CushieBlog

I had a follow-up appointment with Plan C today – a local oncologist specializing in NETs (which includes carcinoids).  Since my labs all came back negative and the Octreoscan was read as negative, she is sending me back to my PCP and won’t be scheduling a follow-up with me.  She knows something is wrong – I was flushing profusely when I was in her office today – but she has looked into this as far as she is able to here and is going to leave it at that.

I do still have the somatostatin test pending and she did order two more tests – Chromogranin A, which is another marker for carcinoids, and calcitonin which can be elevated with medullary thryoid cancer (another disease that can also cause flushing).  She also recommends I see an allergist to perhaps further rule out a mast cell disorder, although she did run…