Cushing’s Help RSS Feed

• 🖤 In Memory: Shianne Lombard-Treman, March 28, 2018
  Shianne was a Cushing's Survivor who had just published a book, Be Your Own Doctor She was 41.
• ⭐️ Top Picks on the Message Boards updated March 28, 2023
  Top content from across the message boards, hand-picked by MaryO and the Cushing's community.
• 🖤 In Memory: Deloreese Daniels Owens, March 16, 2002
  Deloreese Daniels Owens, daughter of “Touched by an Angel” star Della Reese, was found dead at her Los Angeles-area home at the age of 41. The cause of death was not disclosed, but Owens suffered from a pituitary dysfunction that made her prone to infections.
• 🖤 In Memory: Marie Richardson, March 2009
  I do not know the exact date that Marie died in March, 2009. Contributory factors in Mrs Richardson's death had been Cushing's disease, a very rare condition involving a hormone disorder, and bronchial pneumonia.
• 🖤 Remembering Sue Koziol (SuziQ)
  When I opened up my phone this morning, I saw the reminder that this is the anniversary of Sue's passing. She was such a good friend to so many here and so many Cushies worldwide. It's been another year. Not a day goes by that I don't miss Sue.
• 🥼Bee’s Knees: TKR, Finally!
  After going through the Medical Clearances again, 5 days of antiseptic showers (plus another one this morning), drinking what seems like gallons of Gatorade (I couldn’t have the hospital-offered strawberry Ensure), my surgery is scheduled for 12:30 pm today.
• ‼️ Message Board Upgrade (and new features!) Coming this Weekend
  This is our March maintenance release.
• 🎬 Video: Happy Girl tells her Story So Far
  I am currently struggling to get a Cushing's Diagnosis. I have all the symptoms, the weight gain, the striae, the fatigue, muscle issues, Buffalo hump, it all matches up, but my salivary cortisol tests and the UFC I took also came back normal (It did not test for 17-OHS). My doctor's keep telling me it's PCOS despite the fact that my testoster […]
• 🖤 In Memory of Erica Michelle “GaGa” Meno, March 6, 2015
  Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery, radiation, and a BLA in an effort to receive her cure.
• 📰 Cushing’s Syndrome in the Elderly: Data from the European Registry on Cushing’s Syndrome
  Evaluate whether age-related differences exist in clinical characteristics, diagnostic approach and management strategies in patients with Cushing’s syndrome included in the European Registry on Cushing’s Syndrome (ERCUSYN).
• 🥼Bee’s Knees: Pre-TKR, Another Setback?
  So, I had the Medical Clearance Revision and it was exactly like the Medical Clearance I did just over 30 days ago. It looks like surgery is a go. Thursday, March 9 at 12:15. There’s extra stuff for me to do to prepare, thanks to Cushing’s, the GH deficiency, the Adrenal Insufficiency, the one kidney, etc but I can do it!
• 🖤 In Memory: Liz Raftery, March 2012
  We sadly learned that Liz died in March 2012 at the age of 45. She was an active member of the Cushing’s Help Message Boards. She had a photo gallery there. The photo below is from that gallery. Liz in 2002The image at left is from 2002. Liz wrote in her bio: Hello, I’m from Hampton, just outside London. Same old story – at least 6 years of various illnesses […]
• 🦓I t’s Kidney Cancer Awareness Month Again
  Kidney Cancer Awareness is very important to me, because I learned I had it in 2006. I’m pretty sure I had it before 2006 but in that year I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages […]
• ℹ️ Cushing's Basics: What Is Cortisol And How Is It Affecting My Energy Levels?
  You may be experiencing high cortisol levels if you’re holding onto weight in your belly or face or have noticed fat deposits in your shoulder or stretch marks on your stomach. Muscle weakness, blood sugar spikes, high blood pressure and hirsutism (unwanted hair growth) may be other red flags.
• 💡 Light Up for Rare
  The National Organization for Rare Disorders (NORD) asks Americans to plan ahead to participate in the Light Up for Rare campaign to raise awareness of rare diseases. NORD is the U.S. sponsor for  Rare Disease Day  on Feb. 28. The annual awareness day spotlights approximately 7,000 rare diseases that affect more than 300 million people worldwide. More than 2 […]
• ✍️ For Rare Disease Day: MaryO, Pituitary/Kidney Cancer Bio
  As one can imagine, it hasn’t been all happiness and light. Most of my journey has been documented here and on the message boards – and elsewhere around the web.
• 📅 What I'm Doing for Rare Disease Day
  Each and every day since 1987, I tell anyone who will listen about Cushing’s...
• 📅 Today is Rare Disease Day
  Today is Rare Disease Day. Learn all about Cushing's Disease at http://www.cushings-help.com/
• 🎤 Cushing's Support for Adults- Virtual Chat
  This virtual chat, moderated by Shauna Nelson - MAGIC's Cushing's Division Consultant, is an opportunity for adult members to share stories, discuss treatments and successes that have worked for them.
• 🙏 Update - Please Pray for the Founder of the Adrenal Alternatives Foundation
  We are so happy to report Winslow is much better. Though her blood cortisol levels are only reaching 2 despite continuous infusion, her electrolytes have stabilized.