CushieBlog

Cushing’s Help RSS Feed

• 📰 Kiko Matthews, Pituitary Cushing's Survivor Solo Rows Atlantic to Raise £100K For Hospital That Saved Her Life
  Eight years ago she almost died after a 6mm tumour on her pituitary gland – a gland at the base of the brain responsible for hormone control – brought on an aggressive form of the rare disease Cushing’s. The tumour made her cortisol levels climb dangerously high, causing severe memory loss, muscle wasting, osteoporosis, end-stage diabetes, insomnia, ‘brain f […]
• ✍️ Comment added to Danielle, Undiagnosed (Cyclical Cushing's)
  Peter's comment reads almost like an entire bio of its own. "I am in a similar predicament. In January 2017 I started having random episodes of Severe sweating, I thought it was because I was overweight at nearly nearly 250 pounds with a height of 5’8. I went to primary care physician he recommended I see a Hematologist who saw some abnormalties in […]
• 🖊 Mary S (ladysslipper), Adrenal Bio
  (Golden Oldie) Mary S (ladysslipper) is from Frostburg, Maryland. She recently completed a clinical trial at NIH because of an adrenal nodule. She also has hyperplasia of both adrenals and primary hyperaldosteronism as well as elevated cortisol.
• 📌 Comment added to Neurosurgeon and Otolaryngologist Team Up to Remove Tumor in Pituitary Gland
  May I ask, what your symptoms were before surgery and what led to the initial discovery of your pituitary adenoma? Was Cushings a secondary diagnoses?
• ❣️Love the Slide!❣️
  Love this picture that came up in one of the Cushing's Conference presentations.
• 🔵 Cushing's Help Guest Forum
  The Guest Forum has returned on a trial basis.  At the moment, new guest questions are not moderated.
• 🔵 New on the Message Boards ~ July 22, 2017
  A quick summary of some of this week’s activity on the Cushing’s Help message boards. Save the Date info for a Conference on Adrenal Insufficiency Form over fashion may save your life! Yes, You Need a Medical Alert Bracelet! A new member wonders about A Small Hump Maybe? You can post directly to Facebook and/or Twitter, if you choose. People who are not logg […]
• 😃 New Testimonial From Dara M
  Thank the gods, you have saved so many of us xxx
• ❣️We're 17 Years Old Today❣️
  It’s unbelievable but the idea for Cushing's Help and Support arrived 16 years ago last night. That’s a long time for anything online..... The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life! […]
• 📰 A Retrospective Review of 34 Cases of Pediatric Pituitary Adenoma
  Craniotomy is worth considering for total tumor removal. Pituitary adenoma apoplexy needs further studies since its different features between children and adults in present study. Specialized care and teamwork of neurosurgeons, pediatricians, and endocrinologists are important.
• 😃 Kind Words from a Facebook Post
  These came up in my Facebook Memories from this date in 2009!
• 🎂Cushings Help is almost 17!
  It's unbelievable but the idea for Cushing's Help and Support arrived 17 years ago tonight.
• ⚠️ Message Boards Updated
  The upgrade is here, it's different and I need a new "skin" for this to get rid of all the white. Some things are still happening behind the scenes.
• 😃 New Testimonial from Lisa T W
  Just wanted to add much love and thanks for everything you have done. You probably don't even know how many lives you have touched, and saved! ...
• 📰 NDA for Macrilen™ for the Evaluation of Growth Hormone Deficiency in Adults
  Macimorelin, a ghrelin agonist, is an orally-active small molecule that stimulates the secretion of growth hormone. Macimorelin has been granted orphan drug designation by the FDA for diagnosis of AGHD. ... AGHD affects approximately 75,000 adults across the U.S., Canada and Europe. Growth hormone not only plays an important role in growth from childhood to […]
• ❗️Yes, You Need a Medical Alert Bracelet!
  #3– DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stress this enough. Ladies I know that you want the cute ones that look like normal bracelets, and have pretty charms, etc on them… THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that they should look at it. If it looks like a regular bracelet or regular necklac […]
• 📅 Conference on Adrenal Insufficiency
  We're thrilled to announce the date for AIU's first stand alone conference for Adrenal Insufficiency. We have some incredible speakers lined up and hope you'll come join us. A list of speakers will be included with registration information in September/October.
• 📌 Comment added to Suzanne (Suzanna), Undiagnosed Bio
  Request a midnight cortisol salivary test bc it will help rule out medication causing interference with your results. I take depo and despite strong concerns about taking it with Cushing’s it has not made any difference. The traits and actions you describe and mention are also related to high cortisol levels....
• 🖊 Suzanne (Suzanna), Undiagnosed Bio
  Suzanne is from Nottingham, England. She is not yet diagnosed but test results show high cortisol. She asked her GP if her contraceptive (Yaz) could be causing her symptoms and he said no.
• 🖊 Maria, Pituitary Bio
  (Golden Oldie) Maria is from Pittsburgh, Pennsylvania. She was diagnosed at the age of 16 with a pituitary tumor, 17 when she had removed the first time and 19 the second time.