CushieBlog

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• ⭐️ Top Picks on the Message Boards updated October 16, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 📰 Identified: the gene behind an unusual form of Cushing’s Syndrome
  A team of scientists in Montreal and Paris has succeeded in identifying the gene responsible for the development of a food-dependent form of Cushing’s Syndrome, a rare disease affecting both adrenal glands. In their study published in The Lancet Diabetes & Endocrinology, Dr. Isabelle Bourdeau and Dr. Peter Kamenicky identify in the gene KDM1A the mutatio […]
• ℹ️ Cushing's Basics: Testing: 24 Hour Urine Tests (UFC)
  Twenty-four Hour Urine: The doctor will give you a gallon collection jug, usually with boric acid in it. The instructions are usually printed on the side. Generally, you urinate first thing in the morning, as usual. after that, you collect the rest of the urine for the next 24 hours in the jug. The directions usually tell you to refrigerate the jug.
• 👕Cushing's TShirts! You're Right - It's All in my Head
  From Board Member HappyGirl - So honored that our wonderful vendor Squishy Faces offered to make this shirt for Cushing’s Awareness! It is a unisex fit for these. As some of you may know, I have a tumor in my pituitary that is causing Cushing’s Disease. I am getting brain surgery Oct 13th 2021! This is one of the worst and hardest illnesses to diagnose. For […]
• ‼️ Message Board Upgrade (and new features!) Today
  It's going to look a little different but please let me know if anything is not working properly.
• 💉 Did You Get The Pfizer Vaccine? You May Need the Booster
  COVID-19 Vaccine booster shots are available for the following Pfizer-BioNTech vaccine recipients who completed their initial series at least 6 months ago and are: Obese or diabetic.
• ℹ️ Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling
  Video, personal stories and "official information". The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) Catheters were fed from my groin area to my pituitary gland and dye was injected. […]
• 🖤 In Memory: Martha, October 14, 2008
  Upon getting the pre-op work ready for her IPSS, Martha had another abnormal EKG and she was sent for a chemically induced stress test. During the stress test, she said she became very, very sleepy and the nurse asked if she was ok. A few days after the test she became very dizzy and briefly passed out in the kitchen but refused to go to the hospital. She wa […]
• ❓ Were You a Patient at Beth Israel Medical Center in New York?
  Neurologist Accused of Sexual Assault A neurologist at Beth Israel Medical Center in New York has been accused of repeatedly sexually assaulting patients over the course of a decade, but was still able to secure three jobs in three states until surrendering his license in 2017, a new lawsuit with multiple plaintiffs revealed.
• 🖤 In Memory: Bonny Hamm, October 12, 2009
  She was only 45 at the time of her death October 12, 2009. I’ve known far too many Cushies who have died far too young from this disease. Bonny wrote July 1, 2009 I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correctly diagonosed and had my left Adrenal Gland and its tumour removed in June 2007. The recovery was long and hellish. Th […]
• 🖤 In Memory: Barbara "Cookie" Rothenberg, October 11, 2003
  Cookie died October 11, 2003. She had a pituitary tumor, recurrence, BLA, PCOS, radiation... Cookie touched a lot of lives. I would get these perky, cheerful and witty emails. It is terrible to lose her. She has left such a legacy, though, that she will go on touching lives for many years to come. She loved people and wanted to make a difference in the lives […]
• ℹ️ Cushing's Basics: Family Information / Kate
  Dear friends and family: I am writing this letter to share with you some basic facts about Cushing’s Disease/Syndrome and the recovery process so that you will have sufficient information to form realistic expectations about me and my ability to engage in certain activities in light of this disease and its aftermath. As you know, Cushing’s is a rarely diagno […]
• 📰 Metabolic profile differences in ACTH-dependent and ACTH-independent Cushing syndrome
  The most common etiologies of Cushing's syndrome (CS) are adrenocorticotropic hormone (ACTH)-producing pituitary adenoma (pitCS) and primary adrenal gland disease (adrCS), both of which burden patients with metabolic disturbance. The aim of this study was to compare the metabolic features of pitCS and adrCS patients.
• ❓Can You Help?
  My step daughter is really dragging on getting timely care for what appears to be Cushing Syndrome. The symptoms have been going on for years. She has an adrenal tumor that needs to be moved and an abdominal hernia that needs repair. My husband and I are very worried and frustrated about the deteriorating effects on her health. She is extremely reluctance to […]
• 🖤 In Memory of Alice Baker ~ October 3, 2002
  Alice died Thursday, October 3, 2002 of lung cancer and Cushing's.
• 🖤 In Memory of Lenise Petersen, October 2, 2002
  Lenise passed away at 23 years old, just after her pituitary surgery.
• 📰 ACTH-independent Cushing's syndrome due to bilateral adrenocortical adenoma
  The chronic excess of glucocorticoids results in Cushing's syndrome. Cushing's syndrome presents with a variety of signs and symptoms including: central obesity, proximal muscle weakness, fatigue striae, poor wound healing, amenorrhea, and others. ACTH independent Cushing's syndrome is usually due to unilateral adenoma. A rare cause of it is b […]
• ❣️The Message Boards Turn 21 Today! ❣️
  Today  is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) As of today, we have 73,024 members who have made countless posts.
• 📰 Consecutive Adrenal Cushing’s Syndrome and Cushing’s Disease in a Patient With Somatic CTNNB1, USP8, and NR3C1 Mutations
  The occurrence of different subtypes of endogenous Cushing’s syndrome (CS) in single individuals is extremely rare. We here present the case of a female patient who was successfully cured from adrenal CS 4 years before being diagnosed with Cushing’s disease (CD). The patient was diagnosed at the age of 50 with ACTH-independent CS and a left-sided adrenal ade […]
• 🖤 In Memory: Bettye Jean Douglas, September 28, 2016
  Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed, a decision was made against surgery and Bettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease, as many patients do, she rapidly lost weight and was admitted into hospice care soon after.