: Cushing’s Awareness Challenge 2018
  After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
• 🎤 Interview Archive: Jenn, Steroid Induced (Iatrogenic) Cushing’s patient
  Jenn (StaceyJenn) was diagnosed with adrenal insufficiency, hypothyroidism, and a host of other ailments in 2001 (candidiasis, intestinal permeability, 22 latent food allergies). Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds....
• 🦓 Day 14: Cushing’s Awareness Challenge 2018
  So, these are only seven of the many, many symptoms of Cushing's. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing's affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected.
• 🎬 About the Hypothalamus-Pituitary- Adrenal Axis (HPA Axis)
  This is a video is on the HPA Axis.
• ✍️ Comment added to Rachelle L (Rachelle), Mother-in-Law of Pituitary Patient
  Dr. John Lee was a doctor who wrote extensively about progesterone therapy for women in menopause. This is one of his books on amazon: https://amzn.to/2JJ1JWw Here’s a lecture on the HPA Axis...
• ✍️ Comment added to Rachelle L (Rachelle), Mother-in-Law of Pituitary Patient
  ...I do have many of the symptoms of hypothyroidism, including feeling cold all the time. I know I have high testosterone levels, as they have been tested and shown as high, and I have some of the affects of that, too, like increased facial hair and chest hair and deepening of the voice.
• 🎤 Interview Archive with Monica and Crystal, Pituitary Buddies
  Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.
• 🦓 Day 13: Cushing’s Awareness Challenge 2018
  So, where did all this blue and yellow come from, anyway? The answer is so easy and without any thought that it will amaze you! In July of 2000, I was talking with my dear friend Alice, who ran a wonderful menopause site, Power Surge. We wondering why there weren’t many support groups online (OR off!) for Cushing's and I wondered if I could start one my […]
• 📰 Fluorescent Metabolite Might Help Surgeons Remove Pituitary Tumors
  The resection of microadenomas — small, benign tumors in the pituitary gland underlying Cushing’s disease — could be aided by a fluorescent marker that is naturally produced by the tumor, a new study shows.
• ✍️ Comment added to Ren, Undiagnosed Bio
  ...My dermatologist took one look at me and suggested it was Cushing’s then immediately referred me to an endocrinologist. I have been lucky to have good doctors along the way. I’ve had my pituitary and adrenal glands removed as well as radiation treatment and participated in a drug study. Today I struggle mostly with fatigue, weak muscles, headaches and anx […]
• ✍️ Comment added to Rachel, Undiagnosed Bio
  ...You may also have undiagnosed hypothyroid problem just because all thyroid hormone levels are within normal limit in the test. However, there are 6 different kind of thyroid disease with different mechanism...
• ✍️ Comment added to Ren, Undiagnosed Bio
  ...My husband was diagnosed with Cushing’s disease Nov 2016 and was told the moon face (round swelling of face) and the purple striae (purple stretch marks) were classic symptoms of Cushing’s.
• ✍️ Comment added to Rachelle L (Rachelle), Mother-in-Law of Pituitary Patient
  I had cyclical Cushing with both my pregnancies…. didn’t know it tho… but my first one was a bad pregnancy….pre eclampsia….low birth weight even tho he was over due….
• 🎤 Interview Archive: Cushing’s Diagnosis and Symptoms, part 2
  Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co-host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanation of what Cushing’s is and what the symptoms are.
• 🦓 Day 11: Cushing’s Awareness Challenge 2018
  As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing's. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery cal […]
• 🎤 Mary O’Connor (MaryO) second interview archive with Robin Smith (staticnrg)
  Robin had Cushing's for over 20 years, at least. Of course, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said "endocrine". She didn't figure it out, either, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for severa […]
• ⁉️ Myths and Facts about Cushing’s: “All types of Cushing’s are the same”
  There are many genetic varieties with quite a few discovered in the past couple of years. Plus, there are several types such as adrenal, ectopic, and pituitary. And so on...
• 🦓 Day 10: Cushing’s Awareness Challenge 2018
  In the fall of 2002 my endo refused to discuss my fatigue or anything at all with me until I lost 10 pounds. He said I wasn’t worth treating in my overweight condition and that I was setting myself up for a heart attack. He gave me 3 months to lose this weight. Those 3 months included Thanksgiving, Christmas and New Years. Needless to say, I left his office […]
• ✍️ Rachelle L (Rachelle), Mother-in-Law of Pituitary Patient
  Rachelle is from Phoenix, Arizona His daughter'-in-law has been told the tumor is inoperable and the only form of treatment is mifepristone (the abortion pill). After 5 rounds of IUI, they found out on 3/20 they are pregnant!
• 📰 Gene test for growth hormone deficiency developed
  Children suspected of having GHD – which cause growth to slow down or stop and other serious physical problems—currently require a test involving fasting for up to 12 hours.