CushieBlog

I am in a bit of a rush today, so this post will be brief.  The second part of my current plan is to try and gather more evidence in terms of imaging.  The Octreoscan I had at the NIH did show an area suspicious for a neuroendocrine tumor (NET) in the anterior mediastinum.  There is some uncertainty about whether the corresponding CT scan of my thymus is normal or not.  Since I feel horrible and thymic NETs tend to be very aggressive in MEN-1 (if that is what I have), I don’t want to just sit and wait to see if there is something there and it spreads/grows.  It doesn’t sound pleasant and it doesn’t sound smart.

You might be asking yourself at this point:  if you really do have a tumor and it is really making you that sick, how can it be that hard to find?  The…