CushieBlog

Cushing’s Help RSS Feed

• 🏞 Two New Cushies added to the Cushing's MemberMap
  Ashleigh is from Australia and Mike H is from Virginia
• ✍️ Mike H, Steroid-Induced Cushing's Bio
  Mike is from Carrollton, VA . Mike is from Carrollton, VA. His adrenal glands aren't working so he has to take prednisone, which has now caused Cushing's. Read more at https://cushingsbios.com/2019/09/12/mike-h-steroid-induced-cushings-bio/
• ✍️ Ashleigh, Pituitary Tumor Bio
  Ashleigh is from Australia. She was originally diagnosed with PCOS main symptoms were weight gain, bright red stretch marks, joint pains, muscle loss and fatigue.
• 📞 Webinar: Experimental Treatments for Aggressive Pituitary Tumors
  During the webinar Dr. Lin will be: 1) Defining aggressive pituitary tumors. 2) Reviewing the current treatment options for aggressive pituitary tumors. 3) Discussing experimental treatment options including a phase II trial investigating the activity of the immunotherapies nivolumab and ipilimumab.
• ⭐️ Top PIcks updated September 11, 2019
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• 📰 Long-acting pasireotide provides ‘sustained biochemical improvements’ in Cushing’s disease
  For patients with persistent or recurring Cushing’s disease, monthly pasireotide therapy was safe and effective, leading to normal urinary free cortisol levels in 47% of patients after 2 years, according to findings published in Clinical Endocrinology.
• 🖤 In Memory: Kandace Bankston ‘Kandy’ Kline, September 9, 2007
  Kandy Klein long-time member of the message boards passed away September 9, 2007.
• ✍️ Roberta "Bert" P, Undiagnosed Bio
  A Golden Oldie post. Roberta in pain, gaining weight, have moon face, etc. I have had Fibromyalgia for over 4 years and am lucky to have a very good doctor for that who is a specialist in his field
• 📰 Autologous Adrenal Transplantation for the Treatment of Refractory Cushing's Disease.
  All 4 patients with symptomatic Cushing's disease experienced resolution of symptoms after autotransplantation without Nelson Syndrome.
• 🖤 In Memory: Janice, Tuesday, September 4, 2001
  In Memory of those we have lost. Janice died Tuesday, September 4, 2001. The very first Cushing's Awareness Ribbons were made for, and worn at, Janice's funeral.
• 🖤 In Memory: Ryan Tyler Monds ~ September 4, 2016
  Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts, uncles, cousins, many life-long friends and friends through Cushing's Disease Awareness.
• 🖤 In Memory: Edward H. Oldfield, MD, 1947–2017
  Dr. Oldfield was my pituitary surgeon at NIH back in 1987. He saved my life. Ed started as Senior Staff Fellow in the Surgical Neurology Branch at the NIH (1981). After 5 years, Ed would become the Chief of the Surgical Neurology Branch. He would stay on as Branch Chief and lead the neurosurgical effort at the NIH for the next 21 years. During his tenure, he […]
• 📰 Cushing’s syndrome driver mutation disrupts protein kinase A allosteric network, altering both regulation and substrate specificity
  Only recently have somatic mutations been identified in the PRKACA gene coding for the catalytic α subunit of PKA (PKA-C) and discovered in cortisol-secreting adrenocortical adenomas responsible for Cushing’s syndrome
• ✍️ Elaine, Adrenal and Pituitary Bio
  A Golden Oldie post. Elaine had a tumot in both the pitutiary gland as well as the adrenal gland
• 📰 Corcept Therapeutics Announces Allowance of Additional Patent Covering the Use of Korlym to Treat Patients With Cushing’s Syndrome
  Corcept Therapeutics Incorporated (NASDAQ: CORT) announced today that the United States Patent and Trademark Office has issued a Notice of Allowance for a patent covering the administration of Korlym® with food. The patent will expire in November 2032. “This patent covers an important finding of our research – that for optimal effect, Korlym must be taken wi […]
• 📰 ACTH Levels After Surgery Help Predict Remission, Recurrence in Cushing’s
  Levels of adrenocorticotropic hormone (ACTH) in circulation after pituitary surgery may help predict which Cushing’s disease patients will achieve early remission and which will eventually see the disease return, a study shows. Also, the earlier that patients reached their lowest peak of ACTH levels, the better their long-term outcomes.
• ✍️ Comment added to Stacy B, Pituitary/Adrenal Bio
  I’m in Indiana also .I have lots of other autoimmune diseases as well.I will see the endrocnoligist Dr for the 1st time this week August 29th 2019 to see if I have Cushing disease .I would like to hear from you and see where your at with your health care at this time
• 🖤 In Memory: Jessica Lee Pierson, August 29, 2018
  Jessica Lee Pierson, 35, passed away Wednesday, August 29, 2018 from complications of Addison’s disease.
• 🖤 In Memory: Cassandra Dills-Dailey ~ August 29, 2017
  Casey Dailey, age 38, was fighting Cushing's disease, a pituitary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weekend, she began feeling sick. She vomited, sometimes with blood. Then, she couldn't stand or talk, relatives said. A high fever started Sunday, a […]
• ✍️ Barbara S (Babs1953), Adrenal Bio
  Barbara S is from Columbus, Ohio. She was Was finally diagnosed in Feb of this year. Had surgery mid March to take left adrenal. Am still on 3mg prednisone daily.