CushieBlog

Cushing’s Help RSS Feed

• 🦓 Day 30, Cushing’s Awareness Challenge 2021
  Today is the final day of the Cushing’s Awareness Challenge and I wanted to leave you with this word of advice… To that end, I’m saving some of what I know for future blog posts, maybe even another Cushing’s Awareness Challenge next year.
• ✍️ Hannah B, Pituitary Bio
  After countless doctors appointments and misdiagnoses, Hannah was diagnosed with Cushing syndrome. She has a tumor on her pituitary glad [sic] which causes it to release too much cortisol into her body, affecting her metabolism and growth hormones. It also affects her energy levels and her ability to recover from workouts. “Labs are normal, this is normal an […]
• ⭐️ Top PIcks on the Message Boards updated April 30, 2021
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 🧪 Home cortisol tests: 3 of the best
  There are several home cortisol tests available to purchase over the counter or online. These allow a person to take a sample of blood, urine, or saliva before sending it off for analysis. After taking a home cortisol test, people can usually receive their results within 2–5 days online or via a telephone call with a healthcare professional. However, there a […]
• 🦓 Day 29, Cushing’s Awareness Challenge 2021
  In 1983 I came across a little article in the Ladies Home Journal which said: “If you have these symptoms…” I found the row with my symptoms and the answer read “…ask your doctor about Cushing’s”.
• 📰 Acute Pancreatitis Associated With Cushing Syndrome
  Cushing's syndrome (CS) is a rare and severe disease. Acute pancreatitis is the leading cause of hospitalization. The association of the two disease is rare and uncommon. We report the case of a 37-year-old woman admitted in our service for acute pancreatitis and whose Cushing syndrome was diagnosed during hospitalization. The aim of this work is to try […]
• ⁉️ Cushing’s Myths and Facts: “Vitamins and Natural Remedies can cure/heal Cushing’s”
  Do you know how many people have told me that if I just “juice”, I will be cured from Cushing’s or Adrenal Insufficiency?! I appreciate the sentiment, but the sad reality is that no amount of juicing and no vitamin will cure Cushing’s. Some Cushing’s patients do take vitamins, some do eat raw food or paleo diets, and some even juice. However, this is just a […]
• 🦓 Day 28, Cushing’s Awareness Challenge 2021
  I was walking somewhere on deck and suddenly a wave came up over the deck making it very slippery. I fell and cracked the back of my head on the curved edge of a table in the dining area. I had the next-to-the-worse headache I have ever had, the worst being after my pituitary surgery. At least after the surgery, I got some morphine.
• ⁉️ Cushing’s Myths and Facts: Even Though You Are Chronically Ill, You Should Have The Same Amount Of Energy Every Day…
  Christine Miserandino uses the spoon theory to answer the question, “What does it feel like to be sick?” The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.
• 🦓 Day 27, Cushing’s Awareness Challenge 2021
  It would be nice to have everyone out there walking or running but that’s not real life, at least in the Cushie world. It’s been a long time since I’ve really been In My Life – maybe it’s time to get back.
• ✍️ Janice B, Pituitary Bio
  I was married 38 years when I became sick in 2011, but the family doctor and my husband wouldn’t believe me. They thought I was lazy, fat and crazy when they shipped me off to a mental ward in a hospital. I knew I was physically sick with Cushing’s Disease, but I couldn’t convince the psychiatrist. I left my husband, got a new doctor and was diagnosed with C […]
• ⁉️ Cushing’s Myths and Facts: “You should be all better by now!”
  Fact: However, in the case of the chronically ill, a different cycle occurs. In the chronically ill, the person loses his normal health. He goes through a period of treatment and sometimes recovers...
• 🦓 Day 26, Cushing’s Awareness Challenge 2021
  So often during the diagnosis phase of Cushing’s I felt lost like this picture – I was walking alone to an unknown place with an unknown future. My diagnosis was pre-Internet which meant that any information had to be gotten from libraries, bookstores, magazines…or doctors. In 1983 to 1986 I knew something was terribly wrong but there was no backup from doct […]
• ⁉️ Cushing’s Myths and Facts: “Each Person Requires the Same Dose of Steroid in Order to Survive…”
  Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand th […]
• 🦓 Day 25, Cushing’s Awareness Challenge 2021
  At NIH I set up a daily “routine” of sorts and listening to these tapes was a very important part of my day and helped me get through the ordeal of more testing, surgery, post-op and more. When I had my kidney cancer surgery, those tapes were long broken and irreplaceable, but I had replaced all the songs – this time on my iPod.
• ⁉️ Myth: “All Cushing’s patients have the exact same symptoms
  Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not. Experts have come to learn that each patient should be treated individually. Though there are symptoms that are […]
• 🦓 Day 24, Cushing’s Awareness Challenge 2021
  In 1986 I was finally diagnosed with Cushing’s after struggling with doctors and trying to get them to test for about 5 years. I was going to go into the NIH (National Institutes of Health) in Bethesda, MD for final testing and then-experimental pituitary surgery. I was terrified and sure that I wouldn’t survive the surgery.
• ❓Can You Help?
  Still suffering then had reaccurrance in 2008.. Wasn’t willing to go for surgery again as had a traumatic experience before.. Then had gamma knife radiation in 2008 .. Still suffering with symptoms.. This year symptoms are severe again with headaches and severe weight gain around stomach.. Severe pain in legs and body can’t have normal life .. Doctors said n […]
• ✍️ Comment added to Cushing’s Myths and Facts: After a “cure” for Cushing’s, everyone heals and goes back to normal.
  Hi my name is Shagufta and I have had Cushings Disease for over 16 years ..Post surgery and still suffering since surgery in 2004/2005.. I was diagnosed in 2004 after suffering and running back and forth to the doctors for over 10 years .. I think my symptoms started in 1990 when I had an early menopause at 24 years old.. I had benign tumour in the Pitituary […]
• 🏞 One New Cushie added to the Cushing's MemberMap
  Angelique L is from the United Arab Emirates. She is a 54 year old woman with no kids. She had a hysterectomy at age 44 and went through the change… Fast forward to 2019 and she got a very painful and swollen pituitary gland infection on the right side of her face. Admitted to hospital and administered 60mg Prednisone intravenously.