CushieBlog

How Patients Are Driving Research & Cures For Their Own Rare Diseases – By definition, a rare disease is one that strikes fewer than 200,000 Americans, sometimes only a few dozen. But with 7,000 rare diseases known to doctors, …

Cushing’s Awareness Month –April is Cushing’s Awareness Month. Bloggers all over the world are joining in to help others become aware. The list of bloggers can be found here, on t…

Redbook article on Cushing’s – Found a really well written article about Cushing’s in Redbook. Take a look and let me know what you think! I always love when this disease gets some cover…

Endocrine and Rheumatology Follow Up Visits – I had my endocrine and rheumatology follow up appointments last week. I was scheduled to see endocrine anyway, but the rheumatology appointment ended up ha…

Irony – My health always limits what I can do, especially day to day. I save spoons for the important things so that I can be more up and outgoing and have a good…

CUSHING’S AWARENESS DAY!!! – HAPPY BIRTHDAY DR. HARVEY CUSHING!!!!! With today being Cushing’s Awareness Day, I thought I would updated my blog. 412 days ago today I had an operati…

Lilian (+ que) Um anjo em Minha Vida – Estou escrevendo pois meus pensamentos precisam sair para fora da minha cabeça… Não sei se irei publicar isso no blog, não sei se será hoje, mas eu prec…

Day 30 of Cushing’s Awareness: April showers bring May flowers. – Today is April 30th and that means that I have completed the 30 day challenge to help raise awareness for Cushing’s. I am really glad that I have been able…

Cushing’s Awareness Month –April is Cushing’s Awareness Month. Bloggers all over the world are joining in to help others become aware. The list of bloggers can be found here, on t…

After gaining 120 pounds in 1 year, rare diagnosis saves man’s life – Cushing’s was featured this morning on the Today Show’s Medical Mysteries three-part series. [Hooray for national exposure!] Donelle Trotman, a father in…

Happy Pi day! – I know it’s been a year and a half since I’ve posted here (sorry!)! But I wanted to do a quick update. I’m still doing great! Still on 20mg of hydro daily…

Moonrise Kingdom (2012) Online Streaming – Download fuld *Moonrise Kingdom* i HD-video. Download film *Moonrise Kingdom* i high definition kvalitet. Se fuld film *Moonrise Kingdom* i bedste look v…

Endocrine and Rheumatology Follow Up Visits – I had my endocrine and rheumatology follow up appointments last week. I was scheduled to see endocrine anyway, but the rheumatology appointment ended up ha…

My story – For those of you who don’t know the story behind my getting sick… I was never diagnosed with Cushings, or even thought that it could be an issue. No one…

Another diagnosis, Another day, Another blog post – I’m clearly being facetious about the “another blog post” part as I haven’t written in here since the spring. I frankly have too much on my plate as it i…

Hormones, dating and other facts of life –Well the news since the last post regarding my health, is that I underwent the Insulin Stress Test (IST) and got my results. The IST is a test during which…

Did you know that Cushing’s KILLS?? – This weekend the Cushing’s community lost another warrior way too early. Melinda was only 25 years old, but she had been fighting for her health for a lon…

Irony – My health always limits what I can do, especially day to day. I save spoons for the important things so that I can be more up and outgoing and have a good…

One year later – This won’t be long, as I’m heading to bed. But since it is my one year anniversary of being Cushing’s free, I wanted to write something. Since you read my …

Cushing’s disease diagnosis – Today is May 1, 2013….on this date in 2011 I was diagnosed with Cushing’s Disease. Today am I six-months post BLA. If you told me then this is where I’…

We’ve Moved! – Our new address is http://www.cushieblog.com See you there!

I’m now 5 months post op tummy tuck –Well, I’ve never been known for keeping up with my blog. I’m bad about that. Anyway, I have had a bit of a set back. It seems I have a hernia again. I had …

It’s Back… – We spoke with Dr. Friedman this week and he confirmed what we already knew. Alex is producing cortisol, yet again. She had both a pituitary MRI and an adre…

Meditação, uma atitude mais positiva perante a vida – Como sabem, o cortisol alto está intimamente ligado ao sistema emocional, principalmente ao stress, por isso, acho que a meditação é um bom complemento pa…

Taquitos! – My daughter, Kaitlyn, brought this recipe home from college with her. Easy to make and really yummy! *Taquitos * 1/3 C cream cheese 1/4 C salsa 1 tbls f…

Day 30 of Cushing’s Awareness: April showers bring May flowers. – Today is April 30th and that means that I have completed the 30 day challenge to help raise awareness for Cushing’s. I am really glad that I have been able…

Day 26 – Magic Foundation – So wish that my son and I could attend this together. Maybe it will work out next year! Please click here to see what The Magic Foundation Convention is a…

It is with you every day in so many ways.– I have not been keeping up with the blog. Not because it isn’t important or I don’t think about it but because like so many others I just don’t have enough…

– I’ve often had imaginary conversations with doctors concerning my family’s health. I know that we didn’t encounter as many unsupportive doctors as m…

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