Novartis is committed to supporting the pituitary community and continues to address the evolving needs of patients and caregivers.
In this video, a multidisciplinary panel discusses the diagnosis of acromegaly and Cushing’s disease.
For more information, visit: http://www.AboutAcromegaly.com and http://www.AboutCushings.com.
Filed under: Cushing's, pituitary, Video | Tagged: Acromegaly, caregivers, Cushing's Disease, Novartis, patients, pituitary, tumor, video | Leave a comment »
April is always Cushing’s Awareness Challenge month because Dr. Harvey Cushing was born on the 8th.
Thanks to Robin for this wonderful past logo! I’ve participated in these 30 days for Cushing’s Awareness several times so I’m not quite sure what is left to say this year but I always want to get the word out when I can.
As I see it, there have been some strides the diagnosis or treatment of Cushing’s since last year. More drug companies are getting involved, more doctors seem to be willing to test, a bit more awareness, maybe.
This year’s logo, also thanks to Robin:
How fitting that this challenge should begin on April Fool’s Day. So much of Cushing’s Syndrome/Disease makes us Cushies seem like we’re the April Fool. Maybe, just maybe, it’s the doctors who are the April Fools…
Doctors tell us Cushing’s is too rare – you couldn’t possibly have it. April Fools!
All you have to do is exercise and diet. You’ll feel better. April Fools!
Those bruises on your legs? You’re just clumsy. April Fools!
Sorry you’re growing all that hair on your chin. That happens as you age, you know. April Fools!
Did you say you sleep all day? You’re just lazy. If you exercised more, you’d have more energy. April Fools!
You don’t have stretch marks. April Fools!
You have stretch marks but they are the wrong [color/length/direction] April Fools!
The hump on the back of your neck is from your poor posture. April Fools!
Your MRI didn’t show a tumor. You couldn’t have Cushing’s. April Fools!
This is all in your mind. Take this prescription for antidepressants and go home. April Fools!
If you have this one surgery, your life will get back to normal within a few months. April Fools!
What? You had transsphenoidal surgery for Cushing’s? You wasted your time and money. April Fools!
I am the doctor. I know everything. Do not try to find out any information online. You could not have Cushing’s. It’s too rare… April FOOL!
All this reminds me of a wonderful video a message board member posted a while ago:
It’s Literally Impossible to Have Cushing’s
So now – who is the April Fool? It wasn’t me. Don’t let it be you, either!
Filed under: Cushing's, pituitary, Rare Diseases, Treatments, Video | Tagged: April Fool, awareness, bruise, Cushing's Awareness Challenge 2015, diagnosis, doctors, Dr. Harvey Cushing, drug companies, endocrinologist, exercise, fatigue, hirsuitism, MRI, pituitary, sleep, stretch marks, surgery, symptoms, transsphenoidal, treatment, tumor, video, weight | Leave a comment »
Dr. Theodore Friedman explains the role of the pituitary gland in a woman’s body.
Filed under: Cushing's, pituitary, Video | Tagged: Dr. Theodore Friedman, Pituitary gland, video | Leave a comment »
The perspectives of individuals living with Cushing’s disease, their caregivers and advocates.
In creating this series, Novartis hoped to shine a spotlight on key factors involved in living with Cushing’s disease, including diagnosis, disease management and the importance of a strong support network.
The video series has been posted on the Novartis YouTube channel and can be viewed via the following links:
Filed under: adrenal, Cushing's, pituitary, Treatments, Video | Tagged: advocates, caregivers, Cushing's, diagnosis, disease management, Novartis, patients, support network, video, YouTube | Leave a comment »
Novartis is re-sharing these Cushing’s disease resources for Rare Disease Day:
Filed under: adrenal, Cushing, Cushing's, pituitary, Rare Diseases, Video | Tagged: Cushing's Disease, Dr. Harvey Cushing, infographic, Rare Disease Day, video | 2 Comments »
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