CushieBlog

Cushing’s Help RSS Feed

• ❣️We're 19 Years Old Today❣️
  It’s unbelievable but the idea for Cushing's Help and Support arrived 19 years ago last night. That’s a long time for anything online..... The first website (http://www.cushings-help.com) first went “live” July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I’m making some helpful differences in someone else’s life! […]
• ⭐️ Top PIcks updated July21, 2019
  Top content from across the community, hand-picked by MaryO and the Cushing's community,
• ✍️ Kim H, Ectopic Bio
  Kim H is from Grays, UK. She has ectopic Cushing's but nearly 16 years later the ectopic source has never been found despite many more tests. It is still there because it still produces ACTH. Update May 2007: The ectopic source was in Kim's appendix. After testing, it was found to be a carcinoid tumour.
• 📰 Researchers Report Rare Case of Cushing’s Caused by Bilateral Adrenal Tumors
  Cases of adrenocorticotropic hormone (ACTH)-independent Cushing’s syndrome are often caused by unilateral tumors in the adrenal glands, but Indian researchers have now reported a rare case where the condition was caused by tumors in both adrenal glands.
• ✍️ Comment on Why It's Safer Than Ever To Remove Pituitary Tumors
  I had Cushings disease and was fortunate to have my transphenoidal surgery with Dr Edward Laws as my surgeon and Dr Laurence Katznelson as my endocrinologist At Stanford University Med center. It’s a horrible disfiguring disease. I’m so grateful it’s getting more press coverage and that more doctors are becoming aware of it. I suffered over10 years with no d […]
• 🎬 Video: Taylor Davis spreads awareness about Cushing's Disease
  21-year-old Taylor Davis, spent nearly three years battling a mysterious illness called Cushing’s Disease. “I could barely walk to class anymore. I was in pain. I gained like 70 pounds, despite extreme dieting and exercising,” said Davis.
• 📰 Adrenal incidentalomas—do they need follow up?
  Are adrenal incidentalomas, which are found by chance on imaging, really harmless? In this paper, the authors looked at 32 studies, including 4121 patients with benign non-functioning adrenal tumours (NFATs) or adenomas that cause mild autonomous cortisol excess (MACE).
• 📰 Why It's Safer Than Ever To Remove Pituitary Tumors
  Pituitary tumors are unusually common. Fifteen percent of adults have one. Most do not cause symptoms or require treatment. If you have one that does, your treatment may involve medication, radiation, and surgery. Removing a pituitary tumor by surgery can be tricky. The gland is surrounded by carotid arteries, optic nerves, and lots of important brain matter […]
• 🎬 Video: Pituitary tumors: Mayo Clinic Radio
  This interview originally aired July 6, 2019.  Dr. William Young Jr., a Mayo Clinic endocrinologist, discussed pituitary gland tumors.
• 😃 New Testimonial From Lili
  I just know I am grateful to you and this site.
• ✍️ Lili, Pituitary Post-Op Update
  Lili is from Florida. She updated her bio after her pituitary surgery.
• 📰 Post-traumatic Stress Symptoms Common in Cushing’s Patients Before Surgery
  Patients with Cushing’s disease may develop post-traumatic stress symptoms, which are generally resolved once they undergo surgery to remove the tumor, but can persist in some cases, a study shows. The study, “Posttraumatic stress symptoms (PTSS) in patients with Cushing’s disease before and after surgery: A prospective study,” was published in the Journal o […]
• 🖤 In Memory: Kassey Whiterock, June 30, 2016
  Kassey passed away on June 30, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old.
• 📰 Temozolomide Effective Against Cushing’s Caused by Aggressive Tumors
  Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment option for pediatric patients, despite its inherent technical difficulties, a new study shows.
• 💉 New Helpful Doctor added to Texas
  Sasan Mirfakhraee, specializing in Cushings Disease/Syndrome, type 1 and type 2 diabetes mellitus, as well as thyroid, pituitary, and bone remodeling disorders.
• ✍️ Meghan T, Pituitary Bio
  Meghan is from Arlington, Texas. At age 21 (2015) she was diagnosed with Cushings Disease. After a failed pituitary surgery, she had a BLA.
• ‼️ Message Board Upgrade Coming This Weekend
  Please let me know if anything is not working properly. 
• 🏞 New Cushie added to the Cushing's MemberMap
  Karen is from Winnipeg. She is not yet diagnosed with Cushing's.
• 🖤 In Memory: Kalyn Allen, June 28, 2017
  Kalyn was only 41 when she died on June 28, 2017. She had recently had pituitary surgery.
• ✔️ New on the Message Boards
  When you sign up/sign in, you'll see even more items!. Some areas are open to guests for reading and posting. Enjoy!